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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 19 of 19. This is the beginning of the thread.
Posted by okydoky on June 8, 2008, at 18:48:29
I keep reading about them.
Does anyone have a suggestion as to which ones are effective or more proven? I tried 7-keto and I cannot take it. I have some Selegiline, should I try it?
There seem to be so many medications and/or supplements. How does a depressive with huge symptom of not being able to make decisions decide:(Has anyone here tried and had success with any of them?
oky
Posted by bleauberry on June 8, 2008, at 19:34:22
In reply to Neuroprotectives, posted by okydoky on June 8, 2008, at 18:48:29
Many supplements and some medications are said to be neuroprotective. Too much for me to keep up with. Not a lot of proof with a some of it either.
But here are some basics...
Vitamin C
Vitamin E
Small amount of fish oil (pure, no heavy metals or pcps).
Or instead of fish oil, flax oil.
Small amount of selenium, daily or every other day.
If you have any amalgam fillings, get them removed ASAP.
Buy a good water filter for your kitchen sink and use that pure water for all your cooking and drinking. And of course...drink lots of water.
A diet high in raw veggies and fruits
Posted by okydoky on June 8, 2008, at 20:26:54
In reply to Re: Neuroprotectives, posted by bleauberry on June 8, 2008, at 19:34:22
Well except for the fillings I am doing it all. I did stop the Selenium. Might still have some.
I say that but this last couple of months my diet has been not so good. Generally for several years though I have taken fish oil daily, flax oil, flax seed, filtered my water and eat mostly vegetables. Mostly vegetarian. Can't eat most fruits but I like them a lot.
Not so keen on the medications ha?
oky
Posted by llurpsienoodle on June 8, 2008, at 20:33:59
In reply to Re: Neuroprotectives, posted by okydoky on June 8, 2008, at 20:26:54
my pdoc recommended that I take 500% RDA of vitamin E when I was having extrapyramidal (motor) symptoms (side effects) due to seroquel (antipsychotic)
lately I've been afflicted with an attack of the parenthsis(ses)
He said vitamin E was neuroprotective.
-Ll
Posted by okydoky on June 8, 2008, at 21:21:03
In reply to Re: Neuroprotectives » okydoky, posted by llurpsienoodle on June 8, 2008, at 20:33:59
This is so funny. I give vit E to my dogs and started taking it yesterday myself with my vit C fish oil and a few others. I had read something about the neuroprotection but also something about it with the fish oil that I cannot remember, I think it helps it get absorbed maybe? . I remember now I took it for something to do with mental health and later put it in my dogs food for the same reason. I also remember I used to buy vit E with Selenium in it. (I have a crazy dog)My old Naturopath had told me to take it but I do not recall why. I am in constant attack mode of I cannot remember with or without parentheses. I cannot rememberI cannot afford getting my fillings out. I read a lot about it a long time ago. Of course I cannot remember most of it. I do recall it was controversial. My brother was insistent the mercury them causes damage and one of his study partners, the Naturopath I went to said she found no evidence of it. Something about the alternative fillings might be bad for you too. I do remember my brother saying not to have them replaced with anything. And then talking about how teeth can regrow. I would like to know what planet he is from. I want to live there too. Perhaps I can regrow my brain and my aching shoulderwell you get the picture
I am so full of anger I cannot even write a simple post without it spewing out.
Do you find these supplements and diet help you? Can you discern a difference in mood or affect or cognition?
I hope the selenium helps,
oky
Posted by Phillipa on June 8, 2008, at 21:31:09
In reply to Re: Neuroprotectives » llurpsienoodle, posted by okydoky on June 8, 2008, at 21:21:03
Omega three's are good with calcium magnesium, ester C, vita D for bones, MVI. Love Phillipa ps gave up the E can cause thinning blood at high doses I think. Was told to take a low dose of it if I did so stopped.
Posted by okydoky on June 8, 2008, at 22:24:39
In reply to Re: Neuroprotectives » okydoky, posted by Phillipa on June 8, 2008, at 21:31:09
I take magnesium and calcium with vit D every day. Ran out of the Calcium a few days ago. I ran out of fish oil and glucosamine too. Have not been able to get out of the house for days so they have not been replaced.
My father bought the fish oil and glucosamine but I don't have them because god forbid he would consider coming over here to give them to me. He only asked, or rather my mother asked if I needed anything at "Cosco" because on Mothers day I told her off so she is trying to be thoughtful and not so narcissistic. Most of the things she offers to do she knows she is not able to and never did any of them when she could. I told her how disingenuous (cannot remember the exact word I used) I felt she was. Since I was a child I could not stand for her to hug me, their was something very disingenuous about it. I used to cry if she came in to kiss me good night because of the kiss but mostly her lingering perfume. It made me emotionally ill.
I think for Fathers day the nicest thing I could do is to not go over there. I tried really hard for Mothers Day, she wanted me to go over there so much, but she was extremely herself and I was very agitated.
