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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 7449 to 7473 of 10407. Go back in thread:
Posted by Jubilee on October 24, 2004, at 15:00:28
In reply to Re: Anyone had success? » corafree, posted by S.Bartel on October 22, 2004, at 3:38:52
Oh and answer to prayer my God knows my heart and here I have been trying to find a friend on the MPD site,, yes I mean Multiple Per, site for some God Fearing loving new friend , and they don't want to hear about God , who is our only hope in MPD, Liver desease, grief, and ant trial.
I also lost my 27 year old son this last Feb. from an accidental overdose, and miss him terribly , while he's having a wooping good time with the Lord.
anyway, I happened to come back here when I saw your reply Sammi Bartel on my E mail and what a blessing.
And miss Corafree , who also loves God, I find,. And on top of that a fellow friend with her 6 lb poodle friend, and God who gives all life meaning and Hope for tomarroow!!!Yes , I have been praying for you Sammi, and God has healed me from Incurable Gonerea, and given me 4 babies, and healed a bad epideral site , a concusion, two numb legs from my 2 buldging disks, so I don't fall down anymore and no wheel chair for me yet , Praise his awesome name, not to mention deliverance from herion addiction and alcoholicism at 23 years old!, and even Mpd of 16 personalities and I am now one.I am 52 now .
The Lord just told me to look up Fibromialgia 2 weeks ago and now I know what the chronic pain I have lived with since 1983 is about and the pain is all over my body now , but I rejoice in that he is not finished with me yet, and has blessed me with pain meds since 2000 for bulging disks on Methadone which doesnt mess up my head, thank God. I walked out of the fog of MPD on Aug, 31st this year and I am "one" again, after recovering from much exaustion for a month from integration and fusion.!.
I have been blessed with a christian longterm roomate and friend who is also recovering from childhood abuse issues and we are growing in the joy of the Lord daily.!! Used to be married but now platonic.
Sammi,
I take anti nausea pills for when my pain makes me nauseaus, and wondering if they help you at all my friend. ?? It takes great courage to go throu what you are suffering and I am asking the Lord daily for a brand new liver for you ,sis,since I read your first site so you can enjoy your grandkids also and the beautiful days with your beloved poodle and friends..
Hey...Sammi , we are awaiting a new poodle baby girl, from a breeding that our "Stanley John "did in Aug.. and her name will be Jubilee!! I will breed dogs again for fun with my babies, now that I know I'm, not ending up in a wheel chair. Very excited, and ready by December to bring home if she is the right one. Might have to wait for next breeding, and get one in the summer.. puppies smell like gravy and I can't wait. We all should be living life like it's our last day, should we not???Cora...I too lost my people skills at 31 ,as I have been hiding out as a Multiple personality and found I didn't fit in the church community anymore. I kept showing up after my diagnosis in 89, but felt so out of place. # years ago I started watching alot of TBN Christian TV and met a Pastor Paula White, three years back ,and God strarted to heal my fragmented mind through a woman from a background of severe abuse also. God knows how to reach us and feed us and nuture us when we head for the emotional wilderness like I did. Aparently my people skills suck as I have recieved nothing but rejection on the MPD web site. MPD's are as a rule ,real unreliable friends , that all dump you sooner or later I found out by experience over the years . Aparently I didn't learn my lesson. I just came crawling back to this babble board , bruised and bleeding to find you and Sammi again. Think I'll stick around.
On to the subject of Effexor XR that I have been going off since the first of AUG. and am now down to, less than 2 -37's a day, I am happy to say that "slow" has worked well for me.( over all time it's 4 months starting from 300mgs a day) I have been an insomniac for 4 years now ,due to effexor and the last 2 nights I have gone to bed like a normal person without a strong sleeping aid called seriquil, for 5 days now. Seriquil causes jerking of limbs which have left me when I go off it, but is dangerous , but I was so bad I had to have something very strong to sleep. I have delt with hypomania , agitation, and anxioty for 4 years from effexor, along with many other affects like vision loss, but I am blessed because I am almost free.
Sammi , I am going to get you on another prayer line and call Life outreach 1-800 line for prayer for you a new liver, and I have gotten many answers to prayer there on TBN . I suggest checking out a christian chat line where you can get others to pray and believe with you.
