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Re: How to tell someone about diagnosis

Posted by alexandra_k on February 3, 2004, at 2:03:45

In reply to Re: How to tell someone about diagnosis » gardenergirl, posted by DaisyM on February 2, 2004, at 23:55:18

Hello. I have a diagnosis of BPD. I HATE IT. Initially my p-doc and T refused to diagnose me with it though there was pressure on them from other quarters. I didn't know why they were being so resistant.... I didn't understand.

When DBT became an option (for those with a diagnosis) they gave me the diagnosis. I soon discovered that when clinicians heard that label they would all but roll their eyes and they assumed some pretty nasty things of me. I couldn't understand what was going on so I read everything I could get my hands on, IT HURT LIKE HELL. And it was so not true, I thought.... I was so immensly hurt and thought 'I am not like that, I am not like that'.. And then I would panic and become suicidal because I started to think 'but I must be and everyone can see it but me I must be in denial' - but look at the stuff - if you had to take that on board as what you were like as a person could you handle it?...

I would say why? What's it for? Why put your client through that? What does it buy her? Why mention the name? Why not say that these are the specific symptoms that you would like to help her with (and tell her) and this is the way that you would like to approach those symptoms (and just work with her).

What will the diagnosis buy her - does she have to have it before you can justify giving her DBT?

 

Re: How to tell someone about diagnosis

Posted by justyourlaugh on February 3, 2004, at 5:29:53

In reply to Re: How to tell someone about diagnosis, posted by alexandra_k on February 3, 2004, at 2:03:45

i think the best thing to do is wait..
she will ask for her pdocs dx "opion" when she is ready to know and she will ask for yours soon enough..
j

 

Re: How to tell someone about diagnosis » gardenergirl

Posted by Elle2021 on February 3, 2004, at 6:31:44

In reply to How to tell someone about diagnosis, posted by gardenergirl on February 2, 2004, at 21:01:44

At first I was convinced that if there was a diagnosis that my pdoc had come up with, I wanted him to tell me. I do not feel that way anymore. During my last session with Burt, I begged him to tell me what he thought. He said Schizotypal. Not only do I not agree with this diagnosis (neither does my therapist) but it really sent me into shock. I guess because to me that word "Schizotypal" sounds like Schizophrenic. I'm really afraid of having Schizophrenia. Anyway, my new therapist said I have PTSD, which fits better and wasn't as upsetting to me. Now, she mentioned something about Borderline traits. I think if she came right out and said your Borderline, then I wouldn't be shocked, but still depressed at the fact that she thought I were Borderline. Labeling has so many negative side effects, and if possible, I don't think you should tell this client of yours that is what you think she has. Just tell her what my pdoc originally told me, which was something to the effect of, "I think you have some negative coping skills and I think DBT might be helpful to you." BPD has such an ugly stigma.
Elle

 

Summing up

Posted by gardenergirl on February 3, 2004, at 7:24:33

In reply to Re: How to tell someone about diagnosis » gardenergirl, posted by Elle2021 on February 3, 2004, at 6:31:44

Okay, I think I get the message about how painful hearing this diagnosis is. And I actually tend to agree that giving a dx is not always necessary for treatment, especially at my current placement. We do not have to worry about insurance needs, thank God.

If I am understanding you all correctly, I need to be quite gentle and empathic regardless of whether I give the "label" or not. And focus on the symptoms and use DBT (at least as much of it as I can do in my setting) to target the symptoms. If I do end up having to diagnose her, then utilize Linehan's explanations and perhaps wait until she asks or until more sessions have gone by.

I hope I am hearing (reading) y'all correctly. I'm sure that I would react just as strongly as others if I were given the dx. It DOES have such an awful stigma, which infuriates me. I am currently working with three who meet the DSM criteria who are as different as night and day (and night again, I guess ;) I think of BPD as a continuum from mild to severe. Not everyone with the traits or even the dx is the "typical" BPD. Arrggg! I feel myself getting on a soapbox which seems to already have enough advocates, so I'll defer to those who know best right now.

But thank you all for your input. It really helps in understanding what this must be like to hear and to experience. I'm so lucky to have such a great resource in y'all!


(((everyone))) Is that a group hug?

