Posted by Tony C. on June 10, 2004, at 9:47:15
Hello all, Serzone is gone, but that is because of Voluntarily removing it from the Market by Bristol Myers Squibb), due to poor sales, not safety issues the FDA has assured me. I did in fact personally call Public Citizens, and voice my concern to them, the lady was very nice, I told her my concern, I was very polite also. She told me I have a valid concern, and she would send it to the proper department, to at least hear a users side. But I know it probably won't do anything. I told them I was grateful for them looking out for people, BUT I think people like myself who have responded so well and have done so good, should at LEAST have the oppurtunity for a channel to be available to keep us on this as long as we understand the risk. I was very nice, not rude so was she. I think our best bet is to petition the FDA to at least not ban it, they told me that as of right now they have no plans to do so, and that no pressure group or lawyers can FORCE them to do anything, BUT that the Lawyers and Pressure groups can dramatically influence Doctors so they do not prescribe it as much, and that there pressure can scare patients off of it, or new users from wanting to try it, which may ultimately lead to the Generic Drug companies saying "OUR SALES ARE POOR, WE WILL DISCONTINUE MAKING IT" which could eventually mean people like me are screwed entirely. For me I am in day # 9 of Filing off the same small piece, and so far I am here, and have not been doing to bad as far as discontinuation symptoms, I do not care if I have to file same small piece for 2 weeks, then a little more for 2 weeks, then more for 2 weeks etc. or if it takes me 1 and 1/2 years to get off of this, I will try it. I prefer to stay on it for life, BUT it is way to controversial, and I would be in plain denial if I acted like I will always have that option. Low and Slow works best for me. I do feel symptoms though, even this low and slow, but thankfully they are transient and not to bad thus far. If I get to a point where I feel like complete crap I will tell my Doctor. PLEASE PEOPLE NEVER TRY TO GET OFF OF YOUR MEDS ON YOUR OWN !!! I have done alot of research, and there are Doctors out there that realize people must go low and slow. I will try to post you some of my research about tapering.
I suggest you call the FDA and voice your concerns, as they are our best shot, then maybe they will tell the Generic Companies alot of people want to stay on this NEFAZODONE, or at least that we should have an outlet, and least someone will make it.
Keep in touch and STAY POSITIVE !!!
Sincerely - Tony C.
poster:Tony C.
thread:355368
URL: http://www.dr-bob.org/babble/20040608/msgs/355368.html