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Dr. Bob is Robert Hsiung, MD,
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Posted by DeanG on May 19, 2003, at 21:11:28
In reply to Sexual Disfunction of Effexor, posted by Kuschelbär on May 18, 2003, at 15:51:27
Hi K,
I too was so terrified of the addicting nature of Effexor after reading the comments on this thread that I quit after only my first capsule. Whoever says that this drug is not addicting is out of their mind. It's been four days now and for the first three I was in a complete fog with the shakes and shivers and such a migraine that I though my head was going to explode. I believe this drug is not for everyone and intend on calling my doctor first thing tomorrow and requesting something a little less potent.
Here's wishing you all the best,
Dean
Posted by melley on May 20, 2003, at 6:46:05
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
I don't know whether what I am feeling is from the withdrawal from effexor or the adjusting to wellbutrin. I am feeling very rocky. Like motion sickness. Does anyone have any suggestions on ways to keep this feeling at bay?
Posted by Misha on May 20, 2003, at 7:23:57
In reply to Re: Sexual Disfunction of Effexor, posted by DeanG on May 19, 2003, at 21:11:28
I know that there are people out there that would disagree, but in my honest opinion Effexor XR should be pulled from the market and not prescribed again. I am definitely not the only person to say that. Had I known what I know now, after nearly six months of terrible withdrawals, I never would have even considered taking it in the first place. Yes, I did taper off correctly. As said before, for a lucky few it has not caused bad withdrawals, but the percentage scale has too many people on the bad side to dismiss the problems. I do not feel that people who are on Effexor XR right now who have not gone off of it are qualified to dispute the issues of the withdrawal. Those of us who have experienced the sometimes debilitating withdrawals from it are not trying to so much "scare" people into not taking it, but to inform them of the potential risks that doctors either do not know about or are not telling them about. The following is the actual excerpt from the Effexor XR prescribing fact sheet listing the symptoms of discontinuation:
"Reported symptoms include agitation, anorexia, anxiety, confusion, coordination impaired, diarrhea, dizziness, dry mouth, dysphoric mood, fasciculation, fatigue, headaches, hypomania, insomnia, nausea, nervousness, nightmares, seizures, sensory disturbances (including shock-like electrical sensations), somnolence, sweating, tremor, vertigo, and vomiting."
The above is at the very bottom of the paper that comes with every bottle of Effexor XR, but how many of us read that before we starting taking the medication? It is also in the Effexor XR official website, but buried. They do not give any estimation of how long the symptoms may last. For those of you who, like myself, do not know what fasciculation means, here's the definition:"Fasciculation
<neurology, physiology> A small local contraction of muscles, visible through the skin, representing a spontaneous discharge of a number of fibres innervated by a single motor nerve filament."
There's the information that doctors should be providing their patients with. I had discontinued taking Effexor XR due to the bad side effects that did not go away while I was on it, such as insomnia/night sweats, anorexia and complete constipation just to name a few. Unfortunately laxatives did not help.People deserve all of the facts on any medication their doctor prescribes to them. Doctors tell us way too little the majority of the time. I apologize if this is disturbing to some of you, but I feel it is necessary.
Misha
Posted by Napaba on May 20, 2003, at 10:11:19
In reply to Re: Sexual Disfunction of Effexor, posted by waterlily on May 19, 2003, at 14:51:54
I've been on Effexor for 4 months. I still have sweats daily as well as many other side effects. Some went away, but they seemed to be replaced with new side effects, such as severe joint pain and headaches.
> Find a different drug. Effexor isn't worth it.
>
> I've tried Zoloft, Paxil, Prozac, imipramine, Serzone, Buspar, and Wellbutrin. None has tackled my anxiety as well as Effexor.
>
> > I started taking 37.5 mg of Effexor 3 days ago, and after reading the thread about side effects/withdrawals I am scared to death to take it any longer.
> > >
> > > I am more concerned about my ability to achieve an erection (which I currently have no trouble with) and orgasm (ditto).
> > >
> > > Also, I work in a hospital and don't need tremors or sweats.
> > >
> > > Any comments?
