Posted by McSweeney on October 6, 2002, at 5:46:09
When my son was 7 mo. old he started scrunching his face up and "flinging" his arms, at first we thought it was cute and thought it was just a cute thing after he continued doing this for a few months I began to worry and took him to the doctor and he said it was just a habit to ignore it and it would go away. We tried to "ignore" it but by the time he was 14 months old he was doing this almost constantly and for up to 30 minutes at a time. I once again took him to the doctorand he again said it was nothing, I had thot it was tourettes syndrome, doc said couldn't be that because my son was too smart, he was talking plain 6 word sentences, recited abc's, counted to 20 ect... so again we tried to ignore it, the doc left town and we all had to get new doctors, I was at my new doctors and I had my son with me and he started doing his "no no" as we call it, and I asked her if she thot it was tourettes and she said no not tourettes but its definately a neurological disorder and suggested I take him to a ped.neurologist. so I did.. he said he thot maybe it was seizures and ran an eeg and video taped him. I tried for almost 3 weeks to get the results, but during this time my babysitter had my son in the doctors office with her and that doctor saw my son doing his "no no" and she demanded (not very nicely either) to know who my son's parents were and why I hadn't taken him to a neurologist sooner in his life because he was having seizures and anyone could tell that and I was a neglectful mother and should be turned in for child neglect. well after 3 weeks the neurologists receptionist told me that the results were in but the doctor would need to speak to me.. another 6 days go by with me trying to get hold of him and waiting for him to phone. On the sixth day I get a different receptionist who was very hateful on the phone and says to me, "the test were negative, he is fine" so I ask what am I suppose to do now? she said "nothing," so I ask to speak to the neurologist and she says " He isn't available if you have anymore concerns you can make an appointment" and hung up. I don't know where to go from here. What my son does is stares straight ahead, his face gets very contorted and he raises his arms in the air and rubs his fingers together very roughly and makes a "hohohohohoho" sound like a whisper..sometimes if he is standing he will also jump up and down during this time and if sitting sometimes his legs will move back and forth on the floor. sometimes it lasts for only a few seconds up to 30 minutes at a time and by then he is drentched in sweat and his face is beet red. Does anyone have any ideas of what it could be? or maybe another professional I should seek? Please help me, Im baffled at what to do.. oh he can imitated his "no no" but if I ask him to show someone what he does its the same movements basically but the intensity of it isn't there, which makes me believe that even though he knows what he does its something that he cannot control. thanks
poster:McSweeney
thread:122505
URL: http://www.dr-bob.org/babble/20021006/msgs/122505.html