Which one of you have Fibromialgia? was it Cora?
Ill, go back and check and come back. I don't get out much due to physical disabilities but I can scope Gods new beauties and mercy every morning from my fromt pourch when I let Stanley out. I have trees and privacy the Lord has blessed us with, Just got some memory foam for my body pain and wake up in less pain, plus started on alpha lipoic acid, and zink, and B12, and potassium and magnissium and malic acid. Has been helping . I bought a bunch of 5$ pillows and made my chair more comfortable for watching TV and reading. . Pamper your bod. God Bless, and hope I cheered your day!!! Jubilee.
Posted by Jubilee on October 24, 2004, at 15:44:33
In reply to Re: Brain Shivers Trying to Get off Effexor! HELP! » nsr, posted by S.Bartel on October 22, 2004, at 20:15:31
I am 52 , and have learned much. and was formally diagnoses with MPD in 1989 but with DEPRESSION in 1987 and it was Chronic and horrible doom and gloom. I was in and out of suisidal thinking and hopelessness and had muscel spasms also that elivil also eased the pain of, as it has a chronic pain killer in it also. I consider it a wonder drug and I have been on many drugs in my day. . . So they put me on elivil(or amatripaline or pamalor, is same thing.)a safe good anti-depressant discovered in 52 ,the year I was born. It was a med discovered for TB patients and they were comming out of deep depressions.!!! It was a Godsend for me and I was on it for 13 years and it worked great , except for my wieght problem which never got over 50 lbs. Compared to all the new drugs they came out with in late 80's to counteract the wieght problems, first being prozac and then Zoloft, the lists go on, and its all about money honey, I always went back to elivil ,because I would rather be chubby then in the gloom of depression!!! There were no serious or dangerous side-effects from elivil and they don't like to order it now , because they get all these costly free samples that suck in patients BUT the dr can hand them out for free, at first with all these new wonder drugs ,all about money!!!. Oh, yea, for me it caused also dry mouth, because I was so depressed I had to take the highest amount of 250 mgs a night, so I chewed alot of gum from dry mouth, but big deal. You must resist sweets , but at least you are not posioning your body with thses SSRI's . Prozac made me manic and I slept 4 hours a night and lost wieght. I had aggitated depression and you can also take elivil during the day as it has a non addictive seditive in it.So I would always go back to good ol elivil. I believe it is the safest out there and it makes you happy!! and too much will even make you a bit manic ,or over happy. Hows that for a Bad side affect???? Ha. Take this from an old timer. If you cant cope with depression, request elivil, come out of darkness very fast , and live life to its fullest without endangering your body. This has been my experience ,strength and hope, for those who only have depression to look forward to after comming off effexor and the new dangerous drugs. I believe you can start it while taking effexor but it's toxic with prozac, but worth the wait.
How did I overcome depression????God through Christian TV finally delivered me from the depths of depression 2 years back ,(and I don't go to church) but I was still stuck on effexor xr, because of the dangerous side affects of going off. . You too can come down real slow . Pray and God will give you wisdom too. Even you athiests as God loves you so Just pray. God Bless , Jubilee
Posted by dancingstar on October 24, 2004, at 18:47:45
In reply to Life after effexor-Depression??? to Bartel and Co, posted by Jubilee on October 24, 2004, at 15:44:33
It's now been three and a half weeks for me, and I was still having a tough time a couple of days ago. Though I almost never got headaches, for over two days, I had what must have been a migraine. That combined with the almost month-long stomach problems was beginning to give me the psych problems that I didn't originally have ;-).
Deperation drove me to try a couple of things that I hadn't yet. First, I bought a child's dosage of Benadryl. With fibromyalgia/chronic fatigue I was afraid to take the Benadryl, but it works so very well. It knocked out the headache and nausea instantly, and I could go on with my life. The smallest possible dose works, and I take more when I need it. "It's a miracle." Honest. Desperate times call for desperate measures.
SamE - I'll be darn. Killed the brain fog better than anything else.