> > >
> > > Thanks
> > >
> > > K
> >
> >
> I think that if you haven't tried other medications, it might be a good idea to give them a chance. However, as I stated above, I've tried many of them and Effexor works best for me. The sexual side effects are a problem at the 150 mg that I'm taking, but not so much of a problem that they outweigh the benefits. You mentioned tremors and sweats. It's possible that they will go away after you've been on the medication for a few weeks, should you decide to give Effexor a chance. I had nausea, headaches, sweating, etc. for the first few days on Effexor, but they went away. Similarly, when I started Serzone I had short-term memory problems, but they went away after a few weeks on the medication.
>
Posted by jtc on May 20, 2003, at 10:19:16
In reply to need help for withdrawal symptoms, posted by melley on May 20, 2003, at 6:46:05
> I don't know whether what I am feeling is from the withdrawal from effexor or the adjusting to wellbutrin. I am feeling very rocky. Like motion sickness. Does anyone have any suggestions on ways to keep this feeling at bay?
Hi, I have been off Effexor XR for about 2 months now. I read in an earlier posting that perhaps Benadryl will help with the dizziness. Good luck to you and keep us posted. jc
Posted by Napaba on May 20, 2003, at 10:26:03
In reply to Re: Sexual Disfunction of Effexor, posted by Misha on May 20, 2003, at 7:23:57
I totally agree Effexor should be taken off the market.
My doctor told me there were only three possible side effect, he also said he hated to tell people the three, because then they would be looking for them and feel they had them. The three were- decreased sexual desire, blurred vision that would go away after the first couple of weeks (my eye site is now so bad I have to wear glasses, I only wore them before Effexor when driving or at the movies, my persciption doubled)and nausea. I think he missed another 25 that I personnally experience, which make the three he told me about look like a walk in the park.
I know that there are people out there that
would disagree, but in my honest opinion Effexor XR should be pulled from the market and not prescribed again. I am definitely not the only person to say that. Had I known what I know now, after nearly six months of terrible withdrawals, I never would have even considered taking it in the first place. Yes, I did taper off correctly. As said before, for a lucky few it has not caused bad withdrawals, but the percentage scale has too many people on the bad side to dismiss the problems. I do not feel that people who are on Effexor XR right now who have not gone off of it are qualified to dispute the issues of the withdrawal. Those of us who have experienced the sometimes debilitating withdrawals from it are not trying to so much "scare" people into not taking it, but to inform them of the potential risks that doctors either do not know about or are not telling them about. The following is the actual excerpt from the Effexor XR prescribing fact sheet listing the symptoms of discontinuation:
>
> "Reported symptoms include agitation, anorexia, anxiety, confusion, coordination impaired, diarrhea, dizziness, dry mouth, dysphoric mood, fasciculation, fatigue, headaches, hypomania, insomnia, nausea, nervousness, nightmares, seizures, sensory disturbances (including shock-like electrical sensations), somnolence, sweating, tremor, vertigo, and vomiting."
>
>
> The above is at the very bottom of the paper that comes with every bottle of Effexor XR, but how many of us read that before we starting taking the medication? It is also in the Effexor XR official website, but buried. They do not give any estimation of how long the symptoms may last. For those of you who, like myself, do not know what fasciculation means, here's the definition:
>
> "Fasciculation
> <neurology, physiology> A small local contraction of muscles, visible through the skin, representing a spontaneous discharge of a number of fibres innervated by a single motor nerve filament."
>
>
> There's the information that doctors should be providing their patients with. I had discontinued taking Effexor XR due to the bad side effects that did not go away while I was on it, such as insomnia/night sweats, anorexia and complete constipation just to name a few. Unfortunately laxatives did not help.
>
> People deserve all of the facts on any medication their doctor prescribes to them. Doctors tell us way too little the majority of the time. I apologize if this is disturbing to some of you, but I feel it is necessary.
