Posted by Snoozy on April 15, 2003, at 21:05:26
In reply to Re: Sorry, new to CFS... what's a tilt table test? » Snoozy, posted by Ame Sans Vie on April 15, 2003, at 20:06:49
Nmh does have a hereditary tendency I believe. I think it's something that just isn't tested for. I never had any idea there was something wrong with me - I thought I was just so out of shape that rapid eye movement was an aerobic activity! You can do what my doctor called a poor man's tilt table test. Just stand and stay completely still for 20 or 30 minutes. (I know that sounds like a joke, but if you have nmh you'll probably start unconsciously fidgeting - the fidgeting gets the blood moving).
Orthostatic hypotension - ahh, it's like having your own amusement ride! It sounds like you have had problems with it before, unrelated to medication? I have a tendency toward it, and when I was on tricyclics, I would stand up and my field of vision would go completely dark. I don't know what causes it, but it could be somewhat related to nmh. If the orthostatic is caused by a miscommunication with the blood/nervous system maybe. I'll see if I can find anything on this.
I talked to my friend about her experience with guaifenesin. About a year ago, she was taking some for a cold. After a few days, she noticed her chronic pain due to inflammation was much better. When her pain gets bad again, she takes guaifenesin. It sounds like an interesting drug - I guess there are lots of wild claims on the internet for it. Her doctor said it does appear to be effective for various things other than colds. Just an anecdotal report.
May I ask if you've tried many things for the chronic fatigue? I know it sucks to be so young and feel so awful.
> Thanks for clarifying, and for the links. They were very informative-- in fact, I believe my mother has this problem, though I don't think she's ever been officially tested and/or diagnosed for it. She also has FMS/CFS and panic disorder. In fact pretty much my whole family is comprised of nut-jobs and psychopaths, but I digress. :-)
>
> As for myself, I don't experience hypotension triggered by the things described in those sites, but I have always had trouble with orthostatic hypotension (<insert sarcastic tone here> which made my Nardil trial extra fun). Do you happen to know if that could be related?
poster:Snoozy
thread:219607
URL: http://www.dr-bob.org/babble/20030411/msgs/219672.html