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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 11 of 11. This is the beginning of the thread.
Posted by inanimate peanut on January 29, 2010, at 0:08:42
Well, we're skipping T3 for now due to access, so we start with number 3 on the list-- Mirapex. It's a dopamine drug. There are several promising studies-- I'll send these along if anyone babbles with their e-mail. I'm not sure how long it takes; most of the studies were for 6 weeks. So, I'm sure we'll run the trial at least 4 weeks. Here's hoping! This will test my patience more than anything.
Posted by Maxime on January 29, 2010, at 0:32:56
In reply to starting Mirapex, posted by inanimate peanut on January 29, 2010, at 0:08:42
Good luck Peanut! Do you know what dosage you are aiming for?
xoxo
Posted by janejane on January 29, 2010, at 8:42:31
In reply to starting Mirapex, posted by inanimate peanut on January 29, 2010, at 0:08:42
Increasing dopamine seems to make sense, based on your symptoms. Good luck and keep us updated on how it's going.
Posted by Phillipa on January 29, 2010, at 11:02:50
In reply to Re: starting Mirapex » inanimate peanut, posted by janejane on January 29, 2010, at 8:42:31
Peanut good time to start a trial bad weather and all. I'm interested in the trials and good info as I know how through you are so babbling you. Love Phillipa
Posted by SLS on January 29, 2010, at 11:15:42
In reply to Re: starting Mirapex » inanimate peanut, posted by janejane on January 29, 2010, at 8:42:31
Hi Peanut.
Be aware that some people experience "sleep attacks" with Mirapex. I don't know if there are any warning signs that this effect will emerge. It doesn't always appear immediately.
Good luck.
- Scott
Posted by inanimate peanut on January 29, 2010, at 13:28:55
In reply to Re: starting Mirapex » janejane, posted by SLS on January 29, 2010, at 11:15:42
What are "sleep attacks"? Like narcolepsy? Thanks for the warning.
Posted by inanimate peanut on January 29, 2010, at 13:32:24
In reply to starting Mirapex, posted by inanimate peanut on January 29, 2010, at 0:08:42
I think I'm going for 1.5-1.75 according to Stanford doc. Most of the studies used smaller dosages than that. I started on .5 last night and will increase by .5 every 5 days. Supposedly this is to avoid nausea, but I didn't have any nausea with it last night anyway. My grandma also takes it for restless legs syndrome and has never had any trouble with nausea.
They have a new generic. I think I am going to insist on name brand until I know whether it works. It would be awful to try a generic and then have it turn out that it was a bad generic and that the name brand would have worked for me!
Posted by Phillipa on January 29, 2010, at 13:40:44
In reply to Re: starting Mirapex, posted by inanimate peanut on January 29, 2010, at 13:32:24
Peanut didn't read all the pages but looks like some good info for you here hope the link works. I saw the RLS there too. Phillipa
Posted by SLS on January 29, 2010, at 13:48:13
In reply to Re: starting Mirapex » SLS, posted by inanimate peanut on January 29, 2010, at 13:28:55
> What are "sleep attacks"? Like narcolepsy? Thanks for the warning.
They are sudden, irresistible attacks of sleep that resemble narcolepsy. They can occur at any dosage, although they are supposedly more likely to occur at higher dosages. One can be hit with a sleep attack while doing just about anything, including driving.
- Scott
Posted by Phillipa on January 29, 2010, at 20:36:41
In reply to Re: starting Mirapex, posted by SLS on January 29, 2010, at 13:48:13
Well that's not good. Love Phillipa
Posted by floatingbridge on February 1, 2010, at 18:58:07
In reply to starting Mirapex, posted by inanimate peanut on January 29, 2010, at 0:08:42
Good luck peanut, I've read positive reports. Please keep us posted!
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