>
>
> Misha
Posted by Belle Rose on May 20, 2003, at 11:17:12
In reply to Re: Sexual Disfunction of Effexor, posted by Misha on May 20, 2003, at 7:23:57
I couldn't agree more that Effexor should be taken off of the market. I am 45 days off of Effexor and although the constipation immediately subsided, I went through 14 horrid days of nausea, shaking, extremely sensitive to sounds and smells, brain shocks (they were the worse), agitation, wanted to pull my fingers out of the joints. The symptoms day by day became more tolerable. I still have blurred vision and extreme joint pain, feeling like someone beat me across the torso with a bat. Mentally, I feel great with no depression. I spent a week being very angry that for so many years, I was made to feel weak or "crazy" when I described these symptoms to my physician. Maybe only a small percentage suffer these horrid symptoms, but we should not be dismissed.
In addition, Effexor XR has not been on the market for as long as the other mood stabilizers so there probably isn't alot of data regarding withdrawal. I believe there are alot of people that simply can't get off of it.
Posted by Kuschelbär on May 20, 2003, at 11:26:01
In reply to Re: Sexual Disfunction of Effexor » Misha, posted by Napaba on May 20, 2003, at 10:26:03
After only four days on the 37.5 mg a day strength capsule, I decided to stop, but I did notice the constipation, blurred vision, sweats (last night at work I had to change scrubs), tremors and even a mild lack of sexual desire when I saw my SO at work (and this is VERY significant for me!).
I talked to one of the ER doctors who told me "Whatever drug you use as an anti-depressant is going to have a list of side effects that include the ones you're experiencing. They HAVE to list those! Even if someone farts, they have to list that!"
It cost me 25 bucks as a copay on my insurance company, but it was worth it to find out that it ISN'T worth it! I am 53, and my SO and I enjoy a very healthy sexual lifestyle. Yes, I have my downs, but I think I'll go back to the St. John's Wort and make some other adjustments. If any of you have recommendations as to another NATURAL mood enhancer, I'd be happy to read about them here.
Thanks for your responses!
K
Posted by DeanG on May 20, 2003, at 11:46:35
In reply to Re: Sexual Disfunction of Effexor, posted by Misha on May 20, 2003, at 7:23:57
Hi Misha,
If it was not for this site and concerned people like yourself I'd probably be naively following my doctor's instructions and blissfully medicating myself with Effexor. Unfortunately, it took a 5 year addiction to Ativan, prescribed by my former family doctor to cure a nagging back condition, to open my eyes and make me leery of the ethics of the medical profession. Although their intentions may be genuine let's face it without experiencing first hand the serious side effects and withdrawals associated with any drug there's absolutely no reason for them to be reluctant or averse to distributing them as freely and as generously as they do. Believe it or not but after a mere half hour of a routine physical examination and a few questions here and there my new family doctor was able to deduce that I was bi-polar, had a very obsessive compulsive personality, somewhat manic depressive and overly anxious and high strung. And the miracle cure, none other than Effexor. I was delighted and all too eager to start treatment but I did have one stipulation, a very simple one that I was unequivocally adamant and unmistakably clear on and that was that the drug was in no way addicting which the doctor without any hesitation whatsoever clearly assured me it wasn't. My previous family doctor told me the same thing when he suggested a mild muscle relaxant called Ativan would do wonders for my nagging back. Where was he five years later when I was going through detox? As you, Misha, after going through a living hell, I felt that Ativan should immediatley be pulled off the market, the sooner the better. But that's not to say that certain people don't benefit from these two or any other drug. Although I swore off Effexor after only one capsule just four days ago, I'm now contemplating perhaps reducing the dosage to a tiny fraction of what was prescribed to circumvent the potential and obvious side effects. But my gut feel and past experience says dump the damn pills down the toilet. If only I could find a professional who knows what he's doing instead of trying to come up with a solution on my own. I know I have a chemical imbalance. But are pills the only cure? There have to be other alternatives.
Dean
Posted by melley on May 20, 2003, at 17:34:23
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
I feel grotesque. Do I remember someone saying something about dramamine working?