Thanks again,

gg

 

what is DBT? (nm)

Posted by dragonfly25 on February 3, 2004, at 7:28:35

In reply to Summing up, posted by gardenergirl on February 3, 2004, at 7:24:33

 

Re: what is DBT?

Posted by gardenergirl on February 3, 2004, at 7:36:55

In reply to what is DBT? (nm), posted by dragonfly25 on February 3, 2004, at 7:28:35

DBT is Marsha Linehan's Dialectical Behavior Therapy. It combines Cognitive Behavioral Therapy, which can be really invalidating, with validation and eastern philosophies like acceptance and mindfulness.

gg

 

Re: How to tell someone about diagnosis

Posted by alexandra_k on February 3, 2004, at 7:38:12

In reply to How to tell someone about diagnosis, posted by gardenergirl on February 2, 2004, at 21:01:44

Hi, sorry, more thoughts... Clinicians are starting to think that the current diagnostic categories or syndromes are a bit of a dead end with respect to research anyway. The DSM does not carve mental illness at the joints like biological taxonomy or the periodic table of elements. If the DSM V goes the way of the symptom I for one will sleep better at nights. If they consider symptoms to be on a continuim from mild to severe I may well have to revise my current opinion on diagnosis as a way of opressing people who provoke counter-transference.

My point (I am getting there I am getting there) is that most of the 'labels' that the diagnostic criteria provide do little more than promote stigma and encourage clinicians to assume rather than assess symptoms. Diagnoses can also be unhelpful with respect to predicted treatment outcomes and liklihood of improvement (what is the likely consequence of one believing they will not get better till they are in their 40's I wonder???) I found that in my case clinicians assumed symptoms I did not exhibit and I became paranoid and thought I was in denial for a long time until I met a clinician who told me that in their honest opinion - though I met the criterion - I did not seem to exhibit that particular symptom.

What are supposed to be the benefits of diagnosis?
1 - It leads to appropriate treatment.
2 - It can help people understand what is going on for them and help them access useful information and feel like they are not the only ones struggling out there with this.

Why do this on the syndrome as opposed to symptom level I find myself wondering.... Why not assess her symptoms and address those symptoms with the best treatment for them that you can offer her. If that is DBT then so be it. What does the grand title 'borderline personality disorder' add to the equation other than prejudice and judgement of dinosaur clinicians with counter-transference issues?????

I don't see how the diagnosis would help one to feel less alone either. People with mental illness (even the dreaded borderline personality disorder) are not categorically different from the rest of humanity. Who does not exhibit borderline symptoms every once and a while, are we supposed to be such freaks of nature that we can only be understood by other such freaks? It is a difference in degree that is all (though I fully acknowledge that a big enough difference in degree CAN lead to a difference in kind I don't think BPD has evolved for long enough in isolation from adaptive functioning so as to be TOTALLY divorced from it).

Sorry this is a big long rambly rave.

Just a mad philosopher :-) .

 

Re: what is DBT?

Posted by alexandra_k on February 3, 2004, at 7:40:08

In reply to Re: what is DBT?, posted by gardenergirl on February 3, 2004, at 7:36:55

why does everyone just beat me to a post???? AAARG

 

thanks (nm) » gardenergirl

Posted by dragonfly25 on February 3, 2004, at 7:50:41

In reply to Re: what is DBT?, posted by gardenergirl on February 3, 2004, at 7:36:55

 

Re: Summing up » gardenergirl

Posted by Dinah on February 3, 2004, at 8:10:46

In reply to Summing up, posted by gardenergirl on February 3, 2004, at 7:24:33

It might be worth reading Linehan's introduction before speaking to her. She didn't actually invent DBT for borderlines. She was working with a group of people who exhibited suicidal and parasuicidal behavior. So if this person engages in any of that, it's 100% honest to say that this form of therapy was created to address that problem.

 

Re: Summing up - gardener girl

Posted by Penny on February 3, 2004, at 9:44:41

In reply to Re: Summing up » gardenergirl, posted by Dinah on February 3, 2004, at 8:10:46

> It might be worth reading Linehan's introduction before speaking to her. She didn't actually invent DBT for borderlines. She was working with a group of people who exhibited suicidal and parasuicidal behavior. So if this person engages in any of that, it's 100% honest to say that this form of therapy was created to address that problem.

