Posted by anna78 on January 17, 2001, at 7:26:05
A professor friend of mine photocopied an article and passed it along to me, because he knew I'm into the Internet and support groups.. imagine my surprise when I saw our own Dr. Bob had written an article for some professional journal about us!!!!! he totally quoted people at length in the article, even someone's poem they had posted, in memory of somebody using the dead person's real name. the other names he used were aliases, but he would quote entire messages.I thought this board was for support, not to be written up as guinea pigs for some study!!!!!!!!! is that what we are here?? I feel so used and had to register a new name even though I've been posting here for months.. did he ask us for our permission to use our words??? i checked out his 'privacy policy' and it said nothing about using our posts for his own research. did his university's IRB approve his eavesdropping on this supposed "support" forum and use our own words in a journal publication!?!?!?
i'm so upset right now. I can't believe this is happening..
poster:anna78
thread:51847
URL: http://www.dr-bob.org/babble/20010111/msgs/51847.html