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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 34 to 58 of 95. Go back in thread:
Posted by strat on January 7, 2004, at 6:15:57
In reply to strat .........e-mail address for anxiety board, posted by maryhelen on January 6, 2004, at 20:33:09
Thanks, MaryHelen, for another good idea. I've used the same pharmacist for years; I'll ask him to do same. I found the anxiety board; have already posted there!
Pierre, thanks for the nod of approval! I appreciate having the support here!
Strat
Posted by jlbl2l on January 7, 2004, at 16:32:50
In reply to COMPAINTS REGARDING NEW NARDIL, posted by ace on November 24, 2003, at 18:59:51
Hello, I am new here, and just started Nardil for social phobia a few days ago. Mine is the UK Nardil by Hansam. The ingredients list as :
phenelzine sulphate 15mg BP, inactive : mannitol and sunset yellow FCF.
It is districuted by Link Pharmeceticals Limited. The pills are small and red and do dissolve quite quickly and taste bad. No benefits yet...
Posted by strat on January 7, 2004, at 16:50:08
In reply to Re: COMPAINTS REGARDING NEW NARDIL, posted by jlbl2l on January 7, 2004, at 16:32:50
In response to your post, jlbl21, this sounds to me like the 'new' Nardil. Take your time, see how it feels.... some folks who start out on the 'new' one seem to do just fine. It is those of us who took the 'old' one and are now taking the 'new' one that seem to be the ones mainly having difficulties.
Don't be afraid to report any difficulties to the person who prescribed this to you. Naturally, you're probably very concerned... especially since you've just started.
There's also a great board to post on/read on here:
http://www.anxietyhelp.org/treatment/medication/nardil.htmlAs I mentioned, not all of us are having big struggles.... just keep reading, keep learning, keep talking to your medical professional, and ask questions!
We're with you....
--strat
Posted by jlbl2l on January 7, 2004, at 17:16:48
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL, posted by strat on January 7, 2004, at 16:50:08
thanks! yeah so far few side effects or good ones. i have a medalert id bracelet, diet restrictions list, blood pressure monitor and nifedipine that i was given. im starting at 60/mg a day split between every 6 hours or so. (15mg tablets)
Posted by gardenergirl on January 7, 2004, at 19:46:25
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL, posted by jlbl2l on January 7, 2004, at 17:16:48
FYI, I started on the new Nardil, and I have not had any of the problems those that were on the old did. I guess I'm glad I avoided all that, but I feel for those who are coping with the change.
Good luck to all on Nardil! It takes extra strong coping to deal with the SE's and the diet. I applaud all of us.
g
Posted by strat on January 7, 2004, at 20:08:48
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL, posted by gardenergirl on January 7, 2004, at 19:46:25
jlbl:
Good on you for having the medalert bracelet! I'm forever telling dentists 'NO epinephrine!!!' (they have another novocain that doesn't contain it...)
I'm quite accustomed to the restrictions. However, after a bit, I dropped from 60mg (which was too much for me - plunged me back into a crying state/depression) to 45 mg... then eventually, (for years now) 30 mg. I eat cheese, ham, bacon, coffee (no booze at all, because I choose not to drink) and everything I want. Once you're stabilized and have been taking it for awhile, and are maybe on a lower dosage, you may not have to deal with all the restrictions. (BUT! I'm NOT a professional, and am NOT recommending this.) I just had pizza one day without thinking about it, about a year after I started Nardil, and it was fine.
gardenergirl: I'm doing better on the new stuff, too, although I note edema and sleepiness. I'm glad to hear you're doing okay! Haven't had a panic attack again since the 'transition time' (about 20 days after I started the new version) when I felt like I was actually withdrawing from the old. Sharing this because if it happens to others, I want to offer my reassurance that it will pass. :D
jlbl:
If you're in Canada, or outside the U.S. you may just be lucky enough to be able to continue to take the 'old' version. I've heard others on the board here say that this is predominantly a U.S. problem...
Nice thing about Nardil, for me, when I first started, was that it almost IMMEDIATELY took care of my panic attacks. Like, the first day or two. :D
That's nice.
Warmly, to both of you -
strat
Posted by shytilwet on January 8, 2004, at 8:25:34
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL, posted by strat on January 7, 2004, at 20:08:48
I was told Nardil had been discontinued by the manufacturer, and is no longer available in Australia.
Does anyone know if this is true or how I can find out, please?
