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Re: I'm scared to death of Tegretol! Help!

Posted by 2sense on May 18, 2002, at 7:46:25

In reply to Re: I'm scared to death of Tegretol! Help!, posted by 2sense on April 19, 2002, at 19:15:09

I have been on the generic form of Tegretol (Carbapezine) as an anticonvulsant (from the neurologist point of view) and as a mood stabilzer from the pdoc's point of view. I was put on Klonopin/Clonazepam I think it started 08/2000, maybe a little earlier -- maybe 05 or 03 -- anyway it started for insomnia and at 0.5 mg. I got a hold of my Rx records and see that it slowly went up and now am at 4 mg per night. I am now on 600 mg. of the Tegretol stuff (worked up over 3 weeks to that). I have the mental fogginess and search for words, and pee constantly but I have gained weight. I have gained 20 lbs. since last August of 2001 (I was at 105 lbs. and needed to gain weight BUT) it wasn't until I tried to get off of the Klonopin (cold turkey) that I had a grand mal seizure and then had an abnormal EEG and MRI (early 04/02) and was sent to a neurologist who I am not going back to (but I don't have another appointment w/ a neurologist until mid-June). I seemed to have gained 10 lbs since going on the Tegretol and one of the side effects is ANOREXIA where one of the Klonopin side effects is GAINING WEIGHT -- both are in the frequent side effects. Of course I am kicking myself that I cold turkeyed the Klonopin -- but I wasn't thinking, just had a TAH, the family had the flu, and inbetween had all sorts of cardiology tests and have tachycardia and have a catheter/ablation scheduled for 05/29/2002.

My question -- is anyone else on this combo? I wouldn't be on either if I had used my head -- the neurologist put me on the Tegretol to protect my driver's license (even though the EMT's, the ER doc, my own internist and this neurologist -- even after the EEG and MRI) said the seizure was drug induced (plus I got VERY careless w/ the time interval between Wellbutrins (supposed to be minimum of 6-8 and since so much was going on I just took it when I remembered which usually was like 4 hours -- coupled with the lack of sleep -- and then I talked to the pdoc (the first one moved in CO who I had been with for like 6 years, then the other saw me twice and had a massive stroke, and then this guy I can't see until 09/06 so my communications are with him via phone -- which we had 3 calls and he knew my Klonopin script had run out -- but he was determined to put me on Depakote (and the only reason I stay with this outfit is that I see a therapist who is excellent and helping me with my anorexic issues).

ANYONE HAVE ANY ADVICE AT ALL? Anyone have experience with the klonopin (and weight gain -- I have been on the 4 mg. at night since 08 or 09/2001 and then the Tegretol only a month but that's when the appetite picked up). I am a "man" (not really :-) ) without a doctor (even my internist is on vacation.

Dove wrote a wonderful answer/informative posting about Tegretol but didn't mention the weight gain and didn't mention why she was put on it and what she eventually went on. Dove if you are out there and reading, please write -- thanks to EVERYBODY ... just my 2Sense (Sue)


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poster:2sense thread:90240
URL: http://www.dr-bob.org/babble/20020517/msgs/106875.html