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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 13 of 13. This is the beginning of the thread.
Posted by Jeroen on January 18, 2007, at 10:53:38
when is seroquel kicking in - 19 days now
400 mg at bedtime, 100 mg once cured my psychosis schizophrenia, i dont understand these f*cking sh*t meds
Posted by Phillipa on January 18, 2007, at 12:15:10
In reply to when is seroquel kicking in - 19 days now, posted by Jeroen on January 18, 2007, at 10:53:38
Hi Jeroen is this for the eye blinking? Have you asked another pdoc about when the seroquel should kick in? Love Phillipa
Posted by Jeroen on January 18, 2007, at 12:47:52
In reply to Re: when is seroquel kicking in - 19 days now » Jeroen, posted by Phillipa on January 18, 2007, at 12:15:10
for schizophrenia/psychosis, + TD BY GEODON
seroquel is the only sh*t that cured me, i have childhoot onset schizophrenia/psychosis
my 21 birtday was a nice TD by Geodon!!!! $300 prescription drug for brain damage!
Posted by Jeroen on January 18, 2007, at 12:50:30
In reply to for schizophrenia/psychosis, + TD BY GEODON, posted by Jeroen on January 18, 2007, at 12:47:52
btw, eds mom is sick, drop him an email..
Posted by Phillipa on January 18, 2007, at 14:46:03
In reply to to philippa, posted by Jeroen on January 18, 2007, at 12:50:30
I know and I did how's she doing do you know ? Love Phillipa
Posted by med_empowered on January 19, 2007, at 12:31:46
In reply to Re: to philippa » Jeroen, posted by Phillipa on January 18, 2007, at 14:46:03
sorry bout the TD. Are you going to try antioxidants? That might help. Some people with "schizophrenia" end up doing OK on drugs that aren't antipsychotics, like lithium, depakote, valium, propranolol, etc. Ask your doc about it. You might also want to look into orthomolecular molecular medicine; usually they combine vitamins+drugs at first, and then either drop the drugs or keep the dosages so low that side effects aren't really an issue. Try this website:
http://www.alternativementalhealth.com/
They discuss alternative mental health, and there's a list of practitioners. Some are orthomolecular psychiatrists, some are physicians who have taken an interest in mental health, and some are non-doctor alternative practitioners.
Good luck!
Posted by yxibow on January 19, 2007, at 13:32:03
In reply to for schizophrenia/psychosis, + TD BY GEODON, posted by Jeroen on January 18, 2007, at 12:47:52
> for schizophrenia/psychosis, + TD BY GEODON
>
>
> seroquel is the only sh*t that cured me, i have childhoot onset schizophrenia/psychosis
>
>
> my 21 birtday was a nice TD by Geodon!!!! $300 prescription drug for brain damage!
I'm sorry to hear this -- Seroquel does not kick in immediately but some effects should be noticed in the first few weeks. Full effects may not be noticed for a month I would guess.Antipsychotics are faster drugs, but they aren't that fast, and Seroquel is a fairly weak agent and usually doesn't attack psychosis at 100mg. 400mg is usually considered a dose that begins to address this.
Unfortunately psychosis varies over time so what dose worked before may not work now, but could work again later.
And did your doctor -- I know I'm asking again, but did your doctor perform an AIMS (Abnormal Involuntary Movement Scale) to determine the severity and existence of your TD. This is very important because TD is on a sliding scale from EPS and can be needlessly misdiagnosed especially as to severity.
Remember that regardless of what medications are used to combat TD, you have at least a 33% chance of remission of it alone. It just takes time. 33% will stay the same and get no worse, and 33% may get worse.
Early onset schizophrenia is the most common unfortunately. In some ways, though, medication has less severe impact on younger individuals than late life onset.
At any rate I wish you continued success, we are all here, and I do hear your anger, your concern, and your pain of struggling with an awful condition. Do not get me wrong when I am asking a few questions, we are here and I have definately heard you.
-- best wishesJay
Posted by Jeroen on January 19, 2007, at 13:38:38
In reply to Re: for schizophrenia/psychosis, + TD BY GEODON » Jeroen, posted by yxibow on January 19, 2007, at 13:32:03
how come it takes a month to work?
i dont understand, i taught like 2 weeks
as since i have this disease, people are insulting me, bullied in school
a loti dont like the way people treath each other this cruel,
before this nobody bullied me, but since i dont feel myself, like lot of people insult, sh*t, ignore me
i guess i must be really sick then
Posted by yxibow on January 19, 2007, at 14:51:15
In reply to how come it takes a month to work?, posted by Jeroen on January 19, 2007, at 13:38:38
> how come it takes a month to work?