I was talking with a friend of mine that also studies nutrition, but she's been doing it more recently than I have and she's been taking this stuff daily. When we were growing up, her family owned a local health food store; so I should have known that she'd come up with something great. I took it yesterday and today, and my head is pretty happy.
Whey - I added some whey protein powder to my oatmeal in the a.m. cause it does make sense to me that the Effexor byproducts bind to the whey and can be swept away and out of the body.
When I told my friend what I was doing about w/drawing from the Effexor cold turkey, she commented that I probably felt as good as I do (as bad as it seemed to me) because of all of the supplements that I have been taking and the kinds of foods that I've been eating. I do think that she is right. It could be so much worse. These products, some of them, the SamE 400 mg, the Omega3, the 5-HTP, CoQ10-100, the Enzymatic Therapy from Fatigued to Fantastic, the Adrenal Support, EmergenC, an AM and PM vitamin, tons of water, oats, a little bit of salmon and brown rice and organic veggies and the smallest amount of fresh fruit, an apple may be all I can tolerate; but this is enormously expensive. If someone doesn't know enough to do or take these things and to get some exercise if you aren't too sick, how can people get through this with their bodies and minds intact? Oh, yeah, and the most important thing of all: enough time to rest and let your body heal.
You know, I went out last night, and I was around many others that are supposed to be my age, maybe even several years younger than I am. It really shows when people don't respect their bodies and minds. I think that there is a lot of research that has been done which shows that while genetics comes into play to some degree with regard to our health, there is a tremendous amount that we can do to influence the way we look and feel throughout our lifetime. It seems like such a waste to me to see how people ruin perfect health by lifestyle choices that destroy it. Maybe that's one of the reasons that I get so grumpy with the makers of these drugs who continue to grow huge profits by incorrectly marketing drugs to the wrong patients therby posing a serious risk to our health. How dare they? It is so very precious.
By the way, if anyone cares, this is the kind of thing that "they" are trying to stop you from being allowed to sue for, not that I was planning on it anyway.
Posted by corafree on October 24, 2004, at 20:59:02
In reply to Life after effexor-Depression??? to Bartel and Co, posted by Jubilee on October 24, 2004, at 15:44:33
Jubilee: I've always had thoughts about Elavil in the back of my mind. I knew many who had lost spouses and began taking it. Ya' know, if Eff-XR starts to hurt me, I just might take your advice and ask about good ole' Elavil. your friend in the internet waiting room, cf
Posted by dancingstar on October 26, 2004, at 12:35:38
In reply to Re: Life after effexor-Depression??? to Bartel and Co » Jubilee, posted by corafree on October 24, 2004, at 20:59:02
Please, please, please do not take EFFEXOR or EFFEXOR XR if you have another alternative as I'm not convinced that it is safe to stop taking this drug.
After four weeks, I still have the runs, but I'm basically free of its grip. My stomach feels as though I have a hole in it, but I can finally breathe again, and I can concentrate, and I don't have a headache. I'm sure that it is only because I am somewhat sophisticated when it comes to alternative medicine and not completely completely financially broke that I've done this well. It could have been very much worse as only last week I didn't feel as though I would live, physically, because I was still so weak.
Last night for the first time in almost a month I went to Billy Blanks' and worked out. I wasn't 100 percent, but it still felt so good to work out again. Even though I was afraid it would really wear me out, I was able to get up and out of bed at 7:30 this morning. With fibromyalgia on a rainy morning...that means I'm better :-).
I've spent hundreds of dollars getting myself out of this Effexor nightmare. Since it was prescribed to me by an incompetent family practice doctor that also had the oxycontin drug rep talk me into taking that drug at another time, I have to beg anyone that doesn't absolutely have to take Effexor to please not take this drug as the withdrawal is so horrid as to not be worth any potential good that this drug can do. There must be better options, and under any circumstances if you are going to take it, make sure that it is prescribed by a doctor of psychiatry or pharmacology that completely understands what they are getting you into. In the end, though, it is up to you as it is your body. If I knew then what I know now, I would never have taken this vile drug. It did me nothing but harm. I didn't need it in the first place, and I didn't need the scum that allowed it to be prescribed to me. (Sorry that I feel so strongly, but I have had to go through two serious withdrawals because of things that he should not have prescribed, and he later denied prescribing them in my medical records. I guess he knew it wasn't such a brilliant idea. And yes, I switched doctors :-))
Anyway, I forgot how amazing it feels to feel good!! So if you do feel good, take just a moment to enjoy it :-) Best of luck to everyone!
