Posted by Snoozy on April 28, 2003, at 23:35:23
In reply to Anyone have a sleep-deprived EEG?, posted by utopizen on April 28, 2003, at 21:45:53
Yup - of course I wasn't able to sleep during it. If they're flexible in scheduling those, I think that might help, as you're aware of what time you have a regular crash. I've never had a sleep study though - I *KNOW* I would never be able to sleep during one of those.
Maybe they'll let you try the Provigil without doing a sleep study. I know how frustrated and disappointed you must be. I am trying to be more assertive and insistent on the care I'm getting. It's so hard to keep going to the doctor again and again, saying I'm tired, when all I want is to crawl in bed and pull the covers over my head and never get up. I'm seeing my pdoc tomorrow, and I hope I'm able to get somewhere.
How long have you had this terrible problem with fatigue? I've never been a high-energy type, but my severe sleepiness started last fall. There wasn't anything different in my life going on then, so I don't know what this tiredness is about.
One thing I have tried for my fatigue that I don't think I've seen mentioned here, is nicotine gum. One of my doctors said to give it a try (I've never been a smoker). I think it does help a bit. Although - I'm taking Wellbutrin, which they market as a stop-smoking drug, so who knows? Just thought I'd throw the idea out there.
Hang in there!
> I just had one this morning. Even thought I didn't sleep all night like a good patient, I only got "drowsy" they said during the scan. Of course, I wanted to sleep right after it was all over! If the doc says he wants another one, next time I'm scheduling it for 11am (I think they do that) because I tend to get a rush of energy in the AM after being sleep deprived until closer to noon time.
>
> Anyway, so the nurse said the purpose of it is to collect so much info, it wasn't such a big deal I didn't enter deep sleep, and it was up to the doctor to decide if I need a re-test.
>
> I took it because my neuro, who I saw for the first time, gave me an exam after I complained of getting a shoulder shrug-like tic every so often (1-3x/day) for a second. She diagnosed me with myoclonic jerk (or tic?)
> and said it's due to REM patterns being off, so hence ordered the EEG and referred me to the sleep disorder neuro next door.
>
> I told her I take Desoxyn (methamphetamine) but I'm still tired during the day, even with 9 1/2 hrs of sleep. I feel refereshed for an hour to an an hour and 1/2 after waking, but after that I'm tired unless I nap for 2 hours, which results in just another hour of feeling refreshed.
>
> She said Provigil or Xyrem could help, but I guess I need a sleep study first, who knows. Seems like I may also have to do another EEG possibly, and either one takes months to get booked for. So basically, I won't get helped for this fatigue issue for quite some time, because they don't want to give you the Xyrem until they feel they know how you are normally I guess.
poster:Snoozy
thread:223043
URL: http://www.dr-bob.org/babble/20030423/msgs/223060.html