For the reason below, it probably is not as strong as other agents and it may have to work a little hard this time around -- I can't give you a definite answer but full control is not seen that quickly.
> i dont understand, i taught like 2 weeksTwo weeks for it to get a good start, but remember Seroquel is the weakest of the agents and unless you have been on it for two weeks at 400mg -- its usually ramped up otherwise it would make you sick, it may take a little longer.
> as since i have this disease, people are insulting me, bullied in school
> a lotOkay -- I won't ask again about the AIMS if your doctor agrees, if it is happening that frequently in a day, it is more likely to be TD.
I'm sorry to hear that :(
> i dont like the way people treath each other this cruel,I know :(
> before this nobody bullied me, but since i dont feel myself, like lot of people insult, sh*t, ignore me
>
>
> i guess i must be really sick thenNo you're not Jeroen. You're hurting a lot. There is a lot of difference between the two. And you're angry about it all on top of it which is understandable to say the least. Please continue to post, I think talking about it helps, and I know you have other friends here who you talk to as well.
-- Jay
Posted by Jeroen on January 19, 2007, at 14:53:48
In reply to Re: how come it takes a month to work? » Jeroen, posted by yxibow on January 19, 2007, at 14:51:15
large dose, reverse the muscle problem in my eyes? possible?
Posted by yxibow on January 19, 2007, at 18:55:42
In reply to large dose, reverse the muscle problem?, posted by Jeroen on January 19, 2007, at 14:53:48
> large dose, reverse the muscle problem in my eyes? possible?
I wouldn't raise the dose -- I know you want to get rid of the blepharospasms, but if any treatment for TD is to work, it should be at the minimum effective dose. Because you don't want to raise the chance of getting TD from another antipsychotic. Now, the risk of TD from Seroquel is much lower -- you can discuss this with your doctor, but unless he's in favor of a sky high dose, which they used to try in the old days with old antipsychotics, I don't think it would be recommended. In any case, with all of these things, follow it with your doctors advise, tell him how you feel, and the two of you can work together to find something that may eventually do something for you.
There are still other options you can try, other medications have been tried against TD, as you noted Vitamin E -- but please do this with your doctors approval.
The one thing that should still be compared though, is when you start an experimental treatment, you should get an AIMS score, and do another AIMS exam, say 6 weeks into the experiment. Otherwise you will not know how much has been improved.
The second thing you have to remember is that you have at least 33% chance on your side that it will remit at some point anyhow which could take a year, and any treatment you do may merely be a placebo to the remission of TD.
The best successes, non double blind so far, have been with different atypical antipsychotics, tetrabenazine (Nitoman), and Clozaril.
If you try Clozaril, you have to be prepared for weekly blood tests for several months at least because it can cause up to 2.5% of patients to have low blood cell counts, which could seriously endanger you if you got any infection. Also, while it has never been conclusively proven to have any TD of its own, it does cause a certain amount of drooling in some patients which you may have to control with an anticholinergic, probably Artane or Cogentin. This presents a dilemma, because you already have TD, and anticholinergics make TD worse almost 100%. Your only other choice in reducing drooling is Clonidine, an alpha blocker, which must be taken on schedule, or you could have rebound blood pressure. Certain antihistamines may also be drying, but they will have a percentage of anticholinergic effect too.
But most of all, focusing on it, while I know it is impossible to forget, only makes it more distressing for you. People are cruel, whether online or offline and I understand that you have been mocked in school, but you have to let it roll off as much as possible. Stress theoretically could increase TD I suppose, though I can't say that for sure. Mental illness carries a horrible burden, and treatments have their own consequences. Be well and you have a community here who cares. Babblemail some of your friends.
Be well-- Jay
Posted by Phillipa on January 19, 2007, at 19:13:29
In reply to Re: large dose, reverse the muscle problem? » Jeroen, posted by yxibow on January 19, 2007, at 18:55:42
Jeroen hi you know did we ever ask you if you've had your eyes examined by an eye doctor? Love Phillipa ps heard from Ed today.
Posted by Honore on January 23, 2007, at 6:03:09
In reply to Re: large dose, reverse the muscle problem?, posted by Phillipa on January 19, 2007, at 19:13:29
I spoke to my pdoc this week about TD, and he mentioned that most cases resolve --ie get a lot better, or go away-- but that it can take up to two years.
I understood him to mean significantly more than 35% chance of full remission.
I'm really sorry you've gotten that, but the good news, as he said, is that it really will eventually get much much better. It's not 100% certain-- but much more likely than is usually believed.
My pdoc is very expert in that area, so that gives me a lot of confidence that your condition will get much less bad over time.
It's hard to have to go through it-- but there is a better time ahead.
Honore
This is the end of the thread.
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