I can't imagine going through weeks of this! This is wretched.
mel
Posted by dde on May 20, 2003, at 21:30:19
In reply to Re: Sexual Disfunction of Effexor, posted by DeanG on May 20, 2003, at 11:46:35
> Hi Misha,
>
> If it was not for this site and concerned people like yourself I'd probably be naively following my doctor's instructions and blissfully medicating myself with Effexor. Unfortunately, it took a 5 year addiction to Ativan, prescribed by my former family doctor to cure a nagging back condition, to open my eyes and make me leery of the ethics of the medical profession. Although their intentions may be genuine let's face it without experiencing first hand the serious side effects and withdrawals associated with any drug there's absolutely no reason for them to be reluctant or averse to distributing them as freely and as generously as they do. Believe it or not but after a mere half hour of a routine physical examination and a few questions here and there my new family doctor was able to deduce that I was bi-polar, had a very obsessive compulsive personality, somewhat manic depressive and overly anxious and high strung. And the miracle cure, none other than Effexor. I was delighted and all too eager to start treatment but I did have one stipulation, a very simple one that I was unequivocally adamant and unmistakably clear on and that was that the drug was in no way addicting which the doctor without any hesitation whatsoever clearly assured me it wasn't. My previous family doctor told me the same thing when he suggested a mild muscle relaxant called Ativan would do wonders for my nagging back. Where was he five years later when I was going through detox? As you, Misha, after going through a living hell, I felt that Ativan should immediatley be pulled off the market, the sooner the better. But that's not to say that certain people don't benefit from these two or any other drug. Although I swore off Effexor after only one capsule just four days ago, I'm now contemplating perhaps reducing the dosage to a tiny fraction of what was prescribed to circumvent the potential and obvious side effects. But my gut feel and past experience says dump the damn pills down the toilet. If only I could find a professional who knows what he's doing instead of trying to come up with a solution on my own. I know I have a chemical imbalance. But are pills the only cure? There have to be other alternatives.
>
> Dean
Dean,My daughter had better luck by going into a psychiatric facility, being treated one on one on a daily basis for 9 days than she did going to a psychiatrist outside. The doc at the hospital said that it is a fallacy that these meds will take weeks to get enough into your system to start doing some good. He said you will know in a matter of 2 days if your system is going to handle and adjust. He also said she would be on this med (lexapro) for a year, then taper off; and if she goes back into depression she will have to go back on and stay on for life, as the chances of future episode would increase from 50/50 to 95%! She is doing terrific now. The reality is this: mental illness doesn't just "go away" after a while like a virus or bacterial infection. The body stops making or doesn't make enough of certain chemicals, and nothing we do can start it back up again. All that can be done is adding to make up for the lack. Effexor is not good stuff. If you have brain zaps in the first days of taking it, get off of it. Only my best regards, dde
Posted by Russell on May 21, 2003, at 1:32:38
In reply to Brain Shivers, posted by dde on May 20, 2003, at 21:30:19
I quit Paxil "cold-turkey" last October - after 7 years of usage. It was an accident, I was on a business trip out of country - and ran out!
It was miserable - but research indicated that Dramnamine (sp) could help. BOY DID IT! I took two a day, morning and night, and the "Brain Zapps" were practically non-existant except for the first few minutes in the morning before the Dram... took effect.
Try it - I have been Paxil-Clean since October - but not symptom clean - worry and anxiety are in total control of my life except for an occasional Xanax...Hope this helps
Posted by melley on May 21, 2003, at 6:20:17
In reply to Re: Brain Shivers, posted by Russell on May 21, 2003, at 1:32:38
> I quit Paxil "cold-turkey" last October - after 7 years of usage. It was an accident, I was on a business trip out of country - and ran out!
>
> It was miserable - but research indicated that Dramnamine (sp) could help. BOY DID IT! I took two a day, morning and night, and the "Brain Zapps" were practically non-existant except for the first few minutes in the morning before the Dram... took effect.
> Try it - I have been Paxil-Clean since October - but not symptom clean - worry and anxiety are in total control of my life except for an occasional Xanax...
>
> Hope this helpsDid you have nausea and dizzines going off the paxil and did the dramamine help with that? I feel a bit better today so hopefully it won't worsen over the course of the day.
thanks,
Melissa
Posted by Russell on May 21, 2003, at 14:03:47
In reply to Re: Brain Shivers » Russell, posted by melley on May 21, 2003, at 6:20:17
I had all the classic symptoms reported on this board. The dramamine reduced them to a "managable" level. Hang in there - you will get better.
