Psycho-Babble Medication Thread 536372

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Re: Feels like it could be a big deal

Posted by AmyHarmon on August 3, 2005, at 13:36:38

In reply to Re: Feels like it could be a big deal » barosky, posted by smith562 on August 2, 2005, at 20:48:11

Hi, sorry if this gets posted twice, I thought I had replied but haven't seen it show up.

I do understand your concern. But of course, what I eventually write will depend on what I learn as I do the reporting -- which is why I hope some of you will talk to me, so I can accurately reflect your views. If I have an angle, it is simply that it seems the degree to which people are taking charge of their own pyschological medicine is growing significantly, and that is worth noting. People aren't necessarily "defying" doctors, but they feel like doctors aren't enough, that they often know better themselves what they need, in part because of access to forums like this. Feel free to agree or disagree -- I'm here to learn.
thanks
amy


> > And of course the N.Y. Post is on the other side of the spectrum, I read and respect the content that is written in the Times, and just relax about the re-direction thing, it's not a big deal.
>
> Dear Barosky,
>
> The way Ms. Harmon states, "growing number of Americans who are self-diagnosing their own ailments and self-prescribing their own remedies." does worry me. Maybe I am taking this personally, but it makes us babblers sound like non compliant patients who are defying are psychiatrists and "self-diagnosing" and "self-prescribing" (I don't know how else to self prescribe medication except somehow obtaining illegal drugs.) I would hate to see this site protraited as such ...
>
> Smith
>

 

Re: Should this be redirected Dr. Bob/Everybody? » smith562

Posted by fires on August 3, 2005, at 15:44:54

In reply to Should this be redirected Dr. Bob/Everybody? » AmyHarmon, posted by smith562 on August 1, 2005, at 16:09:43

My 2 cents: Some here were very rude to Amy, and therefore made PB "look bad."

 

Re: Should this be redirected Dr. Bob/Everybody? » fires

Posted by Declan on August 3, 2005, at 17:28:16

In reply to Re: Should this be redirected Dr. Bob/Everybody? » smith562, posted by fires on August 3, 2005, at 15:44:54

My reservations were based on reporting in Australian newspapers where anything outside the conventional paradigm, so to speak, has been pretty superficially and unfairly treated, although in some ways that is improving.
I didn't mean to be rude, everyone here is nice to each other and if I have given any offence I'm sorry.
Declan

 

Re: Feels like it could be a big deal » AmyHarmon

Posted by MidnightBlue on August 3, 2005, at 19:22:43

In reply to Re: Feels like it could be a big deal, posted by AmyHarmon on August 3, 2005, at 13:36:38

Not everyone has equal access to doctors, especially pdocs. If you don't have insurance, don't qualify for federal programs, and aren't wealthy, you might not have any other choice. There is a good bit to learn on the alternative board about "medications" that do not require a prescription.

What do you do if you live in a rural area and have limited access to a pdoc? You might be stuck with educating your gp about how to treat you.

MB

 

Re: Feels like it could be a big deal

Posted by AmyHarmon on August 3, 2005, at 19:32:22

In reply to Re: Feels like it could be a big deal » AmyHarmon, posted by MidnightBlue on August 3, 2005, at 19:22:43

> If you don't have insurance, don't qualify for federal programs, and aren't wealthy, you might not have any other choice.

Understood. And I would love to talk to anyone who fits this description about how they cope...amy

 

Re: Whom else is included in your article? » AmyHarmon

Posted by smith562 on August 3, 2005, at 21:20:51

In reply to reporter seeks interviews, posted by AmyHarmon on August 1, 2005, at 13:22:19

Dear Amy,

May I ask whom else, or rather which other disease groups have you included in this upcoming article? Whom else have you found also "self-diagnose" and "self prescribe" .... diabetics? stroke victims? alcoholics? Or is it just us with mood disorders at "psychobabble?"

Thanks.

Smith

> Hi, I'm a reporter with the New York Times. I’m looking for people to interview for an article about the growing number of Americans who are self-diagnosing their own ailments and self-prescribing their own remedies. The idea is to document an emerging medical culture in which people rely on their own instincts and knowledge gleaned from the collective wisdom in communities like the Psycho-Babble boards to figure out what they need to feel better, instead of (or in addition to) the traditional doctor’s advice. If you’re willing to share your experiences on this subject, please email me at amy@nytimes.com and let me know how best to contact you. If privacy is a concern, I would not necessarily need to use your name in the article.
> thanks a lot,
> Amy
>
> ------------------------------------
> Amy Harmon
> New York Times
> amy@nytimes.com
>

 

I agree with you fires.. (nm)

Posted by spriggy on August 3, 2005, at 21:39:06

In reply to Re: Whom else is included in your article? » AmyHarmon, posted by smith562 on August 3, 2005, at 21:20:51

 

Re: I agree with you fires and spriggy as well !!! (nm)

Posted by smith562 on August 3, 2005, at 22:15:49

In reply to I agree with you fires.. (nm), posted by spriggy on August 3, 2005, at 21:39:06

 

Re: reporter seeks interviews

Posted by smith562 on August 3, 2005, at 22:23:38

In reply to reporter seeks interviews, posted by AmyHarmon on August 1, 2005, at 13:22:19

Hey Amy,

Here is a possible headline free of charge .... "Psychobabbler throws doctor's prescription for Zoloft in trash and decides to get some Ritalin and Vicodin from the corner drug dealer after reading a post on the internet website Psychobabble! Congress, Babble should be shut down!"