Posted by PoohBear on October 26, 2004, at 12:42:54
In reply to I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING, posted by dancingstar on October 26, 2004, at 12:35:38
> Please, please, please do not take EFFEXOR or EFFEXOR XR if you have another alternative as I'm not convinced that it is safe to stop taking this drug.<
Please, please, please...
This is your personal experience, but many thousands are being helped by this drug, myself included. I am glad that you're free of Effexor and it's cessation effects, as that was your goal, but for many, this has been a truly life-saving medication.
As for something being done about marketing, you're right, more of a warning should accompany dispensing of Effexor.
Tony
Posted by Shyla on October 26, 2004, at 13:08:35
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING, posted by PoohBear on October 26, 2004, at 12:42:54
> > Please, please, please do not take EFFEXOR or EFFEXOR XR if you have another alternative as I'm not convinced that it is safe to stop taking this drug.<
>
> Please, please, please...
>
> This is your personal experience, but many thousands are being helped by this drug, myself included. I am glad that you're free of Effexor and it's cessation effects, as that was your goal, but for many, this has been a truly life-saving medication.
>
> As for something being done about marketing, you're right, more of a warning should accompany dispensing of Effexor.
>
> TonyHear, hear Tony! What a resonable response. Effexor XR has been working great for me too. What may work for one, may not for another, and if someone experiences bad affects from a drug, the same may not happen to another. I try to keep an open mind to all possibilities.
Posted by corafree on October 26, 2004, at 20:56:00
In reply to I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING, posted by dancingstar on October 26, 2004, at 12:35:38
I've been on it since April. My father (my best friend and mentor) passed away 2mos before. I was in bad, bad shape, and actually still am in bad shape. Pls share the alternative meds which helped w/ your withdrawal, with me. It could be a life-saving possibility. I'm glad you're feeling so well, and that you still take the time to think of those who aren't; appreciated! cf
> Please, please, please do not take EFFEXOR or EFFEXOR XR if you have another alternative as I'm not convinced that it is safe to stop taking this drug.
>
> After four weeks, I still have the runs, but I'm basically free of its grip. My stomach feels as though I have a hole in it, but I can finally breathe again, and I can concentrate, and I don't have a headache. I'm sure that it is only because I am somewhat sophisticated when it comes to alternative medicine and not completely completely financially broke that I've done this well. It could have been very much worse as only last week I didn't feel as though I would live, physically, because I was still so weak.
>
> Last night for the first time in almost a month I went to Billy Blanks' and worked out. I wasn't 100 percent, but it still felt so good to work out again. Even though I was afraid it would really wear me out, I was able to get up and out of bed at 7:30 this morning. With fibromyalgia on a rainy morning...that means I'm better :-).
>
> I've spent hundreds of dollars getting myself out of this Effexor nightmare. Since it was prescribed to me by an incompetent family practice doctor that also had the oxycontin drug rep talk me into taking that drug at another time, I have to beg anyone that doesn't absolutely have to take Effexor to please not take this drug as the withdrawal is so horrid as to not be worth any potential good that this drug can do. There must be better options, and under any circumstances if you are going to take it, make sure that it is prescribed by a doctor of psychiatry or pharmacology that completely understands what they are getting you into. In the end, though, it is up to you as it is your body. If I knew then what I know now, I would never have taken this vile drug. It did me nothing but harm. I didn't need it in the first place, and I didn't need the scum that allowed it to be prescribed to me. (Sorry that I feel so strongly, but I have had to go through two serious withdrawals because of things that he should not have prescribed, and he later denied prescribing them in my medical records. I guess he knew it wasn't such a brilliant idea. And yes, I switched doctors :-))
>
> Anyway, I forgot how amazing it feels to feel good!! So if you do feel good, take just a moment to enjoy it :-) Best of luck to everyone!
