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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 7 of 7. This is the beginning of the thread.
Posted by Lillian Orlando on October 22, 2006, at 18:50:20
Please let me know if you have taken Topamax and had a bad reaction to the medication not listed in the side effects.
Posted by ClearSkies on October 23, 2006, at 6:41:42
In reply to Topamax Bad reactions, posted by Lillian Orlando on October 22, 2006, at 18:50:20
Nope, it made my hair fall out just like the patient information sheet said it might :-(
It was severe enough for me to discontinue Topamax, which worked fine except for that.
CS
Posted by Lillian Orlando on October 23, 2006, at 10:48:04
In reply to Re: Topamax Bad reactions » Lillian Orlando, posted by ClearSkies on October 23, 2006, at 6:41:42
> Nope, it made my hair fall out just like the patient information sheet said it might :-(
> It was severe enough for me to discontinue Topamax, which worked fine except for that.
> CSWhen I took it from mid 2005 thru April 2006 there was no warning on the information sheet or even on their web site about hair loss.
When did you take it?
Lil
Posted by ClearSkies on October 23, 2006, at 15:16:49
In reply to Re: Topamax Bad reactions » ClearSkies, posted by Lillian Orlando on October 23, 2006, at 10:48:04
I think I tried it in January of 2005, and I read the warning about hair loss as a "infrequently reported" side effect on the product website's patrient information.
My hair is fine so I couldn't afford to lose it for very long.
CS
Posted by Lillian Orlando on October 23, 2006, at 16:00:31
In reply to Re: Topamax Bad reactions » Lillian Orlando, posted by ClearSkies on October 23, 2006, at 15:16:49
Which web site do you refer to because the maufacturers web site still does not refer to severe hairloss as a side effect. There are a lot of web sites that do but it isnt theirs. My lawyers even had a nurse check into it and its not listed. by the way I lot 95 % of my hair and since April when I quit injesting this incidious drug I have only grown out three inchs with the help of 5% Rogaine. And while I was on the drug I took a multivitamin, 1000 mg of biotin and a protien suppliment. So I dont think it could have been avoided.
Posted by ClearSkies on October 23, 2006, at 18:48:50
In reply to Re: Topamax Bad reactions, posted by Lillian Orlando on October 23, 2006, at 16:00:31
> Which web site do you refer to because the maufacturers web site still does not refer to severe hairloss as a side effect.
Isn't there mention of it in the PDF file on the site? That's where I read it, it had aleopecia listed as a side effect. And yes, it's the company site I read. As soon as my hair started to shed I told my doctor I couldn't stand to take it.
CS
Posted by ClearSkies on October 23, 2006, at 22:40:22
In reply to Re: Topamax Bad reactions, posted by ClearSkies on October 23, 2006, at 18:48:50
My pdoc had told me when she prescribed the Topamax that hair loss was a possible side effect. So neither of us was surprised when it happened.
Maybe your doctor is ill-informed of all possible side effects?
CS
This is the end of the thread.
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