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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 11 of 11. This is the beginning of the thread.
Posted by Phillipa on December 19, 2009, at 12:52:50
I remember when we couldn't give advise on what meds to take or doses without saying call you doc first. Is that now not needed? Just curious. Phillipa
Posted by Maxime on December 19, 2009, at 18:23:59
In reply to I Remember when we always said ask your doc, posted by Phillipa on December 19, 2009, at 12:52:50
We could always give advice without saying it. For me it's a given. I can make suggestions but I hope that the person will check with their doctor first.
Posted by Zyprexa on December 19, 2009, at 18:39:51
In reply to Re: I Remember when we always said ask your doc » Phillipa, posted by Maxime on December 19, 2009, at 18:23:59
Maybe we just understand the meds and the illness better now. I know I do. At the beggining of all this I didn't want to take anything they gave me and had no idea what they were doing. I guess after a while you learn?
Posted by willey on December 19, 2009, at 19:15:58
In reply to I Remember when we always said ask your doc, posted by Phillipa on December 19, 2009, at 12:52:50
I am so glad you asked that question....ok when that saying really took presidence was when the most in depth technical info lay in the hands of docs via the PDR.
Whether some docs like it or not its a different age,we are now via computers accessed to
A published info,including pharmcology,studies,and all kind of info highly validated as it comes from nbi.
b.We now have access to baords where instead of just taking the med,we now can hear how severe the side effects really are,how many people find it useful,etc
C.Sites that recomend actual data sheet wise prescbription policy,i.e start doasage .This is usualy the same protocol docs would use.
The final ending to this is one i believe is a good one,we no longer have to wait 2-4 weeks to see someone 10 min and just suffer that whole time,instead now we can put our own blood and guts into learning more about the disease on our own.
I dont see how using tons of data from different angles and getting invovled in our own treatment a negative thing,but rather a plus that comes along with technology.Docs and some do,have to understand this is a new generation,and now that we have resources,us the patients want to no longer feel incomptant but instead want in our treatment.
Some docs invite that,and some dont,and if you dont believe a patient will put more work as in reading and researching then a busy doc then you need to walk out of that docs office,chances our he doesent have a pc in the room,still uses old style pads to refer to his notes,opposed to doc who has excel and keeps extreme detail to all changes made in sessions and accesses them quickly.
If a doc questioned me or got angry that i was reading stuff off as they say with a sarcastic tone"the internet" i would say sorry i turned to a source where i get the same exact info u do,but sense im a moron i see why you dont want me messing with my health.
Sorry but im abdament about this,people who are scared to death to do anything without a docs advice just feed their ego,there is tons of info on the net,not silly info,rather lots of published info valideted by high end docs whos credientials you can look up speaking on stuff that applies to you,if you choose to ignore this abudant resource,and put your suffering in the hands of a single person i believe your doing yourself a misfortune,i know we are not lazy,but rather scared to take it in our hands,but i promise no doc will put the blood and sweat and time into researching for help then your own self,i totaly recomend taking part in your treatment,a major one,confering your info with docs,and working togther,any doc aganist you taking part i feel should be walked out on
Posted by Phillipa on December 19, 2009, at 20:46:55
In reply to Re: I Remember when we always said ask your doc, posted by willey on December 19, 2009, at 19:15:58
Willyee that's such an excellent post. I totally agree. I do have to say the docs I see for physical conditions can access on the computer they have on wheels and nurses chart on what another doc in the same system has labs for results etc. See here two major networks with every kind of doc there is. Yes mine use computers. But some don't like you to use them they feel it causes fear in the patient. I'm in the process of researching these osteo meds and what I'm reading isn't simple side effects that go away but really serious ones. Actually this doc told me to research first before getting a fairly new med that's IV. I have found horrible things about it. As my Son said today he feels the drug companies just want sales. Now certainly not saying people don't need meds for all kinds of things. I know I've researched my own meds and conditions and have a fairly good knowledge of them. It's more info I want. Didn't you once say an advanced search was parenthesis around the search or was that my neighbor? Seriously an excellent post. Thanks Phillipa
Posted by willey on December 19, 2009, at 21:35:19
In reply to Re: I Remember when we always said ask your doc » willey, posted by Phillipa on December 19, 2009, at 20:46:55
I totally agree, however for the patients that are afraid of computer use by their doc, it becomes a doc's job as the preofessional to help calm their anziety about it and help them understand that it is more beneficial to them.
As far as your questions on searching, I have to admit I'm not sure exactly what you were referring to, however, if you were simply asking about some of the tips I gave you on using the search engine I'll post a few here.
