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Re: IMPORTANT WARNING!! » Pattisun

Posted by MB on July 12, 2001, at 16:04:36

In reply to IMPORTANT WARNING!!, posted by Pattisun on July 12, 2001, at 14:52:06

> 1. Why do you take thyroid supplements? Did you have your thyroid removed (all or partially, or killed via RAI)?

A psych started me on l-thryoxine in mid-early nineties because of depression.

> 2. Is your treating doc a family gen'l pract or an internist or endocrynologist?

I think he's a general practitioner. I seldom see patients in the waiting room younger than 60 yrs. I think he specializes in cheap preventative medicine for the elderly. Plus the HMO situation means I can't talk with him for more than 10 minutes (otherwize i have to schedule 2 appointments back to back!).

> Here's my own personal hell (story):
> I have Graves disease and had RAI (no thryoid gland). Things fine since '95. In Dec '99 TSH showed my thyroid low (13-15 maybe). The family doc upped (Levoxyl) to .137. After 6 weeks I complained of "hyper" symptoms. She took a test, TSH at 3 and she said I was fine. I continued to complain that I felt lousy (hyper-racing heart, emotional outbursts, etc.). They took another test, this time TSH 1. Doc said your fine.
>
> Okay, I gave up, figured it was just my imagination. Then, my eyes starting bothering me, referred to thyroid eye doctors--my left eye was bulging (thyroid eye disease). GREAT!! So, now I was having hyper symptoms and my eye made me look like a wierd lizard or something.
>
> Family docts telling me I was crazy (sent my to a psychiatrist); they told me I had a possible brain tumor; (NOT-had to endure CAT scan, MRI and snotty Neurologists).
>
> Well, finally retested and whalla I was over the mark and 0.32 --hyper!! I TOLD THEM THAT ALL ALONG!
>
> So, they over-react. Have me stop all supplement. Then restart at .100. Long story, I ended up so severely low thyroid I was out on disability. I think them giving me too much supplement set off my eye disease.
>
> Bottom line, thyroid level is VERY, VERY IMPORTANT. Don't leave your care to family docts. Go to an internist or an endocrynologist. If you feel hyper, complain LOUDLY. Change docts if you need to. It's more than just numbers, it's also how you feel. And, for me, they should have just had me take .125 then .137--alternating doses and I would have been fine.
>
> Good luck!

My TSH level was .8 uIU/mL. I think it is in the very low area of the normal range, but, like you said, it's the way I feel that scares me. My muscles just feel "toxic" and my heart races any time I stand up. I'm always thirsty...just feel toxic, that's the only way I can describe it: headachy, stomach upset, fatigue, muscle weirdness and the feeling like my heart is beating in my throat (except my blood pressure and pulse rate are normal...), aching in my eyes and throat. I was so fatigued that I thought I might add some l-thyroxine, so for two days I took a little extra, and my symptoms became unbearable. Then I quit for two days, and I felt really good...relieved, like my body was finally able to rest after months of this poisonous-feeling speediness.


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