Posted by dancingstar on October 27, 2004, at 0:21:39
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING, posted by PoohBear on October 26, 2004, at 12:42:54
You will remember my post if you ever try to stop taking Effexor, and then you will know why I wrote it.
This is not a drug that should be taken unless it is taken as a last resort. While taking the drug, I didn't know that it was doing any damage to my body. I would never have known if some little glimmer of intuition told me that I didn't need it and shouldn't be taking it.
I have now dropped nine pounds and for the first time in three years made it through an entire day, including stopping by Billy Blanks' to work out, even in the rain, when I am usually in pain.
No, I cannot automatically blame the drug for everything, but I am doing an awful lot of healing very quickly. I was ignorantly taking EffexorXR for three years.
Posted by dancingstar on October 27, 2004, at 0:31:33
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING » dancingstar, posted by corafree on October 26, 2004, at 20:56:00
I will write what has become my long list again, all in one place, tomorrow only cause it's been kind of a long day.
Please remember that I live by my intuition and it has saved my life more than once, but I have zero medical background; so it's best that you listen to your doctor, and I pray that you have got great medical care :-).
The things that I have used may or may not be good for someone with different kinds of medical conditions. That's why you need to be careful and make sure that they won't interact with other medications; okay? I'll get it together and write everything down tomorrow...though I know it's all here. I hope I won't bother people with it again. They really have worked synergistically, though, to make a real difference in the way I feel. Whatever is going on, it's pretty amazing...but not under any circumstances worth going through the withdrawal process!!!
Have a great evening.
Posted by corafree on October 27, 2004, at 1:21:06
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING » corafree, posted by dancingstar on October 27, 2004, at 0:31:33
Don't have a great doc; have state-appointed. I'm knowledgeable enough re: alternative meds vs traditional meds to make own decisions, and I take responsibility for decisions. I realize what might work for one, may not for another. You could possibly help someone with your experience. I could print all your posts, but thought you wouldn't mind making that a bit easier. So, tks again, and hope to hear from you tomorrow. cf
Posted by S.Bartel on October 27, 2004, at 5:44:59
In reply to I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING, posted by dancingstar on October 26, 2004, at 12:35:38
I am glad to hear that I am not the only one who feels that way. I am beginning to think that I also could have done without this drug. When anyone goes thru a death it's only natural to go thru a grieving process and Effexor XR just brought mine to a complete halt. Had I just gone to counseling and possisbly a grief group session instead of using this horrible drug I believe I would have been OK. I am Efffexor free for about 9 days. I only had about 2 days of diareah, but my brain is still in a fog and I feel like I'm shaking inside and out. I am sick at my stomach most of the time, but that goes along with the Liver disease and I hope that improves some after all the withdrawals go away. I can control a lot of the shaking and panic attacks with bio-feedback. I have practiced this for years and it works well for me. It also works well with my fibromyalgia pain along with water therapy. I take some herbal medicines and herbal tea but my finances are not such that I can afford every one that would help. I only wish we could do something about the way this drug is marketed, but I'm not sure it would do any good unless the Dr.'s were more educated as to the drugs they prescribe. I'm afraid that will always be left up to the patients to investigate their prescribed drugs to make sure they are not going to do them harm. Patients themselves have got to educate themselves. As far as Effexor and Effexor XR go, I think people like us should do something about having it taken off the market. This drug is just too dangerous. I,m sure there are thousands besides us who have run into the same problems with Effexor and Effexor XR.
SammiP.S. I'm still having trouble sleeping!!
Posted by CrazyCO on October 27, 2004, at 11:22:17
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING » PoohBear, posted by dancingstar on October 27, 2004, at 0:21:39
I took Effexor for quite a while, and when I came off it I had no withdrawals at all, so the warning is not for everyone, NOT everyone has the terrible symptoms of withdrawal.
Posted by dancingstar on October 27, 2004, at 12:09:24
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKET, posted by CrazyCO on October 27, 2004, at 11:22:17
I don't know what "quite a while" means. I took it for three years. I don't know how much you were taking. I took between 75 and 150 mg. I don't know your background. My family is European. For what it is worth, I've read people with some genetic component have a more difficult time with the drug than others. I don't know for what the drug was prescribed in your case. In mine it was prescribed because I had back pain and because I was tired. (Um, gee, maybe I had fibromyalgia....)