To add to what Dinah said, I'm not diagnosed with BPD, but my T thought DBT might be useful for me - I don't engage in parasuicidal behavior per se, but I do tend to get 'over excited' or enraged or whatever, esp. when I'm feeling bad, and my mood can plummet from 'okay' to 'I want to die' in a fraction of a second. My T thought DBT might be a useful tool for me in handling these 'episodes.'

P

 

Re: what is DBT? » gardenergirl

Posted by Penny on February 3, 2004, at 11:12:51

In reply to Re: what is DBT?, posted by gardenergirl on February 3, 2004, at 7:36:55

> DBT is Marsha Linehan's Dialectical Behavior Therapy. It combines Cognitive Behavioral Therapy, which can be really invalidating, with validation and eastern philosophies like acceptance and mindfulness.
>
> gg


Ya' know - I have never thought of CBT as 'invalidating' - but you're right, it absolutely can be (not that it can't be effective as well, but...). I had just never thought about it that way...

Perhaps that's my beef with 'Dr. Phil' - my grandmother quotes him to me all the time and it drives me batty! My T doesn't like him, and I tell my grandmother all the time - "if only it were as easy as he'd like you to believe."

Hmmm....

P

 

Re: what is DBT? » Penny

Posted by Karen_kay on February 3, 2004, at 11:21:48

In reply to Re: what is DBT? » gardenergirl, posted by Penny on February 3, 2004, at 11:12:51

Oh no!!! I love Dr. Phil! But, I'm rather afraid of what he'd tell me if I were to be on his show!

 

Re: what is DBT? » Karen_kay

Posted by Penny on February 3, 2004, at 12:05:00

In reply to Re: what is DBT? » Penny, posted by Karen_kay on February 3, 2004, at 11:21:48

Don't get me wrong - Dr. Phil makes many good points. BUT - he makes everything out to be easier than it really is. I mean, I've heard him say that he's not going to be able to fix someone's life in 15 minutes - but then he acts like once he says something to someone they are supposed to just be able to go "OH! THAT'S what I was doing wrong!!! WOW - thanks, Dr. Phil, for enlightening me!!!" The reality is, IMHO, that he doesn't say a thing that isn't pure common sense. Not that there's anything wrong with that - and perhaps it's the way he says it more than what he says that makes him so popular. But I'm having a real issue with him right now with the whole weight loss thing. I get O magazine (Oprah, for those who didn't know) and there was an excerpt from Dr. Phil's Ultimate Weight Solution book, and he was talking about the 'minimal effective response' to gain 'emotional closure' and my whole thing was that he didn't go into how you wouldn't necessarily know what was your 'minimal effective response' and how you can't base that on how others will react - the example he used had to do with someone confronting someone for past wrongdoing - well, that's great, but if that person hasn't changed, and you don't get the response you expect/want/need, then it's not going to be 'effective' is it? In which case, the minimal effective response doesn't work very well, or at least takes a heck of a lot longer than he would have folks believe!

I dunno - he just frustrates me. I mean, I wish I could just say "Okay, this isn't working for me" and change x, y and z. But it's not that easy. It might be simple, but it's not that easy. And I think he tends to equate simple and easy.

Of course, I'm sure I've offended all the Dr. Phil fans out there now! I could go on and on, but I won't. I just don't think he could do much for me, personally, in however much time he would spend with me on a show...

I'm sure he'd have some interesting things to say to all of us, though. He'd probably tell us to quit wallowing in our own self-pity. I heard a quote by him once where he said he stopped doing long-term therapy with clients because he was tired of hearing them whine and complain day after day. It goes back to what GG was saying about invalidating for me - that's invalidating. As though I don't have a right to whine and complain. Not that continual whining and complaining will get you anywhere, but it seems that if he was effective as a therapist he would have been able to guide his patients away from whining and complaining day after day. Just my thoughts...

sorry this is so long!!!

P

 

Re: what is DBT?