I know this thread has nothing to do with me and my family.
Im shutting down my computer tonight. Best for everyone concerned.
Wishing all a good nights sleep,
oky
Posted by Molybdenum on June 9, 2008, at 3:16:17
In reply to Re: Neuroprotectives, posted by okydoky on June 8, 2008, at 22:24:39
Hi okydoky,
In your case, I think a very good neuroprotective would be distance. Stay away from whoever causes you to feel bad.
If you're concerned about them coming around, go underground for a year or so. I mean, change your address & don't tell them. Did wonders for me years ago. Felt quite relaxed.
Good Luck,
Mr. M.
Posted by blueboy on June 9, 2008, at 8:02:27
In reply to Neuroprotectives, posted by okydoky on June 8, 2008, at 18:48:29
I took 10mg selegiline per day for a while. I stopped, I don't like taking drugs unless the benefit is well-establish, especially a drug that powerful. My pdoc was not impressed with the research on neuroprotective benefits (unless I was planning to abuse Esctasy, LOL).
I'm against taking very high doses of vitamins without reliable medical research. My sister went to her grave believing that massive doses of Vitamin C would cure the common cold.
Consider vitamin E, for instance. First off, it isn't a single chemical but a group of eight forms of an organic compound, which may or may not be different in their effect. (Usually supplements are alpha-tocopherol.) The research is very contradictory about whether or not it is toxic at higher doses. You'll get prophets on both sides of the issue, but personally, I take the MDR and that's it.
Fish oil is another matter completely, especially for men (who are less able than women to manufacture long-chain Omega-3, especially DHA, from vegetable sources). There is simply no doubt that DHA and EPA are great for your health, although the only benefit I give definite credence to is benefit to blood chemistry and thus heart and circulation health.
Make sure that the fish oil contains high amounts of DHA and EPA. Also, make sure that you get it from a good lab, which tests thoroughly for contaminants. I get deep-water salmon oil from Carlson, which is readily available online, and I know that there are several other really good ones.
I can't tell about mercury from fillings. Most reputable research pooh-poohs it, but who knows for sure? I'm not convinced enough to have my fillings replaced, but I think twice before eating tuna and swordfish.
Posted by okydoky on June 9, 2008, at 10:29:04
In reply to Re: Neuroprotectives, posted by blueboy on June 9, 2008, at 8:02:27
Thanks all.
I cannot stay away from my family completely because I am financially dependent on them. But I could just stop calling. Like today I spoke with my mother for two minutes and I was shaking. She has some dementia so when I do not call I get these calls of hysteria about what is wrong. Like she would do anything! But I am in control of it. I can put a stop to it. I am the one perpetuating it. It is my sick behavior. I keep trying to get them to nurture me in some way and it will never happen. I dont know why I cant seem to stop. Perhaps you guys can send me reminders? I guess Dr Bob will send this to another board.
I get it about the supplements. I took what Tori Hudson from the Townsend Newsletter suggested for I.C. for several years now:I took: Ester C
bioflavanoids
slippery elm
corn silk
Quercetin
L-Arginine
beta-carotenes
I just stopped them recently. First time I took them I went into remission after a few months. The only thing that ever did that before or since was medication. Took them until they ran out and did not replace any this past month. I noticed a change in my pain so I added the vit C back because I thought once before when I had stopped it there was a change but the symptoms have a mind of their own so it could just be coincidence. Also noticed when I stop the glucosamine that my arthritis flares up. I noticed it now and several other times so that one I go with. I agree the fish oil has been studied sufficiently for me to feel informed about its efficacy.I stopped most of the supplements because I have to ask my family to pay for them. My father told me I use him as my personal welfare check. Guess he has a very high opinion of his daughter. Bought the fish oil and glucosamine for me because it cost less but he wont bring it over so it is at his house for the last couple of weeks. I can barely get up and dressed so I wont be picking it up any time soon. I dont give a rats a** anymore but my dog is so sick and it those two supplements help him. Guess Ill call and beg. Hell do it then.
I think today my anger is worse. Im going to take a perphenazine, it will help some.What was this thread about? :) :) :) :)
Please dont be angry with me.I am going to get the name and phone number of a new doc today. Spoke with someone a few minutes ago and he didnt have it with him and will call later. He will write any script I ask him for. So I will start the Subutex hopefully and start trying Amineptine and perhaps Parnate again. Perhaps there is a gimmer of hope.
oky
Posted by linkadge on June 9, 2008, at 17:01:47
In reply to Re: Neuroprotectives, posted by okydoky on June 9, 2008, at 10:29:04
There are literaly hundreds of available compounds that could classify as neuroprotectants.
Its important to start first by reducing any known cause of neurotoxicity. Ie food and drink it its most basic and purest form. Limit the use of drugs or medications which may offend.
A good diet with exercise will probably go along way.
