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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 10 of 10. This is the beginning of the thread.
Posted by Drexxie on August 3, 2001, at 19:38:06
Please anyone...
I've "severe AD(H)D" per numerous pdocs. My current pdoc has switched my 30 mgs. of Dexedrine to 30 mgs. Desoxyn Gradument (please, I do know that it's classified as a "methamphetamine," as does my pdoc [I add this only in hope that no one will feel it necessary, or obligated, to "attack," critique, or belittle me, as I currently don't feel strong enough to endure any such thing. So please... please... don't]).
My AD(H)D has been sooo horrible, that even as I type this, I'm crying (AND I HAVEN'T CRIED FOR YEARS). I'm terrified that I'll have to live the rest of my life feeling just as horrid as I feel at this very moment, as I just received a phone call from the pharmacist at Eckerd Drugs telling me that he's called 2 drug manufactures and both told him that Desoxyn had been discontinued.
I've read recent information on the web referring to this specific drug and my pdoc had even found it in his current (I suppose it's current) big red drug book (I forget the name-sorry)
IS THE PHARMACIST RIGHT? IS DESOXYN GONE?! If anyone knows I beg you to write me, as I feel like the world is falling down around me (I've already paged my pdoc but someone is on call for him and I'm scared to call her.
I just want my regular pdoc... I know I must sound like a stupid, snivelling, imbecile... Trust me I'm already embarrassed of this message I'm about to pose.
I just think someone on here might know about this drug and if it's truly GONE....Aplogies (in advance),
DrexxieAddendum: Current meds: 450 mgs. Wellbutrin (am)
60 mgs. Celexa (am)
.6 mcgs. Thyroid (3 X day)
30 mgs. Dexedring Spansules
(before bed)
60 mgs. Adderall 93 X a day)I think that's all.... I'm not remembering too well right now.
Posted by kazoo on August 3, 2001, at 21:32:23
In reply to DESOXYN GONE? PLEASE, PLEASE, HELP! (if possible , posted by Drexxie on August 3, 2001, at 19:38:06
> IS DESOXYN GONE?!
^^^^^^^^^^^^^^^^^^
Well, the thing to do is to contact any of these people on this page:
http://abbott.com/news/contact.html
Pop the question to any of them. Any of them would know.
If you do contact them, would you post their reply?
You may be interested in knowing that DESOXYN is manufactured at an Abbott lab in Puerto Rico.
Kazoo
Posted by Drexxie on August 4, 2001, at 14:08:19
In reply to Re: DESOXYN GONE? Don't despair, my dear ... » Drexxie, posted by kazoo on August 3, 2001, at 21:32:23
Kazoo,
I thank you for advising me in regard to the Desoxyn and Abbott. One thing that happens to me when my AD(H)D gets "out of control," is that I can't stay concentrated long enough to know what to do. So, your pointing me in the right direction was a blessing.
I phoned Abbott is Ill. They are to return my call. Apparently, this drug is still being manufactured, but some pharmacies (according to 2 of the ~50, pharmacists with which I've spoken to the previous 2 days) only do business with certain manufacturers. Consequently, I have to find a pharmacy which does business with a manufacturer who distrubutes the 15 mg. Gradumet (or 25 mg. gradument- preferred by pdoc). This is like adding a nightmare to a nightmare.
A smaller pharm did deal with a manufacturer who carries the 5 mg. Desoxyn (but not gradumet form).
My doctor will write another Rx for 5 mgs (to take 6 a day, instead of the 15 mgs. gradument which I was to take 2 a day.Dr. Bob has info. on this drug on another page, and I noticed several doctors referring to the 25 mg. pill! Seems the 15 mg. unknown to anyone I've yet to speak with. Perhaps, those doses are discontinued, I don't know. However, hopefully I soon will!
Drexxie
> > IS DESOXYN GONE?!
>
> ^^^^^^^^^^^^^^^^^^
>
> Well, the thing to do is to contact any of these people on this page:
>
> http://abbott.com/news/contact.html
>
> Pop the question to any of them. Any of them would know.
>
> If you do contact them, would you post their reply?
>
> You may be interested in knowing that DESOXYN is manufactured at an Abbott lab in Puerto Rico.
>
> Kazoo
Posted by Drexxie on August 4, 2001, at 16:30:05
In reply to Re: DESOXYN GONE? Don't despair, my dear ... » Drexxie, posted by kazoo on August 3, 2001, at 21:32:23
The was a quote from one of the pharmacists with whom I spoke (sad, isn't it?)