I still feel very strongly that the drug should not be marketed by drug reps to family practice doctors to be given to patients for everything from fibromyalgia and a bad headache to a death in the family. It's a serious drug with potentially deadly reactions both during the time it is taken and while people are trying to stop taking it, and it should only be prescribed by those that know the most about it.
If you escaped from the drug unscathed, consider yourself very fortunate. Then again, perhaps I'm just allergic to it. Who knows? Me and everyone else that has had these problems.
Does anyone else here want to take that chance?
Posted by dancingstar on October 27, 2004, at 12:37:13
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING » dancingstar, posted by S.Bartel on October 27, 2004, at 5:44:59
Okay, here's the list...
It works, and I will try to do it with an explanation so you can do it by $$$:
Benadryl (I only wish I had listened sooner) Get, up; get out immediately, and get the children's version. I got it 3 1/2 weeks into this hell. Use as little as possible. It works. You will feel better. What can I say???
samE-400 (Jarrow) Helps with all the stuff you are now missing; brain, joints, liver.
5-HTP - also helps with seratonin
Nordic Naturals Omega 3 (2 capsules a day) It's lemonish and doesn't at all seem like fish in any way; so don't get all pukey just thinking about it. It really helps stabilize your mood.
Okay, now this will take about a week for you to feel, but it's worth it. I'm taking it to also help with the fibro:
From Fatigued to Fantasitc by Enzymatic Therapy - 3 Step Program.
First eat breakfast, maybe some oatmeal with some whey protein powder or some soy & eggwhite and whey protein powder...flavor it however you like.
Take two Enzymatic Therapy Fatigued to Fantastic Adrenal Support and One of their "B" Vitmins and they have this powder that you mix with water or whatever and drink. It tastes pretty awful. And it works really well. After three or four days, I really noticed a difference.
At night they have something that you take to help you get better sleep. It has been seriously pouring rain here, and I have been able get everything done, and I've also been able to work out very hard for the last two days. I am a little tired and sore. I still feel some effects of the withdrawal; but mostly, I feel the pain that I used to feel when I worked out...good pain, the pain I missed, not that horrible, deep inside the muscles and joints pain that I had to live with every single day.
I also take Dr. Michael Hirt's My Best Health AM/PM Vitamins and CardioVite, Jarrow Bone-up, Alpha Lipoic Acid, Co-Q10, MRM Grape Seed Extract.
Maybe most importantly for fibro is to be sure to have your thyroid checked. I haven't got any idea what this is about, but it sees like almost everyone with fibro is low thyroid. And no matter what you do, be sure to get the adrenal support. The withdrawal is putting lots of stress on your kidneys, and I believe that fibro is in part due to maxed out adrenals, usually after some stress when we can't take even a wee bit more, we're at the ends of our emotional ropes, having dealt with everything beyond the best of our ability for all too long...that's when we turn to some antidepressant, the worst possible thing that we can do to our bodies, give it poison in its already burnt out state.
We didn't know any better, but we'll heal. Try a little bit of this. If nothing else, get some Benadryl, please...That and a nap, and you will feel better.
It doesn't take a doctor to know this. Experience told me that this one works :-).
Posted by CrazyCO on October 27, 2004, at 13:42:18
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKET, posted by dancingstar on October 27, 2004, at 12:09:24
I did not mean to discount your obviously serious problems with this drug, nor anyone elses because I have read plenty here on people who have had terrible effects with this drug. I took 225mg for just over a year for major depression. My point of my post was just to let others know that not EVERY person who takes this drug has had a terrible time with it, I think that others here have the right to know both sides of the spectrum. It is only fair to those considering taking it to know that there are positive benefits to this medication, and that they aren't doomed to experience horrible side effects. I know that every person reacts differently to every medication and this is just my PERSONAL experience as your posts were about YOUR personal experience. Everyone should make their own decisions based on all the facts not just those of people with negative outcomes. I hope that you find something in the future that will not only work for you but also not cause you the severe side effects or withdrawal symptoms that you had with effexor.