I wouldn't become obsessed with any one nutrient or neuroprotectant. Somtimes such substances act paradoxically when given in high doses over extended periods of time.
Linkadge
Posted by Molybdenum on June 9, 2008, at 18:05:37
In reply to Re: Neuroprotectives, posted by okydoky on June 9, 2008, at 10:29:04
> Thanks all.
>
> I cannot stay away from my family completely because I am financially dependent on them. But I could just stop calling. Like today I spoke with my mother for two minutes and I was shaking. She has some dementia so when I do not call I get these calls of hysteria about what is wrong. Like she would do anything! But I am in control of it. I can put a stop to it. I am the one perpetuating it. It is my sick behavior. I keep trying to get them to nurture me in some way and it will never happen. I dont know why I cant seem to stop.
>
> Perhaps there is a gimmer of hope.
> oky
>
>Families - and I mean parents, siblings & partners (not children) can be so supportive or so destructive and worst of all, a combination.
I heard a comedian saying something recently you might like to hear. He said to the audience, rhetorically "Why is it that parents are so good at pushing my buttons??"
"Because THE INSTALLED THEM", he answered. ;)
And we all believe there's a glimmer of hope. That's why we're still here.
Good Luck okydoky :)
Mr. M.
Posted by blueboy on June 9, 2008, at 18:07:30
In reply to Re: Neuroprotectives, posted by okydoky on June 9, 2008, at 10:29:04
You sound like you are in a world of hurt. My sympathy. I hope you can find some medication or course of action that will help. And please don't say "don't get mad at me", I don't think anyone is going to get mad about you venting your pain.
If you have arthritis, I think glucosamine is worth a try, and also chondroidin, although there is conflicting data on both and they are a bit pricey.
Something that a lot of people don't know about, and may help with arthritis, are the carotenoids beta-cryptoxanthin and zeaxanthin. I wouldn't get supplements, personally, and I would suspect they are toxic at some level, but I eat a lot of foods (like red bell peppers) with high levels of both. If nothing else, they will definitely help lower your risk of macular degeneration.
Posted by okydoky on June 9, 2008, at 22:01:21
In reply to Re: Neuroprotectives, posted by blueboy on June 9, 2008, at 18:07:30
Both neuoprotectives I tried agitated me and one has now made my bladder flare. I was very hopefull about them as my memory....
I do eat very well. I will hopefully get out tommorow and re stock on red peppers(which I eat almost daily) just happen to be a favorite. Anyway all the greens I like and fruit...Maybe some chochlate or ice cream:)
Emailed my Father and asked him to come buy with the glucosamine/condroiten and spinach and fish oil I asked him to buy.
THanks for all the support here. It made me cry a little in a good way I am so not used to it.
Maybe it will be enough to put a fire under my but to go out and buy some food besides ordering pizza delivery and eating quinua and oatmeal every day.Hope you guys are feeling ok and I will be better and be supportive for others.
oky
Posted by Molybdenum on June 9, 2008, at 22:27:43
In reply to Re: Neuroprotectives » okydoky, posted by Molybdenum on June 9, 2008, at 18:05:37
Sorry - made a typo in the punch-line. Unforgivable..!!! Here's take # 2:
> Families - and I mean parents, siblings & partners (not children) can be so supportive or so destructive and worst of all, a combination.
>
> I heard a comedian saying something recently you might like to hear. He said to the audience, rhetorically "Why is it that parents are so good at pushing my buttons??"
>
> "Because _THEY_ INSTALLED THEM", he answered. ;)
>
> And we all believe there's a glimmer of hope. That's why we're still here.
>
> Good Luck okydoky :)
>
> Mr. M.
>
>
Posted by SLS on June 10, 2008, at 4:28:36
In reply to Re: Neuroprotectives, posted by linkadge on June 9, 2008, at 17:01:47
What about N-Acetyl Cysteine (NAC)?
- Scott
Posted by okydoky on June 10, 2008, at 8:55:36
In reply to Re: Neuroprotectives, posted by SLS on June 10, 2008, at 4:28:36
Was not aware tht was a neuroprotective and I forgot that was one of th supplinents i used to take for I.C. so I would not have a problem takeing that.
If I ever get out of my home to buy it or maybe I'll just order it from the internet.
Thanks I'll look it up,
oky
Posted by iforgotmypassword on June 12, 2008, at 0:13:32
In reply to Re: Neuroprotectives, posted by SLS on June 10, 2008, at 4:28:36
http://www.docguide.com/news/content.nsf/news/852571020057CCF685257376006AB59A
Posted by SLS on June 12, 2008, at 5:10:13
In reply to NAC in schizophrenia » SLS, posted by iforgotmypassword on June 12, 2008, at 0:13:32
Thanks!
> http://www.docguide.com/news/content.nsf/news/852571020057CCF685257376006AB59A
>
> http://www.ncbi.nlm.nih.gov/pubmed/18436195?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum
- Scott
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