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Re: Surgery tomorrow: removal of VNS implant

Posted by LifeTime on September 9, 2003, at 10:54:12

In reply to Re: Surgery tomorrow: removal of VNS implant » LifeTime, posted by jerrympls on September 9, 2003, at 7:27:50

Dear Jerry,

I am extremely glad to also read that you “have to run off to work.” To me, as a support person and caregiver, that is an extremely important and favorable sign. I do hope all continues to go well for you.

1- If you don’t mind, I would appreciate if you could also tell me which study site you were affiliated with?
2- I presume that you were part of the D-02 double blind study?
3- Do you know if you were initially activated or were you part of the placebo group?
4- When you were activated, how did you actually know you were activated?
5- Did you experience any noticeable side effects?
6- You mentioned, at first that you began to feel some relief and then it sort of stopped having a positive effect. Did you attempt any adjunctive treatments? If so, would care to share with us?
7- Was there any specific reason that prompted you to decided to explant the device?
8- Did anyone make a recommendation to you to deactivate the device for a period of time and then try reactivating to see what happens?

Although we live in South Florida my wife’s doctor, Dr. Paul Goodnick was associated with the Univ. Of Miami School of Medicine and he was instrumental in helping to get her into the initial study at the Medical Univ. of South Carolina in Charleston. As part of the deal we had to agree to move to Charleston for three months during the acute phase of the study. We still continue to travel up to Charleston, on a quarterly basis, as part of our agreement. Until the FDA approves the device they remain responsible for her care.

Your situation and case history is of much interest to me. I don’t me to pry into anything that you do not wish to divulge. As I indicated, the gag order has been removed and I have all along made a sincere effort to share our experiences, research and knowledge with a number of VNS study recipients as well as others that suffer MDD. Although my spouse is depression free I still continue my research, readings and collaborations as a backup and safety net, just in case. Her case history has been filled with numerous refractory episodes to various treatments so in a sense I personally can never quite get too comfortable and complacent.

I look forward to your sharing you’re experiences and knowledge with us. Also, if you don’t mind, I would like to write to you personally. Is this acceptable to you and has you’re E-mail remained the same as listed on this message board?

Once again, thanks for taking the time to share with us and our best wishes for your wellness.

.


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poster:LifeTime thread:255190
URL: http://www.dr-bob.org/babble/20030907/msgs/258374.html