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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 13 of 13. This is the beginning of the thread.
Posted by manic 666 on November 4, 2009, at 13:07:26
why is everybody leaveing over the twitter face book sh*t.If you would have looked on medical site,s questions obout meds or mental illness. there are loads of mine an your threads on them, any body can read the babbble site threads an copy them to theres , So what is new, apart from new sites like twitter an face book. You have a fictious name, no photo, so what is the problem.I already told you that most sites, post there photo on there personal page ,this is the most secure you will get on any site , the others are wide open to scammers. Start a new site ,how long do you think you could keep it secure. You wont no one can not even the goverment.Stop worrying about it, we have enough to worry about,people need help from sites like this. New members are jioning all the time, whats the point in saying your leaving ,then reading the babble threads every day, cos thats what you do , am i right or am i right.
Posted by blahblahblah on November 5, 2009, at 6:47:35
In reply to i dont get the panic whats changed, posted by manic 666 on November 4, 2009, at 13:07:26
I don't care bout it being on the net. It is about not being respected by Dr.Bob who appeared to be not willing to change this after so many people were bothered by it. That is all.
Posted by Dinah on November 5, 2009, at 9:16:35
In reply to i dont get the panic whats changed, posted by manic 666 on November 4, 2009, at 13:07:26
Well, for me the change was the reading of our posts vs. the use of our posts, and who had the right to do what. When we registered at Babble, we gave Dr. Bob right to *use* our posts. We knew they were googleable. We knew that he used them in his writings, though I think he changes the user names when he does that. It was not true at the time that he facilitated the *use* of our posts by third parties.
Moreover, when the twitter thing came up before, many people were opposed and opted out. So even more than it would be otherwise, it is a question of respect and trust. At some level many people need to feel they can trust the administrator of this site to respect them. I did not opt out of the original twitter by Dr. Bob, because to me it was still Dr. Bob using our posts, and I had already given him permission to do that and sufficiently trusted how he would use them.
Mind you, I know people always *could* use our posts. They could cut and paste, or print out, or tweet or link url's. And there are many cases where I don't see that as a problem. I would never mind someone saving a post for their own use, or printing it out to bring to their therapist. That would be fine because it was a private use. I might mind if they made my post into flyers and handed it out at street corners, or added their own commentary and sent it willy nilly to every person they knew. But at least Dr. Bob wouldn't have facilitated that. It made a difference to me.
This is me, and other people have other concerns. And to others none of it is a concern.
Posted by Dinah on November 5, 2009, at 9:21:07
In reply to i dont get the panic whats changed, posted by manic 666 on November 4, 2009, at 13:07:26
As to why we don't just leave...
Well, Babble has been a part of my life since 2001. At first, I couldn't believe that Dr. Bob had done it, but I had every hope that he would listen to posters and compromise. Then I gave up every hope of compromise, because Dr. Bob was responding in the broken record style that indicates a boundary being set and held, not in the back and forth style that might indicate a conversation and possible compromise. Then he did compromise. And what I'm still hoping for is some recognition of exactly what it is he did, and some assurance that he won't do it again, so that I can again feel comfortable posting.
So I keep reading, and replying, from hope. I have a nasty habit of hoping that things can be different from how they are now.
Posted by Dinah on November 5, 2009, at 9:30:23
In reply to Re: i dont get the panic whats changed » manic 666, posted by Dinah on November 5, 2009, at 9:21:07
I suppose that's not going to happen.
So I'm torn and confused.
Posted by Phillipa on November 5, 2009, at 10:11:21
In reply to Re: i dont get the panic whats changed » Dinah, posted by Dinah on November 5, 2009, at 9:30:23
I guess it was the old friends that have kept me here. But where are they now? Phillipa
Posted by Toph on November 5, 2009, at 15:59:27
In reply to Re: i dont get the panic whats changed » manic 666, posted by Dinah on November 5, 2009, at 9:21:07
Hi Dinah, I'm not back but the recent change did spark an interest in me. Remember the first Babblefest in Chicago? Talk about privacy issues! Well, I don't remember much discussion about photographs, but sure enough someone brought a camera. It was Bob. He mainly took pictures on the architecture cruise, though he also took photos of us. He later posted them on this site. But he also took great pains to not show any faces. He had us all face away and he photographed our backs. Dinah, if he was so careful to protect our anonymity then, why do you think he has been so reckless in the implimentation of this new change?