Posted by Dave Hammond on January 8, 2004, at 11:06:16
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL, posted by shytilwet on January 8, 2004, at 8:25:34
"I was told Nardil had been discontinued by the manufacturer, and is no longer available in Australia. Does anyone know if this is true or how I can find out, please?"
Link Pharmaceuticals sells some form of Nardil in Australia. I believe it's hybrid between the "old" and the "new" forms of Nardil that Pfizer Park Davis makes, but I have not yet been able to establish this with exact specificity, because the indivdual who is trying to find this out for me does not understand how buffering agents work at all. In his world one could put 15 mg of Phenezline Sulfate into water and it would be metabolized the same way as it is taking any in tablet form.
Posted by ace on January 8, 2004, at 19:02:39
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL, posted by Dave Hammond on January 8, 2004, at 11:06:16
, because the indivdual who is trying to find this out for me does not understand how buffering agents work at all. In his world one could put 15 mg of Phenezline Sulfate into water and it would be metabolized the same way as it is taking any in tablet form.
If you are refering to me, Mr, Hammond, I am well aware of how buffering agents work...I have not studied so much pharmacology (at uni, and outside as well) for nothing. The info I was given which I relayed to you, was assured to me by Mr. John Bacon. I begged to differ with Mr. Bacon, but he assured me he was positive of his facts- which were gleaned from psychopharmacologists. To me it sounds implausible, but YOU asked what Mr. Bacon said, not for my opinion.
Posted by Dave Hammond on January 8, 2004, at 19:54:24
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by ace on January 8, 2004, at 19:02:39
Posted by Dave Hammond on January 8, 2004, at 19:58:40
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by ace on January 8, 2004, at 19:02:39
You know that I am, Ace.
"I am well aware of how buffering agents work"
I once thought you might know what you were talking about, but statements you have made at another board have absolutely convinced me otherwise. If you would like, however, I will drag that post over here so you can re-examine what you said.
"The info I was given which I relayed to you, was assured to me by Mr. John Bacon. I begged to differ with Mr. Bacon,"
Why did you beg to differ if Mr. Bacon was telling you the truth?
"but he assured me he was positive of his facts-
which were gleaned from psychopharmacologists. To me it sounds implausible, but YOU asked what Mr. Bacon said, not for my opinion."Actually I asked for the name of the expients of Link's Nardil, which you have yet to tell me - not anyone's opinion. I don't care what anyone's opinion is. I want to know the names of the ingredients in Link's Nardil. It's that simple and you either cannot or will not supply them.
Hence, my frustration with you.
Posted by ace on January 8, 2004, at 23:04:02
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by Dave Hammond on January 8, 2004, at 19:58:40
>
> Hence, my frustration with you.Sorry about your frustration, but I am a busy boy, Dave. I have tried on the phone for the guy every day to no avail. I have a lot of things going on, and I am making time for this when I don't have to.
Most people are grateful for my help, and I am sure I have helped them. But if you are continually frustrated I think you should maybe ask someone else- and you will then have to wait anyway, just like your having to wait with me.
Posted by Dave Hammond on January 9, 2004, at 0:10:32
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond Dave Hammond, posted by ace on January 8, 2004, at 23:04:02
"Sorry about your frustration, but I am a busy boy, Dave. I have tried on the phone for the guy every day to no avail."
I can see that it has been to no avail, and I'm sorry that is the case.
"I have a lot of things going on, and I am making time for this when I don't have to."
I know you don't have to. However, if Link is just down the street, what prevents you from making that short walk? You did say that you wanted to help. That was no my imagination, I hope.
"Most people are grateful for my help, and I am sure I have helped them. But if you are continually frustrated I think you should maybe ask someone else- and you will then have to wait anyway, just like your having to wait with me."
Believe it or not, I am grateful to you, Ace. What I cannot understand is why you do not yet know the ingredients of the very drug you take -- the drug that is likely keeping you alive. I am running of time, Ace. Is it asking too much for you to list these?
Posted by ace on January 9, 2004, at 5:36:03
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by Dave Hammond on January 9, 2004, at 0:10:32
Dave, I do know the ingredients of the very drug keeping me alive. Do not come on this website and try and make me look like an uneducated fool please. I love this website and the folk on it. I have spent so much time research Nardil, and I do indeed know its pharmacological properties very well. But I try to explain things real easy, without the big words. Can we leave it at that?