Hello, Kazoo...Great advice you gave me! I did indeed phone Abbott. One very helpful ad informed pharmacist with whom I spoke gave me the number to Abbott in Ill. Oh course, no one was there on a Sat., but I managed to get a rep to phone me back (thankfully).
Thankfully, I didn't need to involve Nancy Drew in getting to the bottom of what appeared to be quite the mystery.
Here goes: (per the supervisor of Abbott's customer service division)
Only certain manufacturers handle Desoxyn.
Certain pharmacies are limited (due to the corporation that own that particular pharmacy) to specific distributors.Thus, many of the places I tried, Wal-Mart, Eckerd, et al., were unable to fill my script, due to the fact that the distributors to which they were limited didn't destribute Desoxyn.
"Therein lies the rub..." -ShakespeareI was able to find a pharmacy who used a distributor (Mc___ [something... Oops! sorry I forget the name) which distrubuted Desoxyn.
This pharmacy will order Desoxyn for me and will be able to fill my pdocs Rx! (yeah!)Here's a few facts that I was unaware of prior to my attempting to decode this prescription "puzzle"...
- Desoxyn Gradumet is no longer being made.
- The 15 mg. and 25 mg. of either Desoxyn is also
off the market.- Desoxyn 5 mg. is what's available
The customer service supervisor was so help and understanding! (even on her day off!) When asked I spoke to her of the previous stimulants I had taken and the rebound probs, I had been having with those meds.
Additionally, I relayed to her some of the articles, et. al. which stated that one of the benefits of Desoxyn was it's not having that effect Desoxyn is described in numberous writing as being "smoother" acting). (BTW on this note both the pharmacist and the c.s. supervisor agreed [and I don't think the supervisor did so just b/c she worked for Abbott. She seemed to be the type who called it as she saw it, if you know what I mean in such a regard.)
I'm fortunate to have spoken with one very spectacular pharmastic; she was willing to answer all of my questions, explain why my being able to fill this Rx was such a problem, and give me the number to the specific department at Abbott who would be qualified to answer all my questions!
Interesting enough, the pharmacist seemed very confident that Desoxyn would be able to "help me," with the current problems I'm experiencing.
Both the supervisor at Abbott, and the pharmacist, relayed to me that there are myriad people for whom Desoxyn provides the greatest amount of "relief" in regards to AD(H)D.After speaking with the Abbott supervisor, I called the pharmacist again and informed her of my conversation with Abbott. She was impressed that the rep. supervisor was willng to call me on a weekend and that she gave me her direct telephone line to call in case I had even the remotest problem in the future getting my Rx filled.
(WHEW!) Your advice, Kazoo, gave me the courage to keep going and not to just "accept" these torturous AD(H)D symptoms (which leave me desperate to the point of pondering dying just to get rid of them!)
At least this drug will add another option weapon to my AD(H)D arsenal! Your support, Kazoo, made all the difference.
I can't thank you enough!
-Drex
Posted by kazoo on August 4, 2001, at 18:11:13
In reply to It'd be easier to buy D-METH on the street... » kazoo, posted by Drexxie on August 4, 2001, at 16:30:05
> I can't thank you enough!
^^^^^^^^^^^^^^^^^^^^^^^^^^No big whoop, my dear. I know if must be a relief for you to find what you're looking for. Not many pharmacies carry DESOXYN ... too many illegal scripts.
SOME ADVICE FOR THE FUTURE: Whenever I have a problem with a product or person, I go right for the jugular, and avoid all the paperwork.
Look into a drug called SYNDROX, which is a kind of generic "DESOXYN." I remember the drug from the 1980s and, also, there was a 25mg sustained-release tablet available.
Dont' even think about buying street meth. It's bathtub poison.
Cheers,
kazoo
Posted by Elizabeth on August 4, 2001, at 23:40:02
In reply to Don't despair, my dear ... » kazoo, posted by Drexxie on August 4, 2001, at 14:08:19
Hi, Drexxie.
Desoxyn (d-methamphetamine) stands out among the psychostimulants in that it has the lowest ratio of peripheral to central effects. This means it's less likely than other stimulants to cause a lot of the common side effects of this class of drugs.
> One thing that happens to me when my AD(H)D gets "out of control," is that I can't stay concentrated long enough to know what to do.
Heh. I know *exactly* what you mean.
> Apparently, this drug is still being manufactured, but some pharmacies (according to 2 of the ~50, pharmacists with which I've spoken to the previous 2 days) only do business with certain manufacturers.