Posted by dancingstar on October 27, 2004, at 14:17:40
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKET » dancingstar, posted by CrazyCO on October 27, 2004, at 13:42:18
Even if this drug has the possibility of being helpful to someone, if you don't know if you are one of the ones who will be negatively affected, is it worth risking using this drug?
Thanks for your wishes that I find "something" that will work, but I am happy to have found that "nothing" works more effectively. Please spare me from ever having to go near this type of pharmacological drug ever again as I sincerely believe that they should never be used by people that are better helped by psychotherapy and/or diet and exercise. It is a sad commentary that we have come to believe that so many of our problems need to be solved by a "magic" pill.
Posted by Starlight on October 27, 2004, at 14:26:29
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING ? dancingstar, posted by S.Bartel on October 27, 2004, at 5:44:59
I take effexor XR and only 75 mgs. But one thing that I've noticed is that my brain seems foggier. I also take 1500 trileptal and 300 lamictal and am trying to figure out when my brain got this way. And it seems to me that it did start with the Effexor. But on the other hand it has really, really helped my depression.
I have to come off of all the drugs soon because my hubbie and I are planning on getting pregnant and I don't want anything in my system when that happens. But I am scared, scared that my brain won't return to the sharpness it had before i took these drugs and scared that I'll slip into a severe depression
starlight.
Posted by corafree on October 27, 2004, at 14:37:51
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING » S.Bartel, posted by dancingstar on October 27, 2004, at 12:37:13
It's corafree saying thanks again, and sorry, guess I had your name 'mixed up'. Will print and keep for thought!!
Posted by PoohBear on October 27, 2004, at 16:14:17
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKET, posted by dancingstar on October 27, 2004, at 14:17:40
Yes, it's worth the risk, because not everyone responds well to this or that medication. I am very sensitive to your situation, but I want to be very clear, that the only reason I keep posting on this particular thread is so that people KNOW that Effexor is not BAD for everyone. People who are searching for the truth have a right to hear BOTH sides of the story, not just the negative one, which seems to be the most prevelant one around here.
Best wishes,
Tony
Posted by jujube on October 27, 2004, at 16:33:20
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKET » dancingstar, posted by PoohBear on October 27, 2004, at 16:14:17
I agree with you. Effexor was not good for me. It made me apathetic, lethargic and apprehensive. However, I have friends who have done extremely well on Effexor, and continue to do so. I would hate to see them and others deprived of the chance to improve their quality of life. And, contrary to popular belief, not all depressions can be cured simply by getting some exercise and eating better in the short-term. There is a risk with any medication that the response will be less than adequate, that the side effects will far outweigh the benefits or that a person may have an adverse reaction. I have had bad reactions to certain medications, including over-the-counter medications. So I avoid those medications. I have had adverse reactions to anaesthetic and novacaine. However, if I have to go in for surgery again or have a dental procedure, I will simply warn the doctor of how I react. I appreciate this board for the sharing of experiences, both good and bad. I can then take the information and make an informed decision about a particular medication, in consultation with my doctor. I am not going to go all vigilante because my own experience on a particular drug was not good.
Tamara
> Yes, it's worth the risk, because not everyone responds well to this or that medication. I am very sensitive to your situation, but I want to be very clear, that the only reason I keep posting on this particular thread is so that people KNOW that Effexor is not BAD for everyone. People who are searching for the truth have a right to hear BOTH sides of the story, not just the negative one, which seems to be the most prevelant one around here.
>
> Best wishes,
>
> Tony
Posted by Jubilee on October 27, 2004, at 17:08:20
In reply to Re: I'M FREE - SOMETHING MUST BE DONE ABOUT MARKETING » dancingstar, posted by corafree on October 26, 2004, at 20:56:00
Tried to answer cora but babble is off.
Yes, elavil is safer with no side affects and is an older anti- dep.. Yes its old, but it kicks dep. and helps sleep and had a mild seditive and is a chronic pain killer also. Beg for it. No bad withdrawals.
