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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 11 of 11. This is the beginning of the thread.
Posted by uncouth on April 13, 2009, at 8:41:30
WEll I just plunked down $600 for a 28-day supply of Riluzole via international sources, based on some encouraging research I read. But now I'm hoping that anyone and everyone who has ever had experience with this drug could share their opinions and experiences in this thread. Also please note your dosage, and any potential side effects.
I'm finishing up my round of acute ECT this week, I'm sick of this disease, I want to kill it even if it costs me $600/month.
Please share Riluzole / Rilutek experiences!!!
-A
Posted by SLS on April 13, 2009, at 12:09:45
In reply to Riluzole - Any and ALL experiences please!, posted by uncouth on April 13, 2009, at 8:41:30
I found riluzole to be without effect.
- Scott
Posted by Phillipa on April 13, 2009, at 12:51:30
In reply to Riluzole - Any and ALL experiences please!, posted by uncouth on April 13, 2009, at 8:41:30
Uncouth you're doing the ECT how's it working is it outpatient? How the med helps. Phillipa
Posted by manic666 on April 13, 2009, at 13:12:05
In reply to Re: Riluzole - Any and ALL experiences please! » uncouth, posted by Phillipa on April 13, 2009, at 12:51:30
good luck my man , thats serious money
Posted by raisinb on April 13, 2009, at 16:10:33
In reply to Riluzole - Any and ALL experiences please!, posted by uncouth on April 13, 2009, at 8:41:30
I hope it turns out well for you. I'll be really interested to hear your experience.
I wonder, if it works for depression, what the mechanism is? I couldn't see that it had any S or N or D RI qualities from the wiki page.
Posted by Zana on April 13, 2009, at 16:31:44
In reply to Riluzole - Any and ALL experiences please!, posted by uncouth on April 13, 2009, at 8:41:30
I'd be really interested to hear about the ECT since my pdoc keeps recommending it. How has it gone for you?
Zana
Posted by bleauberry on April 13, 2009, at 16:48:45
In reply to Riluzole - Any and ALL experiences please!, posted by uncouth on April 13, 2009, at 8:41:30
I know this will draw critics from those who don't agree with me, but I gotta say it.
Forget the ECT already.
If you want to know why, just start a new thread and I'll draw the entire picture, pros and cons alike.
I don't know what Riluzole is, but I want it to be a blessing for you.
Posted by Sigismund on April 13, 2009, at 18:16:10
In reply to Re: Riluzole - Any and ALL experiences please!, posted by bleauberry on April 13, 2009, at 16:48:45
And if the ECT turns out not to have been helpful, don't use it as a rod for your own back.
Posted by uncouth on April 14, 2009, at 16:18:34
In reply to Re: Riluzole - Any and ALL experiences please!, posted by Sigismund on April 13, 2009, at 18:16:10
So far, will be ECT number 15 tomorrow. Minimal effect, slight positive. Significant short term memory loss. Thought I felt a big response after number 13, but it only lasted a day, then I crashed again. Feeling a bit better today though, so crossing fingers. Looks like I have two more this week, then I go down to once a week for 4 weeks.
Please keep me in your thoughts.
Also have on order milnacipran, temgesic, and riluzole. Yes, time to get creative. And currently on Nortriptilyne, Effexor, Namenda, SAMe, Magnesium, Agomelatine, Lithium. Sigh.
Posted by desolationrower on April 14, 2009, at 20:16:48
In reply to Re: Riluzole - Any and ALL experiences please!, posted by uncouth on April 14, 2009, at 16:18:34
wow thats quite a lot of stuff.
-d/r
Posted by uncouth on April 15, 2009, at 19:05:31
In reply to Re: Riluzole - Any and ALL experiences please!, posted by desolationrower on April 14, 2009, at 20:16:48
correction:
Nortriptyline, Tianeptine (just getting through a 20 day supply I have left), Agomelatine, Namenda (during and for a few weeks after the ECT), Lithium, Effexor (tapering down to 0 now that i'm on Nortriptyline), Magnesium Glycinate, SAMe, Geodon, Seroquel for sleep, Dessicated Thyroid 1grain......and have riluzole, milnacipran on order.Lord Jesus I better get well with all of this.
This is the end of the thread.
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