Posted by DeanG on May 21, 2003, at 14:38:05
In reply to Brain Shivers, posted by dde on May 20, 2003, at 21:30:19
Hi DDE,
I am so glad that things are looking up for your daughter. And thank you kindly for the encouragement and advice. As far as what my next move will be, I've still not decided. The doctor said he'd phone and set up a referral with a psychiatrist but still no call and after all the horror stories I've read I'm no longer so sure I want to pursue this. It might just be easier to go on living with my problems as I have all these years rather than have some shrink place a label on me and get me hooked on his drug of choice.
Thanks again for your concern.
Dean
My daughter had better luck by going into a psychiatric facility, being treated one on one on a daily basis for 9 days than she did going to a psychiatrist outside. The doc at the hospital said that it is a fallacy that these meds will take weeks to get enough into your system to start doing some good. He said you will know in a matter of 2 days if your system is going to handle and adjust. He also said she would be on this med (lexapro) for a year, then taper off; and if she goes back into depression she will have to go back on and stay on for life, as the chances of future episode would increase from 50/50 to 95%! She is doing terrific now. The reality is this: mental illness doesn't just "go away" after a while like a virus or bacterial infection. The body stops making or doesn't make enough of certain chemicals, and nothing we do can start it back up again. All that can be done is adding to make up for the lack. Effexor is not good stuff. If you have brain zaps in the first days of taking it, get off of it. Only my best regards, dde
Posted by Misha on May 21, 2003, at 18:10:53
In reply to Brain Shivers, posted by Russell on May 21, 2003, at 14:03:47
> I had all the classic symptoms reported on this board. The dramamine reduced them to a "managable" level. Hang in there - you will get better.
My doctor prescribed me Meclizine HCL, 25mg at 3 times daily and it worked better than Dramamine. One thing that makes it help more is that you can take up to 3 per day, unlike Dramamine.Misha
Posted by Elliot on May 21, 2003, at 21:52:10
In reply to Re: Sexual Disfunction of Effexor, posted by Misha on May 20, 2003, at 7:23:57
Anyone find Effexor the answer to their depression? I'm trying to decide whether or not to try an SSRI like Effexor or Lexapro or not medicate. I have a lot of anxiety and would like a med that will help with that
Posted by SpaceMom on May 21, 2003, at 22:08:51
In reply to Re: Effexor Q's--PLEASE ANSWER, posted by melley on April 9, 2003, at 18:50:42
Hello...Thank God not alone.
My problem is the side effects, so I have been giving up...starting again...over and over without telling the Doctor. Feel the need to drink, not my style, social yes, but this different. I think I need mental hospital!!!!Crazy????
Learned alot from you guys!
Thanks...Help!!
Sorry this is so long.
~Me
Posted by belle rose on May 22, 2003, at 1:11:11
In reply to Re: Sexual Disfunction of Effexor, posted by Elliot on May 21, 2003, at 21:52:10
I suggest any drug other than Effexor. The withdrawal side effects are just too severe. Zoloft is indicated to cover a broad spectrum of depressions/anxiety. I would look to Effexor at a last resort. Belle Rose
Posted by melley on May 22, 2003, at 6:31:07
In reply to Brain Shivers, posted by Russell on May 21, 2003, at 14:03:47
> I had all the classic symptoms reported on this board. The dramamine reduced them to a "managable" level. Hang in there - you will get better.
Thank you for this suggestion. I will get some today. Yesterday I felt so bad I called my dr only to discover that he is gone til tue. The covering dr said to go back up to 150 and continue with 150 of wellbutrin. I didn't want to undo everything I had done so far so I too a 75mg and a 37.5 mg one today along with the wellbutrin. Just have to muddle through til Tues. Thanks for the tip. I can't wait to be off this stuff. And I think it is best to use this as the drug of last resort. Because of this torture. That infereres with your daily life.
