Posted by Nitro on September 24, 2003, at 14:26:17
In reply to Re: Migaines, and muscul weakness + topomax?, posted by Haifa on September 24, 2003, at 13:38:41
> Has anyone gotten migraine / headache relief with Topomax?;
> Rule No. 1 when dealing with physicians: be an aware consumer, just like at any other transaction. it is MY body, I better know, not just trust what Dr says.
> It is hard to find a physician who has the tenacity to stay with you for the duration through the frustrations of any chronic problem that cannot be "fixed".
> I am once again on the trial-and-error track with my neurologist, who needs to be ‎reminded occasionally of Rule #1. After I described to him the symptoms I have with ‎what we called so far;migraines, he flinched and told me to NOT use any vassal ‎constrictors (Imitrex, Maxalt, etc): I get weakness on my left side, to the point of ‎paralysis. Imitrex and the likes does have the rebound effect, and I am trying to get off ‎the merry-go-round.
> So now it is:
> Excedrin (with Zantacs to coat my stomach), Darvacet for severe attacks, and the new ‎one started last night) - Topomax. (Norpramine did NOTHING).
> I did not know about Topomax and weight loss - I have very little to spare. I read it can ‎increase kidney stones!
> I need support right now. I am pretty much in charge of my life otherwise (single, home ‎business, my timetable, etc), but I still have 3-5 migraines/month, lasting from 12-72 ‎hours. I have on average 5 days in a week to do what others do in 7, and I am ‎constantly in time deficit, not to mention the constant cancellations of events whether ‎fun or obligations.
>
I have only been on Topamax 2 weeks - but have been migraine free and have been having 5 migraines a week so it is feeling like a miracle to me at the moment. Imitrex was relieving my migraines but I needed something to prevent them from coming on so constantly and top seems to do it. and at 50 mg per day. They say that the instance of kidney stones and other side effects is very minimal at such a low dose but to drink plenty of fluids (of course no definition of plenty, so I am drinking 100 oz per day). I drink a lot of water any way and tend to stay away from caffeine and carbonated drinks and sugar all together, and only drink alcohol for special occasions. I hear some people have good luck with Tryptophan for migraines - I didn't, nor any of the over the counter, the darvoset or percoset helped some with riding out the pain of migraine but didn't give the relieve the imitrex did. good luck to you. Nitro.
poster:Nitro
thread:5053
URL: http://www.dr-bob.org/babble/20030923/msgs/262975.html