Posted by gardenergirl on February 3, 2004, at 13:08:42

In reply to Re: what is DBT? » Karen_kay, posted by Penny on February 3, 2004, at 12:05:00

I'm right there with you on this one, Penny. I can't stand Dr. Phil! I don't think he has an empathic bone in his body.

gg

 

Dr. phil debate continues » Penny

Posted by Karen_kay on February 3, 2004, at 14:50:57

In reply to Re: what is DBT? » Karen_kay, posted by Penny on February 3, 2004, at 12:05:00

Now, don't get me wrong. I'm not arguing with you at all. I still like you very much :) I used to despise Dr. Phil with his "no nonesense" attitude. But, I think what he does is point things out to people (who BTW, aren't normally in therapy)
I think that with confronting someone with what they've done to you in the past gives a person a sense of empowerment, regardless of what the outcome is. Whether that person has chagned or not. You choose how you allow that person to affect you and by finally confronting them and saying, "Hey! You've done me wrong and I'm telling you about it finally!" it won't necessarily change that person, but it will give you a sense of closure in the situation. It allows you to finally say, "Hey, I'm not going to let that person affect me in any way that I don't want him/her to any longer. I've had my say in the matter and let him/her know how I feel finally." It gives you a chance to say that you won't let that person hurt you you any longer... I know, I know... Easier said than done. Sorry, not trying to spatter off advice or anything.... But, I don't really need to do that, as I don't feel that anyone's wronged me. I know my dad did, but at this point I don't have any feelings on the matter. And it wouldn't really do me any good because he's dead...
Maybe I'm just spattering crap at this point, because I honestly don't hold a grudge. But, imagine how nice it would feel to get it off your chest??? If it's there anyway. Maybe I shouldn't be talking, as I'm no expert. Or worse yet, maybe I have a problem because I don't have any feelings for anything.... Oh, bother, I'm starting to worry about that now.... Cripes!!!!

 

Re: what is DBT? » Penny

Posted by Dinah on February 3, 2004, at 16:33:37

In reply to Re: what is DBT? » Karen_kay, posted by Penny on February 3, 2004, at 12:05:00

I'm with you. I feel a similar way about Dr. Laura. I really like Dr. Laura and her message of personal responsibility and kids first. And a lot of times she'll say something that gives me something to think about re. how I look at things. But she's got that "just do it" attitude that I find depressing. I remember once she was talking about a book of holocaust survivors and how they managed to pick themselves up and make something of their lives. And she was basically saying that everyone could do the same, whatever their past trauma. And I drafted this whole letter to her about how everyone wasn't the same, that biologically we have different predispositions, and she needed to take that into account.

I dunno. That approach appeals to my logic, but it tends to end up just adding a layer of guilt to my other troubles.

 

Re: diagnosis - I never go along with the crowd... » gardenergirl

Posted by fallsfall on February 3, 2004, at 18:26:41

In reply to How to tell someone about diagnosis, posted by gardenergirl on February 2, 2004, at 21:01:44

My therapist went down the list of BPD symptoms and told me which ones she thought I had. She presented the whole thing in an informative way - and I appreciated that because I am someone who wants to know what is going on. (I had just gotten out of the hospital, and had been seeing her for about 6 months at the time)

I went to a bookstore to find some information on BPD, and found Linehan's books. Those books were very comforting to me. I'm not a typical Borderline (I'm not impulsive, and I don't show anger - though I'm beginning to learn that I have it even if I don't show it).I do split (all the time), and I have major "self" issues - and those seem to me to be the basic building blocks of BPD. I could really relate to her descriptions of invalidation. This made me feel much more comfortable. I had felt like I had a problem that was different from everybody else's (I wasn't even "normal" among the mentally ill). Reading her books made me feel that finally somebody understood me. That gave me hope that someone could help me.

I attended 6 months of DBT Skill training (and that wouldn't have happened if I hadn't found Linehan's books and brought them to my therapist). It was helpful (though I was probably more proficient than many group members are to start - at least in some areas).

For me the diagnosis gave me an anchor. Something to research and understand. Hope that people were working on understanding what treatments work and don't work for us.

My current therapist doesn't think I'm Borderline. We haven't talked about what he thinks my diagnosis is. He's talking about how it might not be in my best interest to do so much "research". If he's right, then even though the diagnosis made me feel better, it might not have been truly in my best interest to know it. This issue is still up for debate.

When I was looking for a new therapist, I did a bunch of interviews. I would start the interview telling them that I was BPD, but not typical and explain what I did and didn't have that fit with BPD. One reason I did this was that I wanted to know right away if they were scared of a BPD patient. If they were, I knew we would never work well together. So, I used my BPD diagnosis as a useful tool for myself.

