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Re: I may need help.... » Adam

Posted by shelliR on August 7, 2001, at 19:50:51

In reply to Re: I may need help...., posted by Adam on August 7, 2001, at 18:02:55

Hi Adam

I'm sorry you are still going through this, and sorry that I have exactly zero expertise in the medical arena. Still, I am glad that your primary physician is taking this seriously and very annoyed that your pdoc is not. The rule of thumb is that every medical posibility should be absolutely explored, before making any judgment on whether it possibly could be a manifestation of psychological symptoms.

Have you tried to get in touch with any of the researchers who gave you the selegiline patch to see if anything like this has ever turned up? Are you in the Boston area? I spoke several times to Dr. Alexander Botkin re selegiline, and he didn't indicate any side effects at all, but he might be a good person to call at McLean Hospital.

> The doc says the only way I can be tested for the presence of the aforementioned tumor (or, for that matter, any real problem with selegiline) is to taper off of it completely and wait a good month to conduct the other tests. On selegiline, the levels of catecholamines in my system are too abnormal to get meaningful results. So it looks like I will soon be stopping selegiline, at least for a while, to xamine this problem more thoroughly. I am in a lengthy process of omission, at this point, with no certainty about the outcome.
>

Are you absolutely sure that your doctor is right about this: that you must go off the selegiline to be tested for a tumor. I might get a second opinion about this if you have any question about it. (I'm not at all saying that he's not correct; I would just want to confirm that he is correct because it is such a hard thing to have to deal with).

Anyway, hopefully some of our "medical experts" might come up with an idea. In the meantime, please keep us updated.

Shelli


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