Mel
Posted by Misha on May 22, 2003, at 10:56:10
In reply to Re: Sexual Disfunction of Effexor, posted by Elliot on May 21, 2003, at 21:52:10
> Anyone find Effexor the answer to their depression? I'm trying to decide whether or not to try an SSRI like Effexor or Lexapro or not medicate. I have a lot of anxiety and would like a med that will help with that
Paxil is one of the best for anxiety. I was on it for nearly a year and I definately did not have the anxiety that I had prior to going on it. Paxil CR is supposed to be good. It hadn't come out yet when I was on it.Misha
Posted by Misha on May 22, 2003, at 10:59:51
In reply to Re: Sexual Disfunction of Effexor, posted by belle rose on May 22, 2003, at 1:11:11
> I suggest any drug other than Effexor. The withdrawal side effects are just too severe. Zoloft is indicated to cover a broad spectrum of depressions/anxiety. I would look to Effexor at a last resort. Belle Rose
My mom was on Zoloft and really liked it. But then, my mom was changed to Effexor XR and went off of it after a few months with almost no withdrawal. Too bad our chemistry is not same, ha? I was the one with the six months of hellish withdrawals. Oh, well. Lol!Misha
Posted by peabo on May 22, 2003, at 14:18:34
In reply to Re: Sexual Disfunction of Effexor, posted by DeanG on May 20, 2003, at 11:46:35
Hello:
I'm new here, and new to Effexor, but not new to depression. I'm bipolar, with the depressive side definitely dominant, anxiety not far behind. I've been on Lithium and little else since '91.
I started Effexor about a month ago, ramping up from 37.5 mg the first two weeks, then 'graduating' to 75 mg. I've had noticeable, but minimal side effects, moreso at 75 than 37.5. I think I would actually be more comfortable maintaining at 37.5 for the time being, but...
The problem is I have a lot of 75 mg samples... and no 37.5's. I have read in some places, it's not a great idea to cut the capsules... other places, that if you do cut them, you should put the halves in empty gel caps.
Can anybody tell me definitively whether it's OK (i.e. safe, _not_ foolhardy) to go ahead and take the open half caps?
I've been lurking here awhile, and appreciate the resource this site offers. I 'got here' before I even started Effexor, so my eyes were open when I took the plunge. I'm encouraged by those who say they've found more energy (which I'm sorely lacking)... somewhat daunted by the horror stories, but determined to see what an eight week course (at least) might bring.
Advice for a novice, please...
Thanks Much.
peabo
-----
Posted by Jack Smith on May 22, 2003, at 15:22:19
In reply to Newcomer..., posted by peabo on May 22, 2003, at 14:18:34
> I'm new here, and new to Effexor, but not new to depression. I'm bipolar, with the depressive side definitely dominant, anxiety not far behind. I've been on Lithium and little else since '91.Did Lithium alone control your depression?
> The problem is I have a lot of 75 mg samples... and no 37.5's. I have read in some places, it's not a great idea to cut the capsules... other places, that if you do cut them, you should put the halves in empty gel caps.There is no problem opening up the caps and splitting the contents in half. You can either put them back in the gel cap or you can take them directly, maybe take a spoon of peanut butter and sprinkle them on it. then put it in your mouth and down it with water.
JACK
Posted by peabo on May 23, 2003, at 8:54:54
In reply to Newcomer..., posted by peabo on May 22, 2003, at 14:18:34
Jack:
Thanks for the advisory re: open cap Effexor.
>Did Lithium alone control your depression?
The short answer is no...
The long answer is that I first got manic in '91, and prior to that, despite acknowledged intervals of depression and indecision, never imagined I had a problem greater than the next fool's. Meanwhile, I was self medicating with alcohol and pot... a practice which continues to this day. I've (briefly) tried Welbutrin, Zoloft, Paxil, Celexa, and Neurontin... but never allowed any of them enough time to work... don't quite know why.
Though my depression has been pervasive, it has also been subtle... carrying me down gradually, rather than suddenly. And I guess I've always been reluctant to own up to it or take an additional med to deal with it.
Lithium appears to have successfully controlled the mania... and I believe it helps some with anxiety (though I still take about 25 mg of chlorpromazine a day to stifle what the lithium doesn't address), but I can't say I recommend it (lithium) as a highly effective anti-depressant.
(This is all "for what it's worth".)
Regards,
peabo
-----
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