 

Re: diagnosis - I never go along with the crowd... » fallsfall

Posted by gardenergirl on February 3, 2004, at 19:49:49

In reply to Re: diagnosis - I never go along with the crowd... » gardenergirl, posted by fallsfall on February 3, 2004, at 18:26:41

Wow, I have a lot of respect for you to take something potentially hurtful and difficult and turn it into a tool or maybe even a strength. Are you like that with other things? I mean someone who researches things in order to understand more about whatever the topic is?

I'm glad this approach has been really useful for you. I admit it's hard for me to get a handle on the three clients I have who could be diagnosed BPD. I don't know how they will react. Well, I think I know how one would react, quite angry, hurt, and upset. But the other two...not sure yet.

I think the best approach then is to stick to symptoms and use Linehan's descriptions. She seems to be the queen (or goddess?) of validating.

I'm glad to hear skills training was helpful as well. At my site we are using a modified approach to this. I have the two junior members of my team (2nd year grad students) doing individual skills training with two of my clients. They are just getting started, and I am eager to see how it goes.


Take care,

gg

 

CBT and 'invalidating' » Penny, gg

Posted by badhaircut on February 3, 2004, at 20:39:40

In reply to Re: what is DBT? » gardenergirl, posted by Penny on February 3, 2004, at 11:12:51

> Cognitive Behavioral Therapy, which can be really invalidating
> gg

> I have never thought of CBT as 'invalidating' - but you're right, it absolutely can be
> P

gardenergirl & Penny--

What do you mean by 'invalidating'? Like, "Your feelings don't matter!" or something like that?

Also, I've only seen Dr. Phil a couple times on TV, but from what I saw, I wouldn't call him a Cognitive-Behavior Therapist. (Or a very good one, period, but he obviously does something for a lot of people.)

-bhc

 

Re: diagnosis - I never go along with the crowd... » gardenergirl

Posted by fallsfall on February 3, 2004, at 20:59:22

In reply to Re: diagnosis - I never go along with the crowd... » fallsfall, posted by gardenergirl on February 3, 2004, at 19:49:49

Thanks, Gardenergirl. I started a new thread "Research" below.

 

Re: CBT and 'invalidating' » badhaircut

Posted by gardenergirl on February 3, 2004, at 22:03:19

In reply to CBT and 'invalidating' » Penny, gg, posted by badhaircut on February 3, 2004, at 20:39:40

I think by invalidating I am thinking mainly of cognitive restructuring and also targeting "problem behaviors." Cognitive restructuring asks you to challenge and change core beliefs without necessarily validating that you have those beliefs for a reason. They serve a function that at one point was adaptive, but now is not.

Targeting problem behaviors is invalidating for the same reason. We all behave for reasons. If you look intensely at a behavior and all the events, situations, thoughts, feelings, etc, that go along with it, then it usually makes perfect sense why someone behaved the way they did. To acknowlege that is validating. THEN you can work on alternative behaviors or changing thoughts about something.

IMHO,

gg

 

Thanks. You given me something to think about... (nm) » gardenergirl

Posted by badhaircut on February 4, 2004, at 11:53:16

In reply to Re: CBT and 'invalidating' » badhaircut, posted by gardenergirl on February 3, 2004, at 22:03:19

 

Re: CBT and 'invalidating' » gardenergirl

Posted by dawnfawn on December 9, 2004, at 16:37:04

In reply to Re: CBT and 'invalidating' » badhaircut, posted by gardenergirl on February 3, 2004, at 22:03:19

I just finished another 11 weeks with a CBT once again dissapointed. In both her and the process. I asked her very pointedly how she expected me to make changes in my erroneous thinking, which I knew were erroneous. I have health anxiety or hypochondria. She said I just have to do it!!! For this I paid 170.00 a week.

 

Re: CBT and 'invalidating' » dawnfawn

Posted by gardenergirl on December 9, 2004, at 20:33:03

In reply to Re: CBT and 'invalidating' » gardenergirl, posted by dawnfawn on December 9, 2004, at 16:37:04

Sounds like the Nike way of therapy. :)

I'm sorry you had a disappointing experience. You might consider trying to find a T who is more emotion-focused. Not necessarily psychodynamic, but someone who can help you put the cognitive stuff together with the feelings you have stuck inside regarding the erroneous beliefs. In my experience as a client and as a T, that is an effective way to making progress.

Good luck,
gg


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