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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 21 of 21. This is the beginning of the thread.
Posted by Phil on April 25, 2013, at 19:09:32
So, I lean to the left, I'm doing it right now. Pisa Syndrome is leaning to one side courtesy of antipsychotics.
An even bigger problem that's developed is my lower right back, doing almost anything, cramps like hell. I just washed a few dishes and had to stop several time to manipulate the pain away.
Never had back problems so does this sound like one side of the body trying to compensate?
I can't take this anymore. More on Pisa below.
SymptomsThe predominant symptom of Pisa syndrome is dystonia. Dystonia is a neurological movement disorder characterized by sustained muscle contraction leading to abnormal posture, twisting, and repetitive movement. In Pisa Syndrome specifically there is commonly a tonic flexion of the trunk of the body to one side, leading to a slight lean (reminiscent of the leaning tower of pisa, hence the name "Pisa syndrome"). This is usually associated with a backward axial, rotation of the spine and indifferent to markedly abnormal posture. Patients diagnosed with Pisa Syndrome usually experience either acute dystonia or tardive dystonia, also known as tardive dyskinesia. Differential diagnosis between the two may be hard to accomplish without a complete patient history, since both types of dystonia may occur simultaneously in a patient. These symptoms generally disappear after discontinuation of the antipsychotic drug. The time of onset of symptoms may vary depending on drug being administered and the neurological characteristics of the patient in question.
Posted by Phil on April 25, 2013, at 19:38:34
In reply to Tardive dystonia, BACK PAIN, input?????, posted by Phil on April 25, 2013, at 19:09:32
Picture, not me, of Pisa Syndrome.
[URL=http://s297.photobucket.com/user/pearljo/media/pisa_zpsff3c2f66.jpg.html][IMG]http://i297.photobucket.com/albums/mm216/pearljo/pisa_zpsff3c2f66.jpg[/IMG][/URL]
Posted by Phillipa on April 25, 2013, at 23:38:31
In reply to Re: Tardive dystonia, BACK PAIN, input?????, posted by Phil on April 25, 2013, at 19:38:34
Phil you seriously need to see the doc. Phillipa
Posted by Jeroen on April 26, 2013, at 5:37:46
In reply to Re: Tardive dystonia, BACK PAIN, input????? » Phil, posted by Phillipa on April 25, 2013, at 23:38:31
sorry to hear this phil
Posted by Phil on April 26, 2013, at 22:32:04
In reply to Re: Tardive dystonia, BACK PAIN, input?????, posted by Jeroen on April 26, 2013, at 5:37:46
Hard to get input here. I would think something as off the wall as this side effect would at least stir some curiosity. Guess not.
Posted by Phillipa on April 27, 2013, at 20:24:39
In reply to Re: Tardive dystonia, BACK PAIN, input?????, posted by Phil on April 26, 2013, at 22:32:04
Phil I googled it and saw what you have and don't have an answer? Phillipa
Posted by Phil on April 28, 2013, at 9:09:57
In reply to Re: Tardive dystonia, BACK PAIN, input????? » Phil, posted by Phillipa on April 27, 2013, at 20:24:39
The answer is getting off Seroquel and it probably go away. If not they use anticholinergics.
I really would have hoped to hear anyones in like, well like anything.
People are too busy fighting with Lou.
This is the kind of thing that we dread with AP's but it's a non-issue here.
Maybe if someone a bit more popular gets it people will come out of the woodwork to ask questions, etc.
Hopefully I won't be here to read it.
Posted by jono_in_adelaide on April 28, 2013, at 18:01:28
In reply to Tardive dystonia, BACK PAIN, input?????, posted by Phil on April 25, 2013, at 19:09:32
Try disipal 100mg twice a day
Posted by Lou Pilder on April 28, 2013, at 18:21:51
In reply to Re: Tardive dystonia, BACK PAIN, input?????, posted by Phil on April 28, 2013, at 9:09:57
> The answer is getting off Seroquel and it probably go away. If not they use anticholinergics.
>
> I really would have hoped to hear anyones in like, well like anything.
> People are too busy fighting with Lou.
> This is the kind of thing that we dread with AP's but it's a non-issue here.
> Maybe if someone a bit more popular gets it people will come out of the woodwork to ask questions, etc.
> Hopefully I won't be here to read it.Phil,
You wrote the above.
There are two ways that I know for tD to release its grip in its victim. One by human achievement and the other by divine accomplishment. I know of no one that has ever had TD go away by human achievement.
I am prevented from posting here what could have your TD go away due to the prohibitions posted to me here by Mr Hsiung. You see, the dystonia/dyskinesia is the beginning of sorrows. But that is good, because it is through great tribulation that one enters the new realm that I have been attempting to bring people that are suffering into so that they could be healed. And I say to you, that when one comes to the Waters of Life, those Waters can bring new life to a person like yourself. I have been to the mountaintop and have seen The City of Light, and the healing rays of The Sun of Righteousness. You could throw down your bed and walk when you go to the light, away from the darkness.
