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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 8 of 8. This is the beginning of the thread.
Posted by Jeroen on May 4, 2008, at 16:07:15
the pills myth, you take one and bad things happen
i mean bad experiences, then your friends say or let you know not to do it anymore.
Then there are the people who force to take these things and make your life a hell and friendship too. even gonethat's what i experienced, and i miss someone and its also their fault
Posted by Jeroen on May 4, 2008, at 16:21:35
In reply to the pills myth, you take one and bad things happen, posted by Jeroen on May 4, 2008, at 16:07:15
and yes i am still on anti psychotic medication, i have no more choice now
Posted by Phillipa on May 4, 2008, at 16:32:25
In reply to Re: the pills myth, you take one and bad things happen, posted by Jeroen on May 4, 2008, at 16:21:35
Jeroen are you at home or the hospital? Love Phillipa
Posted by Jeroen on May 4, 2008, at 16:35:07
In reply to Re: the pills myth, you take one and bad things happen » Jeroen, posted by Phillipa on May 4, 2008, at 16:32:25
home, but i have to go back this week wednesday, pray for me please, im not well and scared of the doctors in general of putting haldol so i walk 1 month like a zombie and TD and my dystonia worse
Posted by Jeroen on May 4, 2008, at 16:35:36
In reply to Re: the pills myth, you take one and bad things happen, posted by Jeroen on May 4, 2008, at 16:35:07
i'm going to ask for clozapine, i hope i get it
Posted by Phillipa on May 4, 2008, at 19:14:12
In reply to Re: the pills myth, you take one and bad things happen, posted by Jeroen on May 4, 2008, at 16:35:36
Jeroen yes you have wanted that med for a long time. I will pray for you. Love Phillipa
Posted by Jeroen on May 4, 2008, at 19:50:31
In reply to Re: the pills myth, you take one and bad things happen » Jeroen, posted by Phillipa on May 4, 2008, at 19:14:12
cool, thanks!
Posted by yxibow on May 6, 2008, at 1:35:48
In reply to Re: the pills myth, you take one and bad things happen, posted by Jeroen on May 4, 2008, at 19:50:31
> cool, thanks!
Its hard to be someone in your situation and I don't know if I can get this idea of medicine across but causation is not always causality. In other words, it is not necessarily one drug that has caused something, it could have been another one you took before, or it could be part of the disorder itself, hard to seem.
Still I also am beset with two neurological complexes, one I know almost positively is due to one medication, Seroquel -- I have a tic with and without mostly vocalization. But the other thing is that it is brought on almost exlusively by stress and psychological issues. It is non tardive and in a class of its own but just the same I don't like it either. But what can I do?
The other was a mistake on the communication between my doctors which is regular and just as one was encouraging me on a job, the other allowed me to stop an antidepressant that I thought wasn't working, start up another one, and switch to Zyprexa. When we got to 5mg stiffness occurred -- on retrospect we should have stopped, but we went to 12.5, with anticholinergics, and covering it up with amantadine. In the end we stopped. Unfortunately the stiffness and twitching did not. It twitched for a while and kicked, my leg. Eventually from the sole of my foot to my waistline and my biceps have what I believe is Tardive Dystonia. TDy unfortunately is something the patient can only report to a neurologist.
I do urge you to see a neurologist or a movement disorders clinic if you can -- they can shed a lot of light on what is going on and what can or cannot be done. At least it gives you a better idea. I'm not going to say I know how difficult it is because you have a completely different condition and it would be unfair to compare. I am just listening out for you.Clozaril is a lifetime undertaking -- I wanted to do so, but with so many medications at the moment it isn't a possibility. It can be a gold standard for schizophreniform disorders. But blood monitoring is a must in I hope all developed countries that do dispense it. You will be on weekly blood monitoring for low WBC (1-2% discontinuation mandatory) for some weeks. After six months it is every so often for life.
It can be very helpful for TD -- no real proven cases of TD have been reliably noted with Clozaril alone -- that doesnt include those that have taken other medications already. It has a higher chance of pseudoparkinsonism (shakiness) I believe, I'm not sure, but that is not a permanent state. As for fighting TDy (Tardive Dystonia), that is more of an unknown -- it can definately cover it up as Seroquel (I still take it) has for me for some aspects, but all neuroleptics have a potential for some dystonic reaction (which also may not be permanent.
I wish you luck--tidings
Jay
This is the end of the thread.
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Dr. Bob is Robert Hsiung, MD,
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