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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 13 of 13. This is the beginning of the thread.
Posted by Glydin on May 31, 2006, at 9:39:38
Playing nice on the boards isn’t always easy with very strong opinions and experiences. I think most posters do a very good job at this and it’s something I’ve enjoyed about the board.
There are times things get a little heated and that’s understandable. I like discussions of differing opinions and I like folks sharing their experiences. That being said, I don’t care for statements which are vast generalizations and in particular, those that can be disrespectful of a path someone has chosen for themselves to achieve wellness. We are very unique individuals and I feel these disorders are way too complicated for a one size fits all thought process.
Being anti or pro “whatever” is not new here and is very understandable. My hope is this board will remain open to the feelings, experiences, questions and concerns of all who choose to post here in a genuine understanding and supportive manner.
I feel this board is for the seekers, finders, found it and wish to keep it, the struggling and not struggling so much. I hope we will all be respectful - most of the time “we” are - but some rare times, we are not and that’s unsettling to me.
Just my opinions, you understand......
Posted by willyee on May 31, 2006, at 9:48:14
In reply to Playing nicely and fairly on the Med Board, posted by Glydin on May 31, 2006, at 9:39:38
With all respect i have particpated in quite a few groups,i only do so in ones that offer benifit and i feel are worth.
These groups are usualy not moderated very tightly,and it got very ugly at times.
Free speech is why were here,and i actualy believe the opposite,that this site prtects us too much,i many times want to disucss things,post links etc,but i dont because im sure it will not be allowed.
I think this group is about the most tightly moderated board/group on emotional disoarders you will ever ever come across.
Posted by idolamine on May 31, 2006, at 12:15:09
In reply to Re: Playing nicely and fairly on the Med Board, posted by willyee on May 31, 2006, at 9:48:14
Sir: I disagree.
> With all respect i have particpated in quite a few groups,i only do so in ones that offer benifit and i feel are worth.
>
> These groups are usualy not moderated very tightly,and it got very ugly at times.
>
> Free speech is why were here,and i actualy believe the opposite,that this site prtects us too much,i many times want to disucss things,post links etc,but i dont because im sure it will not be allowed.
>
>
> I think this group is about the most tightly moderated board/group on emotional disoarders you will ever ever come across.
Posted by UgottaHaveHOPE on May 31, 2006, at 12:47:49
In reply to Re: Playing nicely and fairly on the Med Board » willyee, posted by idolamine on May 31, 2006, at 12:15:09
That's what you have to keep in mind when participating on this board. If a med works for someone, that person is going to speak about it passionately. They are just trying to help and they may come across as overzealouos. Now what you see more often on this board is that a particular med didn't work for someone and may have even made them worse. Because of the negative experience, that particular person may be very vocal against that particular med. They mean well, wanting to help others avoid the same path, but sometimes it comes across the wrong way.
Posted by notfred on May 31, 2006, at 17:36:28
In reply to Every med affects everyone differently, posted by UgottaHaveHOPE on May 31, 2006, at 12:47:49
> That's what you have to keep in mind when participating on this board. If a med works for someone, that person is going to speak about it passionately. They are just trying to help and they may come across as overzealouos. Now what you see more often on this board is that a particular med didn't work for someone and may have even made them worse. Because of the negative experience, that particular person may be very vocal against that particular med. They mean well, wanting to help others avoid the same path, but sometimes it comes across the wrong way.
Well said, UgottaHaveHOPE. It is the nature of these boards that the negative outcomes are over reported. People who do well on meds do not seem to find reasons to post here. I feel like I am the only one here who has great pdocs, a great job, and does well on meds (for decades).It does not seem this point to getting across as again and again someone asks "which is best" then "That does not bode well" if someone has a bad experience. Given the **huge** numbers of posts here over the years about effexor and how bad it is I would of missed the very sucessful med it I read this board and developed my opinions from this board. Effexor was my main stay for 10 years; it worked great, minor sideeffects, and no w/d problems.
I find this site:
http://www.remedyfind.com/
to be much more useful in selecting meds and far less negative. The worts are still there but a poster is not allowed to go on and on about how bad a med is. That way each posters good report of a med can be considered vs anothers bad report. I like the rating system, which has each poster rate somethings that are often missed here; what it easy to take, how much did it cost (retail, no ins).For me this is not a place i find useful in researching meds as the bad outcomes are overreported. This is not a reasonable sample for the general population that has mental illness.
Posted by Glydin on May 31, 2006, at 18:39:26
In reply to Re: Every med affects everyone differently, posted by notfred on May 31, 2006, at 17:36:28
> I feel like I am the only one here who has great pdocs, a great job, and does well on meds (for decades).
>You aren't the only. I haven't reached decades yet but I'm on a good run. I'm glad for your success.