Does this catch the essences of your article?

Smith

 

Re: reporter seeks interviews » smith562

Posted by fires on August 3, 2005, at 22:28:30

In reply to Re: reporter seeks interviews, posted by smith562 on August 3, 2005, at 22:23:38

Why are some ASSUMING what her intentions are?

 

Re: reporter seeks interviews » AmyHarmon

Posted by Jakeman on August 3, 2005, at 22:34:12

In reply to reporter seeks interviews, posted by AmyHarmon on August 1, 2005, at 13:22:19

The reporter just asked some questions.

warm regards ~Jake

 

Re: reporter seeks interviews » Jakeman

Posted by Jakeman on August 3, 2005, at 22:38:37

In reply to Re: reporter seeks interviews » AmyHarmon, posted by Jakeman on August 3, 2005, at 22:34:12

Do we have to analyze sh*it to death?

warm regards ~Jake

 

the great part of it is...

Posted by spriggy on August 4, 2005, at 0:54:04

In reply to Re: reporter seeks interviews » Jakeman, posted by Jakeman on August 3, 2005, at 22:38:37

If you don't want to participate, you don't have to.

Other's may wish to and may find it theraputic sharing their experience and story.

 

I agree Jakeman, Spriggy, Fires!Thanks for Support (nm)

Posted by smith562 on August 4, 2005, at 8:39:22

In reply to the great part of it is..., posted by spriggy on August 4, 2005, at 0:54:04

 

Re: reporter seeks interviews » AmyHarmon

Posted by MidnightBlue on August 4, 2005, at 11:18:13

In reply to reporter seeks interviews, posted by AmyHarmon on August 1, 2005, at 13:22:19

Amy,

I've been thinking about this a good deal, and I think you might be missing the main reason some of us come to Babble. Please note I'm speaking primarily for myself here.

Most of us have already been diagnosed by a Pdoc at some point in our lives. Some by several. Sometimes we might disagree or question that diagnosis. For example, right now it seems pretty popular to label everyone with treatment resistant depression as bipolar.

I think it is inaccurate to assume that we are basically treating ourselves, though a few of us may be. I come to Babble to learn about new meds and treatments and if others are having success with them. Also for support and encouragement.

It can be discouraging to try 3 or 4 drugs and receive no benefit. If someone else has tried a drug and found that adding something else has tweaked it and made it work, then we can pass that info on to our doctors.

There may be a few people who come to Babble to diagnosis and treat themselves, but I don't think that is the majority.

If your article is primarily about internet self diagnosis I know of another area where that is going on in what I feel are much greater numbers.

MidnightBlue

 

Re: reporter seeks interviews

Posted by AmyHarmon on August 4, 2005, at 11:29:00

In reply to Re: reporter seeks interviews » AmyHarmon, posted by MidnightBlue on August 4, 2005, at 11:18:13

Thanks, your point is well-taken. I do think there's a broad spectrum of what I'm calling "self-treatment," and people do a lot of their own research and suggest or dictate to a doctor what to prescribe them fall somewhere within it. But I'd be interested to hear about the other area you mentioned where people are doing more independent self-diagnosis/self-prescription too!

> Amy,
>
> I've been thinking about this a good deal, and I think you might be missing the main reason some of us come to Babble. Please note I'm speaking primarily for myself here.
>
> Most of us have already been diagnosed by a Pdoc at some point in our lives. Some by several. Sometimes we might disagree or question that diagnosis. For example, right now it seems pretty popular to label everyone with treatment resistant depression as bipolar.
>
> I think it is inaccurate to assume that we are basically treating ourselves, though a few of us may be. I come to Babble to learn about new meds and treatments and if others are having success with them. Also for support and encouragement.
>
> It can be discouraging to try 3 or 4 drugs and receive no benefit. If someone else has tried a drug and found that adding something else has tweaked it and made it work, then we can pass that info on to our doctors.
>
> There may be a few people who come to Babble to diagnosis and treat themselves, but I don't think that is the majority.
>
> If your article is primarily about internet self diagnosis I know of another area where that is going on in what I feel are much greater numbers.
>
> MidnightBlue

 

Re: please be civil » fires

Posted by Dr. Bob on August 5, 2005, at 22:45:14

In reply to Re: Should this be redirected Dr. Bob/Everybody? » smith562, posted by fires on August 3, 2005, at 15:44:54

> Some here were very rude

Please don't post anything that could lead others to feel accused or put down.