Posted by Dave Hammond on January 9, 2004, at 7:19:52
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond Dave Hammond, posted by ace on January 9, 2004, at 5:36:03
Ace, that's good news indeed. Could you be so kind as to list the inactive ingredients of Link's Nardil then?
Posted by ace on January 9, 2004, at 16:53:27
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by Dave Hammond on January 9, 2004, at 7:19:52
> Ace, that's good news indeed. Could you be so kind as to list the inactive ingredients of Link's Nardil then?
>We have a deal. I ring again first thing Monday. Also, I will give a detailed graphic description of the pill again- please ask further qstns about its appearance as there is only so much i can describe...
Ace
Nardil, 105mg
Zyprexa, 2.5mg
Posted by shytilwet on January 10, 2004, at 2:52:15
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond Dave Hammond, posted by ace on January 9, 2004, at 16:53:27
Dave......Thank-you so much. Your post gave me the courage to ask my pharmacist if Link was now making Nardil. He said that Link is a subsiduary of Parke-Davis and is going to make some phone calls for me to see what the situation is.
I feel that Nardil was a medication that kept me alive. What I'm doing now is not living......just existing in a bleak, grey world......
Posted by Dave Hammond on January 10, 2004, at 9:11:51
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by shytilwet on January 10, 2004, at 2:52:15
Now, that is outstanding news to hear, shytwilet.
Link does manufacture Nardil so have no fears. This drug makes all of the difference in my life too. I suspect that is the case for everyone here. When I cannot take Nardil, my life simply is not worth living, and the world is indeed extremely drab and grey appearing. Yes, I agree with you completely; life becomes mere existence without it.Would you do me one favor please, shy? It's a very hard one to keep, so do not agree to it at all, unless you are willing to follow through upon your promise -- especially when you start feeling better -- something you might not be able to fully appreciate right now.
You see once people start feeling better, they tend to bail right out of here and begin enjoying there lives again, thus leaving the rest of us in the lurch. It's perfectly understandable, but it then does nobody else, besides yourself, any good.
Would you be so kind as to keep me appraised of your situation? I would very much like to know what Link's Nardil is like. Pfizer Parke Davis in America changed their formula for Nardil completely, and I cannot take it anymore, due to an untoward side-effect that I never encountered when I used their older product. You see I need to know if Link's Nardil would be suitable for me to take. However, because Link cannot import their product into America (very probably due to an FDA restriction here), there is no way for me to know what Link's Nardil is like -- something I really need to know. The only person here who has been kind enough to assist me so far is Ace -- who also lives in Australia and takes Link's Nardil.
Therefore, if you could find out what the properties are of Link's Nardil are -- specifically what the inactive ingredients of it are (Link will tell you this or your pharmacist will)--I would quite literally be in your debt forever! You see it is these inactive ingredients that determine precisely how our bodies metabolize this product. I need to know what those ingredients are in Link's product. Would you please help me find this information out?
I do realize it is a great deal to ask of someone who probably does not yet feel very well right now. But would you now help me?
David
PS
If there is anything you do not understand in what I just wrote above, pleased do not hesitate to ask me either here or in an e-mail at the following address: Twinoppose@hotmail.com
Posted by Dr. Bob on January 10, 2004, at 16:55:40
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by Dave Hammond on January 9, 2004, at 7:19:52
> I once thought you might know what you were talking about, but statements you have made at another board have absolutely convinced me otherwise.
I'm sorry if you're frustrated, but please don't post anything that could lead others to feel put down.
> Just Tell Me the Expients, Please?
> I want to know the names of the ingredients in Link's Nardil. It's that simple and you either cannot or will not supply them.
> if Link is just down the street, what prevents you from making that short walk?
> Could you be so kind as to list the inactive ingredients of Link's Nardil then?
Also, please don't pressure others. Thanks,
Bob
PS: Follow-ups regarding posting policies should be redirect to Psycho-Babble Administration; otherwise, they may be deleted.
Posted by Dave Hammond on January 10, 2004, at 17:10:21
In reply to Re: please be civil Dave Hammond, posted by Dr. Bob on January 10, 2004, at 16:55:40
"I'm sorry if you're frustrated, but please don't post anything that could lead others to feel put down."
Certainly, Dr. Bob. I'm sorry I posted this, since it's a carry over from another board and it's not a polite statement.
"Also, please don't pressure others. Thanks,
Bob"I will endeavor not to do so in the future.