1) on Google make sure you dont forget there is a 'Scholar' option that only show med information that has been studied and published
2) don't treat the engine like a pc. Instead, just speak to it as if you were asking a person a question. What will happen is the engine will pick up on keywords and you're likely to get back results that mainly include archived discussions on various retired and active boards that contain great information.
3) Google is soon to release (i think named Google Wave) a new feature in their browser. This will be in real time which basically means the reuslts returned will not be from 2008 or 2007, but will instead be up to date, even including your present day.
search engines are the heart to finding any answers which may exist. I recommend everyone learn as much as they can about how to use and minupulate them to get the most from their searches. Just as a side note, a good single word I have found is to include the work 'unconventional' in your med searches as it is the best way to find little known, but useful options and off;label treatments.
Posted by inanimate peanut on December 19, 2009, at 23:14:55
In reply to Re: I Remember when we always said ask your doc, posted by willey on December 19, 2009, at 21:35:19
I think you have great points willey. I've been thinking about them alot in fact because I think this board has given me some great insights that have taken me from a dead end (60mg parnate) to have a couple more options (upping the parnate and adding something like nortriptyline). Here's the prob: my doc's little book is going to tell her the upper limit of parnate is lower than what some on here are telling me they're on/successful at and that nortriptyline and and parnate aren't compatible (which I know they are both since some people here are on them and Scott was nice enough to send me a great article). Even armed with Scott's article, though, I'm up for a battle against the little book. She already thinks I take too much control over my treatment. I'm just not sure how I'm going to win this one and how I'm supposed to call around for a new doc asking "do you prescribe parnate with nortriptyline? and "what's the uppper limit you'll prescribe of parnate?" Besides, I really like my doc and she's worked with me great thus far. But asking a doc to go against the norm standards are in a way asking them to risk their career if you have a bad reaction or something happens that could land them in a lawsuit. I'm just not sure how to handle this. Any suggestions of how to deal with this sticky situations would be greatly appreciated.
Posted by willey on December 19, 2009, at 23:50:42
In reply to so what to do when doc disagrees))willey, posted by inanimate peanut on December 19, 2009, at 23:14:55
Well thanks for reading my posts,and yess isnt that something,you have too much control over the treatment lol,think of the cocky mindset of a doc to say that.Someone once told me,i forget but they were in the medical field,that its important you remeber the doc works for YOU,not the other way around.
To answer your problem,heres some options,yess excactly you can call every office,explain briefly your situation to the front desk,and you can have the doc asked if for instance work with maois.
When i lost my parnate and needed a new doc,i did this and it took me a while but remeber you are paying for this,so what i did was call the offices first,and have the doc notifed on phone and asked if he will work with a patient on wanting maois.
Second and i wanna say this without stepping on babble guidelines but feel its important,you will not get help for most unconventional combos even with papers in hand,sometimes you have to then really take control ,by this i mean,
For instance nortrip is not scheldued,
not particuarly dangerous,what this means for you is there is no concern of you have it,and in short there are legal sources,for that med by the truck load in which u can obtain your med.Im not going to break guidelines and post sources,or even say how to get them,but i will say its totaly legal,not every country is like the u.s.
Scheldued meds,such as stimulants,sedatives,narcotics etc are not meds you should have without directly from a doc,but again simple safe meds you are.
Also if ud like some articles i have on the combo email me at brklyn234@yahoo.com
Posted by 49er on December 24, 2009, at 8:34:33
In reply to I Remember when we always said ask your doc, posted by Phillipa on December 19, 2009, at 12:52:50
Philipa,
In theory, that is good advise but then there is reality.
If I had listened to my psychiatrist instead of following the advise of the Paxil Progress board in tapering off of psych meds, the taper would have been too fast and I probably would gone right back on psych meds.
By following the advice of Paxil Progress to go slow, I am down to a very lose dose of my last med. It hasn't been easy but it could have been alot worse.
Back to your point - I think it is implied that when people give advise, that you need to check on your own as to whether it is feasible or not.49er
Posted by Phillipa on December 24, 2009, at 20:25:57
In reply to Re: I Remember when we always said ask your doc » Phillipa, posted by 49er on December 24, 2009, at 8:34:33
Yes exactly what I meant. Gather info but to be safe as all factors or concurrent medical conditions may not be revealed with a post. Phillipa
Posted by conundrum on December 24, 2009, at 20:40:11
In reply to Re: I Remember when we always said ask your doc » Phillipa, posted by 49er on December 24, 2009, at 8:34:33
This is the end of the thread.
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