I don't have a problem with personal accounts of experiences, although, the belabouring of a positive or negative point might could be a little tone down - but that's just me. I have a difficulty with generalizations as in: This happened to me and it must be what happens to everyone, therefore it's an awful choice or the flip to that: This happened to me and therefore, it must be the answer for everyone. These can turns into judgements for and of others and I've recently seen some commentary where I and others (by their admission) felt offended.
My thoughts: Some of it comes down to wordsmithing - there are ways to make points and opinions known that involve HOW it is said as well as WHAT's being said. I guess it's Babblespeak I've become comfortable with - most folks here really do a good job with it.
Posted by Phillipa on May 31, 2006, at 22:26:32
In reply to Re: Every med affects everyone differently, posted by Glydin on May 31, 2006, at 18:39:26
Glydin I'm so glad for your success. We need more positive posts. Love Phillipa. ps this gives people hope
Posted by Glydin on May 31, 2006, at 23:45:11
In reply to Re: Every med affects everyone differently » Glydin, posted by Phillipa on May 31, 2006, at 22:26:32
Feeling supported always feels very good to me.
Posted by Donna Louise on June 1, 2006, at 5:44:40
In reply to Re: Every med affects everyone differently » Glydin, posted by Phillipa on May 31, 2006, at 22:26:32
i have been lurking around here for a long time, mostly not saying anything for fear of it being wrong and just fear in general as that is a problem for me. Lately, I have been doing alot of posting I guess I can attribute to the patch as that is the only thing different and I have viewed the disinhibition to post as a sign of recovery. Now I am afraid again that I am going to say the wrong thing. On-line social phobia. If that don't beat all..
I look for people's opinions here, their experience, ect. so I thought that is what I am supposed to post. My experience. And that is all it is or ever can be. Scientific facts are great,but only part of the picture for me as it is the subjective experience that makes me feel not alone in the universe. I sure hope I haven't offended anyone. The thought is horrifying. Maybe I don't understand what this board is for. I bet I can go to administration or somewhere and find out.Donna
Posted by Glydin on June 1, 2006, at 7:03:43
In reply to Re: Every med affects everyone differently, posted by Donna Louise on June 1, 2006, at 5:44:40
> Now I am afraid again that I am going to say the wrong thing. On-line social phobia. If that don't beat all
~~~ That wasn't the purpose of what I posted and I'm sorry it has made you feel this way.
> I look for people's opinions here, their experience, ect. so I thought that is what I am supposed to post. My experience. And that is all it is or ever can be. Scientific facts are great,but only part of the picture for me as it is the subjective experience that makes me feel not alone in the universe. I sure hope I haven't offended anyone. The thought is horrifying. Maybe I don't understand what this board is for. I bet I can go to administration or somewhere and find out.
>~~~ Sharing experiences certainly is a good part to this board and is NOT what I'm referring to as what gets my under-roos bunched up. I guess an example of what bugs me would be a statement like:
Example:
" I took XYX med and it messed me up with ______ (fill in with any nmber of untoward med effects). This is the worse drug ever and should be completely banded. Anyone who takes this or this class of meds stupid for taking the gamble...."
Okay, that's a demo statement with the first sentence being fine. Sentences two and three are judgement statements that appear to apply to everyone and could be found to be offending.
I'm very sorry that I seem to be unclear on my point. It is not my intention to confuse or cause anyone to be uncomfortable. My opinions about babble posts wording as to be sensitive to the feelings of others I think are in keeping with the policies of the site.
Posted by Donna Louise on June 1, 2006, at 7:10:27
In reply to I think I'm a little misunderstood » Donna Louise, posted by Glydin on June 1, 2006, at 7:03:43
Ok, I see what you are saying. I would not do that so I am not worried anymore. I know enough to know that I don't know anything beyond my own experience. I love pbabble, the caring and information have helped me where I would never have found help elsewhere. I do have to be my own advocate and this place is my best resource. I hope to give some of what I have gotten here back now that I am feeling able to do so.
Donna
Posted by Glydin on June 1, 2006, at 7:17:54
In reply to Re: I think I'm a little misunderstood » Glydin, posted by Donna Louise on June 1, 2006, at 7:10:27
I did not want you to feel badly and I have read your posts and have seen nothing out of line with how you post.
I hope you can find a good treatment for you and can tell of it. It's a great feeling I wish for all to be able to experience. I was in a pretty pitiful in shape when I arrived here years ago. I've been blessed with a treatment that works well. I do hope the same for you.
Posted by Dr. Bob on June 3, 2006, at 1:40:54
In reply to Playing nicely and fairly on the Med Board, posted by Glydin on May 31, 2006, at 9:39:38
This is the end of the thread.
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