The way it works is, the pharmacy orders the drugs from a wholesaler who orders them from the manufacturer. I've had trouble getting buprenorphine (which isn't normally carried in retail pharmacies) in the past because a lot of wholesalers don't carry it.
> Consequently, I have to find a pharmacy which does business with a manufacturer who distrubutes the 15 mg. Gradumet (or 25 mg. gradument- preferred by pdoc). This is like adding a nightmare to a nightmare.
I'd say it's more like adding a pain to an ass. :-)
Take care. I hope you're able to get your medicine.
-elizabeth
Posted by Drexxie on August 6, 2001, at 14:56:48
In reply to Re: It'd be easier to buy D-METH on the street... » Drexxie, posted by kazoo on August 4, 2001, at 18:11:13
So right you are, Kazoo! (smile)
Had I spoken with Abbott first thing, I might have
saved myself a lot of grief (and grief is not one of those things I'm ever running short of! [grin])Embarrassing as it is to admit, I never even entertained the notion of phoning the drug manufacturer... Such never even made it on my list of options.
Not having a clue as to possible options has always been a problem for me. Often others become frustrated with me b/c they assume that I'm choosing to ignore the obvious and "freaking out" instead. Later, when I'm made aware of some other option that is available, I'm stunned at the fact that I didn't think of such a thing myself.
My being "oblivous" to things that others "see" right away, is common. It seems I'm always wondering why I didn't think of "that." Ugh! How I wish that that part of my brain could be fixed!
Seriously, there's probably some color in the spectrun that I'm missing as well.... (giggle)
The very much relieved (and always appreciative),
-DrexAddendum: Whew! Am I glad that I won'tt have to go searching for some clandestine "meth lab" (hee hee/just joking, of course).
I can't thank you enough!
> ^^^^^^^^^^^^^^^^^^^^^^^^^^
>
> No big whoop, my dear. I know if must be a relief for you to find what you're looking for. Not many pharmacies carry DESOXYN ... too many illegal scripts.
>
> SOME ADVICE FOR THE FUTURE: Whenever I have a problem with a product or person, I go right for the jugular, and avoid all the paperwork.
>
> Look into a drug called SYNDROX, which is a kind of generic "DESOXYN." I remember the drug from the 1980s and, also, there was a 25mg sustained-release tablet available.
>
> Dont' even think about buying street meth. It's bathtub poison.
>
> Cheers,
>
> kazoo
Posted by Drexxie on August 6, 2001, at 16:48:28
In reply to Re: Don't despair, my dear ... » Drexxie, posted by Elizabeth on August 4, 2001, at 23:40:02
Hi yah, Elizabeth! (smile)
>
Thanks for translating a bit about Desoxyn into "english" for me! I always welcome the opportunity to learn something new and you helped me to understand quite a bit more than I did previously.Nevertheless, one question has come to mind. With Desoxyn (d-methamphetamine) having, among the psychostimulants, the lowest ratio of peripheral to central effects (aka- in its class, it's less likely than other stimulants to produce a lot of the common side effects) why is this drug so seemingly "neglected" when it comes to treatment of AD(H)D and other conditions.
It's like on the 'endangered species list' of prescriptions, when it comes to a pharmacy actually having it in stock. Additioanlly, the pharmacists aren't too dang 'chippy' when it comes to even talking about where one or how one might go about getting such a Rx filled.
IMHO, it was as if the pharmacists were TRYING to get me to fill it elsewhere. Hindsight suggests that some of the pharmacists could have ordered it, but didn't even metion that little tid bit of info.
I'm by nature, usually on the verge of absolute confusion.... In this situation, it seemed as though the majority of pharmacists with whom I spoke were trying to push me deeper than I've even been into that black abyss of confusion!
One pharmacist told me that the only place that'd carry "a drug like that" would be a hospital." He expounded by informing me that, his pharmacy, "doesn't and wouldn't carry that kind of 'stuff'!" Whah... whah... what?? (he hung up before I could even ask...)
A day of searching for a pharmacy that carried Desoxyn, left this girl thinking that at any moment, a squad of DEA agents was going to burst through my door and haul me off to the 'slammer.' Sheesh!
> > One thing that happens to me when my AD(H)D gets "out of control," is that I can't stay concentrated long enough to know what to do.
>
> Heh. I know *exactly* what you mean.
====
It's always nice to be reminded that I'm not the only one in this world who has these "moments." They're so horrible that words fail in their ability to describe them! However, I'd much rather that you didn't know what I meant in this regard, as it is utter misery, at times.