"PS: Follow-ups regarding posting policies should be redirect to Psycho-Babble Administration; otherwise, they may be deleted."
I'm sorry but I honestly do not understand what you are saying right here:
1. Do you mean that I should re-read the posting policies of your website?
2. Or do you mean I should get in touch with you about this incident?
Posted by shytilwet on January 11, 2004, at 5:25:44
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by Dave Hammond on January 10, 2004, at 9:11:51
Dave.....your post made me cry, and I'd thought I was incapable of any more tears. Thank-you so much for your good wishes.
I realise that once people start to feel better they might not return to this forum.
I promise you that if I do get some Nardil I will do my best to find out the properties and let you know.
Dave, having been down there......and being still down about as low as a person can get and still be alive........I would consider it an honour to be able to help you in any way I can.
shy
Posted by shytilwet on January 11, 2004, at 5:36:54
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond Dave Hammond, posted by ace on January 9, 2004, at 16:53:27
Dear Ace......I'm so so sorry to bother you but I was wondering which state you live in and how you managed to get Nardil?
Please forgive this intrusion; it's obvious you're a busy man. It's just that I am so so desperate for the only anti-depressant that has ever helped me.
I'm not sure whether I can post my email address here but I will, in case you don't like to say which State you're from in front of everyone, and I hope Dr.Bob will forgive me if I shouldn't have done it.
shytilwet24@aussiewebmail.com
Posted by Dave Hammond on January 11, 2004, at 10:32:18
In reply to Re: COMP(L)AINTS REGARDING NEW NARDIL » Dave Hammond, posted by shytilwet on January 11, 2004, at 5:25:44
Shy, you stick with this now. Have your Pharmacist find out where Link is and who distributes their product. It should allow you to start living a much better life again, which is exactly what I hope happens for you, because I remember the pain and agony I suffered until I finally found Nardil.
As for me, the story remains problematical. If the ingredients in Link's Nardil are close enough to the original 1959 Lake Pharmaceutical specifications (there should be about 15 of them in it) then I'll fly to Australia to get my prescriptions filled. Perhaps later I could work something else out that is more convenient.
However, if they are closer to the "new" Nardil that Pfizer now makes (9 ingredients only -- only 3 of which are the same as the old formula), then it will not help me for the same reason the "new" Nardil doesn't. My body cannot take have that high a concentration of Phenelzine in my blood stream without it causing me serious trouble.
Now, this might actually be a hybrid of these two,
in which case I'll simply have to try it to see how my body metabolizes it. Yes, I could clobber Pfizer for changing this, but they did and they are not going to change it back.So, while you have your pharmacist on the telephone, please have him/her find out what the "inactive ingredients" are in Link's Nardil and then we will have some idea of what it really is. Just make sure they do it, because in America everything is becoming so depersonalized, that one can barely get a word out of one's pharmacist these days.
Still, it is the inactive ingredients that finally determine how any drug is metabolized and that is the key.
But believe me, people can and do bail out of these fora the once they start feeling better, because everything is all right for them again. And that is a perfectly natural act to commit -- one I would also do once I figured this out -- if I ever do, that is. However, now that I have been dealt this setback, I am going to start coming back to the two places I frequent, and see how people are doing, so I can help them if that's possible. Because there is nothing worse than not getting any help when one genuinely needs it.
Shy, I cannot adequately express to you how grateful I would be if you would follow up on your promise to assist me. I mean I truly would not know what to say, but I would most assuredly be elated. That much I promise. And if there is anything that I can help you with all you have to do is ask me, and I will do my very best to help you too!
An overly verbose,
Dave
Posted by Dr. Bob on January 12, 2004, at 22:48:50
In reply to Re: please be civil, posted by Dave Hammond on January 10, 2004, at 17:10:21
> I'm sorry I posted this, since it's a carry over from another board and it's not a polite statement.
Thanks.
> > PS: Follow-ups regarding posting policies should be redirect to Psycho-Babble Administration
>
> I'm sorry but I honestly do not understand what you are sayingJust that if there's any further discussion about civility or related issues, I'd rather it took place at PBA (another board) than here, that's all. Best wishes,
Bob
Posted by Dave Hammond on January 12, 2004, at 23:21:17
In reply to Re: posting policies, posted by Dr. Bob on January 12, 2004, at 22:48:50
Certainly Dr. Bob. I am sorry I allowed this incident to occur at all.
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