You must go off effexor very slow , like 4 or 5 months, lowering a little every week or 10 days. I have had hardly any sideffects this way, and I almost died going off 2 other times. If you can order more (like tell him you changed your mind and you are too depressed and get more effexor and be patient and go off at least over 4 months. After you are off if you can do ten days of prozac it really helps as it has a long shelf life. Get an antidireal. Good meds to help are prozac, anti diareal, anti nasuea(virtigo med), anti histimine nose spray for head aches as it messes with your histamine level also get benadryl. I think I am going to go for another 6 weeks as I started with a bottle of 60-150's and I saved all I poured out as I lowered the dose in a bottle. You can measure so much and throw it in your mouth and wash down w/ water. I just sped up dropping and i've had a light head ache, an some nausea. I wish people would prepare to go off using wisdom to make sure they have a large amount to begin with as dr's just don't understand what people go through. I also also on welbutrin which he left me on so I still have something making seratonin. I tried the 25 mg a week and this was the first time I have been sick at all , and its mild. I usually go two or three weeks on a drop. You must use wisdom and take responsibility for thinking this through as it is your body. You must have patience if you are going to be kind to your body. If I had a refill, and I was you ,I would get it. If I had no refill , I would tell the Dr. I am too depressed and to please order more ASAP and take your self off really slow saving all you pour out. You can measure in a capsul under a lamp light.. Use a calander. I have heard of people dying going too fast from the complecations , so you are fighting for your life I believe. Effexor provides two diff. meds to the brain , thats why there is no replacement for it. It is uniqely dangerous.
I told my Dr how serious the withdrawels were and his plan was to take me off in 6 weeks from 300 a day,for 4 years by giving me some prozac and some 37's, which he did.. I would have been dead or too sick to be writting this. Stop giving dr's the power to play God and think, think, think!!!
True , some people have no withdrawals at all because of their body type. Most addicts or x addicts will struggle due to the lack of an enzime. I hope this has given hope and help to others which someone did for me when I found a effexor petition on-line. It says alot. God Bless you all , Jubilee
Posted by Glory on October 27, 2004, at 17:43:03
In reply to Re: First Drug Holiday--Update, posted by Alara on September 19, 2002, at 22:12:27
How long does it take to stop , I am now on 37.5 one day and two days off. But sometimes I feels funny in my head.
I was taking for hot flashed and for me it was not working since I had them just the same.
So I would like to stop taking this pillsHelp please.
Posted by PoohBear on October 27, 2004, at 17:49:19
In reply to Re: First Drug Holiday--Update, posted by Glory on October 27, 2004, at 17:43:03
I hasten to add that after a year of reading this thread, which goes back to 1999, that I am continually AMAZED that such a potent ANTI-DEPRESSANT as Effexor XR is prescribed for ANYTHING other than depression, and only then for those forms of depression resistant to first-line AD's.
Pain?
Fybromyalga?
Negative press aside, I'm all for truth in advertising!!!
Tony
Posted by dancingstar on October 27, 2004, at 20:31:28
In reply to Uses of Effexor, Dancingstar, et al..., posted by PoohBear on October 27, 2004, at 17:49:19
Perhaps, Tony, you finally get the gist of my message.
It is a very potent, a potentially dangerous drug that we, as somewhat ignorant patients -- at least in the beginning -- take because we trust the medical care that says that it is okay to take this stuff for all sorts of reasons.
I'm almost beginning to think that to be able to stop taking the drug without any problem at all is the exception rather than the norm. Sure, it's great if it helps people. After a number of years, though, how do you really know if it is doing someone any good? Actually, I didn't know if it was doing me any good or any harm when I stopped. I stopped on a whim. Call it a gut instinct. And yes, I think I, too, could easily have died if I weren't as strong as I am. You have your reasons for feeling strongly about this. I have mine, too. Personally, I think mine are better because I don't think that there are any good reasons for choosing this particular drug over other drugs that have not proven to be this difficult to stop taking. I also don't think that doctors are monitoring the information about this kind of withdrawal information closely enough to be aware of it...I will have to have a hand in this, won't I?
Really, what is the difference between this drug and others like it that make it so much more potentially dangerous? Does anyone know?
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