> The way it works is, the pharmacy orders the drugs from a wholesaler who orders them from the manufacturer. I've had trouble getting buprenorphine (which isn't normally carried in retail pharmacies) in the past because a lot of wholesalers don't carry it.
====I had no idea that such an elaborate process was taking place behind the scenes at my local pharmacy. I'm still trying to comprehend how it all works. From what I was told, some corporations limit the "distributers" that their pharmacies may use. And... some distrubuters are limited to the manufactures (or meds.)....
.....Umm... Err... I haven't a clue as to how it all works. I'm not even going to pretend that I do! Uh... jeez... I think that all I do know is that this was one 'scavenger search' that I'd have rather missed!(grin)
As with most things, there is a silver lining... Thanks to you and others on this board,if this type of situation does again arise, I'll at least have a clue what to do! (or where to go to find out [grin])
> I'd say it's more like adding a pain to an ass. :-)
====
Okay... I'm still laughing over this one! Very well put! Brava!
>
>Take care. I hope you're able to get your medicine.
===Thank you, Elizabeth. Luckily, some good advice left me contacting Abbott, who got it all straight from there. Now, if problems arise, I've a name and number for Abbott that the pharmacist is asked to call.
Jeez... What an mess!! (whew)
I hope all is going well on your end of the computer! (big smile)Best Wishes,
-Drex
Posted by Elizabeth on August 7, 2001, at 8:47:46
In reply to Doom, despair, and agony... » Elizabeth, posted by Drexxie on August 6, 2001, at 16:48:28
> With Desoxyn (d-methamphetamine) having, among the psychostimulants, the lowest ratio of peripheral to central effects (aka- in its class, it's less likely than other stimulants to produce a lot of the common side effects) why is this drug so seemingly "neglected" when it comes to treatment of AD(H)D and other conditions.
"Abuse potential." No doctor wants to prescribe methamphetamine if he can help it.
> IMHO, it was as if the pharmacists were TRYING to get me to fill it elsewhere. Hindsight suggests that some of the pharmacists could have ordered it, but didn't even metion that little tid bit of info.
Of course they could have. They just didn't *want* to. (A lot of pharmacists -- and doctors, for that matter -- seem to think it's their job to wage the war on drugs.)
I've found it helpful to go to the same pharmacy all the time and get to know the pharmacists there. Pharmacists who know me are much less likely to give me a hard time getting my buprenorphine.
> I had no idea that such an elaborate process was taking place behind the scenes at my local pharmacy. I'm still trying to comprehend how it all works. From what I was told, some corporations limit the "distributers" that their pharmacies may use. And... some distrubuters are limited to the manufactures (or meds.)....
It sounds like "distributors" are the same thing as "wholesalers."
> > I'd say it's more like adding a pain to an ass. :-)
> ====
> Okay... I'm still laughing over this one! Very well put! Brava!Grazie. :-)
-elizabeth
Posted by Drexxie on August 7, 2001, at 21:01:03
In reply to Re: Doom, despair, and agony... » Drexxie, posted by Elizabeth on August 7, 2001, at 8:47:46
(A lot of pharmacists -- and doctors, for that matter -- **seem to think it's their job to wage the war on drugs.)**
======Wow! That's quite a punch you have there chica! (grin)
Elizabeth, that line is classic!!!
I can't quit thinking of just how sad it is(tragic, actually) that, so many within the medical profession are willing to add the disabled, to the casualty list being generated by this "War on Drugs."
Additionally, how ironic that so many who become chronic drug abusers, are those who initially experimented with drugs in an attempt at self- medicating.
> I've found it helpful to go to the same pharmacy all the time and get to know the pharmacists there. Pharmacists who know me are much less likely to give me a hard time getting my buprenorphine.
====I think I've finally taken that bit of advice to "heart." Now that I seem to have a pharmacist who can fill my Rx's without having to alert the DEA... I can honestly say, I think I'm going to be one heckuva loyal customer!
> It sounds like "distributors" are the same thing as "wholesalers."
====
Yeh, you're right. I'm interchanging the two, as I keep forgetting which term is the correct one (giggle)
>> > > I'd say it's more like adding a pain to an ass. :-)
> > ====
> > Okay... I'm still laughing over this one! Very well put! Brava!
>
> Grazie. :-)
=====
Ahh... but another shining example, of a 'classic' line!
As always, Elizabeth, I appreciate the insight and advice! (ahh... yes, and the laughs! [big smile])Bests,
-Drex
This is the end of the thread.
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