Posted by Dinah on November 5, 2009, at 16:31:31
In reply to Re: i dont get the panic whats changed, posted by Toph on November 5, 2009, at 15:59:27
I don't think he has any ill intent. I think he doesn't see this the way many posters do. I think he didn't understand the long opt out list. I think he sees this as not being that unlike google. I think he sees this only as a way to bring in new posters and keep babble active, and perhaps to do what he originally did with Babble and the internet. To stretch into new areas to reach people.
I think he doesn't understand the objections posters has, or that maybe he doesn't think they're valid. I think that possibly he feels frustrated at being impeded in doing what he thinks is best for Babble.
I don't think he thinks he's being reckless.
Of course, what I think and what Dr. Bob is thinking are two different things, so he's in a better position to respond than I am. Nor do I have any more insight into his thoughts than anyone else on Babble. He doesn't share them with us very much, so we're left to infer them based on his actions. And I suppose we all infer based on our own set of expectations. So nothing I say has any real validity into anything but my own thought processes.
I don't think Dr. Bob is a *bad* person. But I just don't trust that, if he doesn't understand, he won't do it again. And because I don't trust that, I'm feeling afraid to post, or to add more material to the vast amount I've already put on this site, thus making me even more vulnerable. Every time I start to post I freeze and delete, on anything but Admin topics.
What do you think? (Assuming of course it's civil. Otherwise it might be best said off board.)
Nice to see you again, Toph. I've missed seeing your name round these parts.
Posted by manic 666 on November 6, 2009, at 5:12:21
In reply to i dont get the panic whats changed, posted by manic 666 on November 4, 2009, at 13:07:26
people will never exept change , whether good or bad, thats how we are built , the forum babble they no is changeing better or for worse. they feel threatened by any change it could be anything or nothing ,but change is the issue,if not the same 10 people will dominate the furum an wreck it, with there refusle to help people with simpler med issuse they have read before, time an again,the poster has just been given his first med an recieve,s a blank thread from the experts
Posted by Dinah on November 6, 2009, at 8:21:28
In reply to Re: i dont get the panic whats changed, posted by manic 666 on November 6, 2009, at 5:12:21
That seems to be how Dr. Bob sees it too. And as long as he does, I don't see how this can be fixed. As long as he sees it that way, I don't see how a genuine dialog can ensue.
I'm not denying I hate change. If Dr. Bob changed the background from manila to blue or pink, I'd likely complain because I don't like change. If he changed it to black with white print, I'd complain because black with white print gives me migraines.
Even if people hate change, not all complaints about change stem from that.
Posted by Toph on November 6, 2009, at 11:25:23
In reply to Re: i dont get the panic whats changed » Toph, posted by Dinah on November 5, 2009, at 16:31:31
Maybe reckless is the wrong word, Dinah, I meant to say inconsiderate, I think. When he carefully kept our faces out of his pictures that was considerate. When Bob made some of the other changes to Babble he involved us in many of those decisions. That was considerate. Not to have a discussion with us regarding the implimentation of a Facebook (which I happen to be on) and Tweeter link was inconsiderate, in my opinion. I am very careful IRL who I come out to about my illness. Since I am not sure what the ramifications would be on Facebook I removed the buttons. I don't think Bob had mal intent. I have enjoyed meeting him on a couple of occasions. But I know he is bright enough to have anticipated this furor if only from observing it in past incidents here. We are sensitive to these things. He knows that. He was inconsiderate. You seem to believe that it was unintentional. At the very least it is disappointing.
Posted by Dinah on November 6, 2009, at 11:39:47
In reply to Re: i dont get the panic whats changed » Dinah, posted by Toph on November 6, 2009, at 11:25:23
I believe that he did not have ill intent. I'm not sure that it was entirely unintentional, since it's rather hard for me to believe that the result was difficult to foresee. I guess it's *possible* but I can't quite figure out how. Perhaps my imagination is lacking.
I totally agree with everything you said.
Posted by Phillipa on November 6, 2009, at 18:24:31
In reply to Re: i dont get the panic whats changed » Toph, posted by Dinah on November 6, 2009, at 11:39:47
Back to manics post that is also how I see it hence separate med boards. Phillipa
This is the end of the thread.
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