If you or others have questions about this or about posting policies in general, or are interested in alternative ways of expressing yourself, please see the FAQ:

http://www.dr-bob.org/babble/faq.html#civil

Follow-ups regarding these issues should be redirected to Psycho-Babble Administration. They, as well as replies to the above post, should of course themselves be civil.

Thanks,

Bob

 

OK, I'll do better (nm) » Dr. Bob

Posted by fires on August 5, 2005, at 23:12:44

In reply to Re: please be civil » fires, posted by Dr. Bob on August 5, 2005, at 22:45:14

 

Re: reporter seeks interviews:--- Amy

Posted by alohashirt on August 6, 2005, at 1:44:58

In reply to Re: reporter seeks interviews, posted by AmyHarmon on August 4, 2005, at 11:29:00

Amy,

If you mail me at alohashirt99@yahoo.com I'd be happy to talk without attribution.

 

A message for AmyHarmon

Posted by med_empowered on August 6, 2005, at 10:46:10

Hey! Sorry to post this in babble rather than using Babblemail or whatever...as per usual, my PC is refusing to cooperate with my wishes. Anyway, if you're still looking for people to talk to, I'd like to chat with you. Your article/research sounds intriguing. If you could post a response to this, I think we could probably figure out some way to exchange the necessary contact information. Thanks for your giving all of us here at Babble a chance to participate!

 

Re: A message for AmyHarmon

Posted by spriggy on August 6, 2005, at 12:51:40

In reply to A message for AmyHarmon, posted by med_empowered on August 6, 2005, at 10:46:10

If she doesn't post back to you soon, babblemail me.

Maybe she is out of town or not at work or something.

 

Re: thanks (nm) » fires

Posted by Dr. Bob on August 8, 2005, at 9:31:49

In reply to OK, I'll do better (nm) » Dr. Bob, posted by fires on August 5, 2005, at 23:12:44

 

To Amy, Reporter for NYT

Posted by up'n'down on August 12, 2005, at 21:11:28


Dear Amy;

This is probably too late for your article, but I haven't been posting for awhile, and then thoughts have to percolate for awhile before they jell, sometimes.
You mentioned about psych patients being more into taking responsibility and action for their health care, especially meds. I know this is so, and I will tell you why it is for me. Psych issues are so very subjective. My disease determines how I function in this world.

For instance, I have Rheumatic Valvular Heart Disease, and have had some very scary incidents with it. I now have 2 valve replacements; I had severe, life-threatening complications after my surgery. But I don't give near the time and attention to that part of my health.
The reason is that my psych diseases govern how I react to everything.It doesn't matter what is going on with the rest of my body if my head isn't working fairly OK.
To summarize, I have life-threatening physical diseases, but my psych disease is a living-threatening disease!
I hope this gives you some food for thought, if your still on this subject. up 'n' down

 

Ummm, uncomfortable about this

Posted by barbaracat on September 29, 2005, at 23:54:29

In reply to reporter seeks interviews, posted by AmyHarmon on August 1, 2005, at 13:22:19

I don't know why I'm getting a weird feeling about this because I was thinking of doing something similar for a book I'm planning to write. Maybe because it's the newspaper article format and the self-diagnosis do-your-own-meds theme. It feels like an invasion of privacy to alert the world to our board and our lives.

And what really is the point? What case is being laid down? What's the agenda? Letting the mass market know we're here might direct some folks needing help to our board, but I can predict that there's going to be a flood of lurkers and curiosity seekers and it will be a different board. Maybe better, maybe not.

I think the difference I feel in asking you all for info for my book is that I'd protect the privacy of my info source like a pit-bull, but I feel like there are alot of breach privacy issues here, like 'if you don't want me to use your name, I won't'. Would any of you really give a reporter your name/phone number/private email on issues this sensitive?

People who seek out and buy a book on mood disorders are likely going to be sympathetic to the issues. Just broadcasting us this way to everyone and sundry doesn't sit right with me - concerns about the difficulties we go through being viewed with respect and empathy. But you can't stop the presses, so I hope whatever gets published leaves us feeling proud instead of pissed. - BarbaraCat

 

Re: reporter seeks interviews

Posted by Laurie Beth on October 4, 2005, at 13:38:10

In reply to Re: reporter seeks interviews, posted by AmyHarmon on August 4, 2005, at 11:29:00

> But I'd be interested to hear about the other area you mentioned where people are doing more independent self-diagnosis/self-prescription too!

Fertility treatment.


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