Lou
Posted by SLS on April 28, 2013, at 19:24:05
In reply to Re: Tardive dystonia, BACK PAIN, input?????, posted by Phil on April 28, 2013, at 9:09:57
Psychiatrically speaking, what would happen if you were to temporarily discontinue Seroquel? It might make sense to see if the dystonia resolves if you stop taking it. If it does resolve, you might then try a series of alternate antipsychotic medications. Aside from Clozaril, Abilify probably has the lowest incidence of dystonic side effects, although akathisia may emerge. I have been taking 10 mg/day or higher of Abilify beginning 10 years ago. I actually started at 20 mg/day beginning on day 1. Aside from some restlessness during week 1, I have not experienced any EPS. The weight-gain sucks, though.
- Scott
Posted by Phil on April 30, 2013, at 9:19:29
In reply to Lou's response- » Phil, posted by Lou Pilder on April 28, 2013, at 18:21:51
I'll take all the help I can get Lou, thanks. It's very likely to go away when I get off the med or some people need short term anticholinergic.
It's not as bad as the picture and very few people notice it but the pain is like waking up at night with leg cramps.
Posted by Phil on April 30, 2013, at 9:54:21
In reply to Re: Tardive dystonia, BACK PAIN, input????? » Phil, posted by SLS on April 28, 2013, at 19:24:05
Maybe get a bit depressed. I don't remember being that bad off when Seroquel was added. Maybe my doc is on commission.
If I have to use an AP, I will. But I have to think, will a bit of depression kill me first or will Diabetes, stroke, or heart attack kill me first? Not counting social issues and getting winded going to the bathroom.
If not for the SE's I really like Seroquel.
Thanks Scott I see my doctor in two days so we'll see. I'll let you know.
Posted by Phil on April 30, 2013, at 9:56:05
In reply to Re: Tardive dystonia, BACK PAIN, input?????, posted by jono_in_adelaide on April 28, 2013, at 18:01:28
Thanks jono, will run it by my doc in a couple of days.
Posted by Willful on April 30, 2013, at 15:25:25
In reply to Re: Tardive dystonia, BACK PAIN, input????? » SLS, posted by Phil on April 30, 2013, at 9:54:21
My pdoc says that actually all cases of TD resolve, although some cases take a long time. Obviously any extended period is a disturbing thing--to be avoided-- if possible-- But it's not a hopeless thing, once it occurs-- if that helps. I would imagine going off the drug that's causing it would be the first step, to see how you do without it.
I hope that's not too dislocating emotionally, but from what my pdoc said, it seemed to be a pretty important first step.
Willful
Posted by Phil on April 30, 2013, at 17:14:27
In reply to Re: Tardive dystonia, BACK PAIN, input?????, posted by Willful on April 30, 2013, at 15:25:25
I read that most cases just resolve after stopping the med.
This is a damned if you do damned if you don't kind of thing.
Posted by Phil on May 2, 2013, at 13:07:00
In reply to Re: Tardive dystonia, BACK PAIN, input????? » Willful, posted by Phil on April 30, 2013, at 17:14:27
He wants to try Cogentin for the EPS. He must have known how desperately I've missed Amitriptyline's anticholinergic se's. "Are you still in the bathroom?"
He was impressed with my weight loss on Metformin and may up the dose next time depending on if I plateau.
I give my doctor an 8 out of 10 on todays appt.
Posted by Phillipa on May 2, 2013, at 20:23:32
In reply to Re: Update, saw doc today, posted by Phil on May 2, 2013, at 13:07:00
Phil that is great. So it was or is caused by the antipyschotic. Cogentin hopefully will eliminate this side effect
Posted by Phil on May 2, 2013, at 20:54:23
In reply to Re: Update, saw doc today » Phil, posted by Phillipa on May 2, 2013, at 20:23:32
Yeah, it's Pisa Syndrome and this med is to treat it. Anticholinergic's are no picnic but at least I have some history there. I'll take just about anything to stop these spasms.
Posted by Phillipa on May 2, 2013, at 21:56:34
In reply to Re: Update, saw doc today, posted by Phil on May 2, 2013, at 20:54:23
Phil I don't blame you how painful it must be. Phillipa
Posted by Willful on May 3, 2013, at 16:48:24
In reply to Re: Update, saw doc today, posted by Phil on May 2, 2013, at 20:54:23
I'm glad he came up with something. Too bad it has lousy side effects-- but at least the spasms will be gone.
Willful
Posted by Phil on May 4, 2013, at 18:18:22
In reply to Re: Update, saw doc today, posted by Willful on May 3, 2013, at 16:48:24
> I'm glad he came up with something. Too bad it has lousy side effects-- but at least the spasms will be gone.
>
> WillfulYeah thanks. I was just sitting here thinking, damn I hope this works. I'm pretty sure that I can handle the side effects. We shall see.
This is the end of the thread.
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