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Dr. Bob is Robert Hsiung, MD,
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Posted by Shanti on February 22, 2002, at 13:45:59
In reply to Re: is effexor making me crazy????, posted by Maria Warren on February 22, 2002, at 7:17:03
> > Am weaning from 225 to 37.5 (in steps) and can't sleep! After nine days of this, got put on 2.5 mm. (very low dose) of olanzapine - an anti-psychotic drug with potential horrid side effects! I feel like medication is making me crazy -- my shrink thinks I'm minor-leagie bipolar, which could very well be, but I'm afraid all this drug soup is going to do worse damage than my own depression. Opinions, please!
>
>
> Birdy
> You seem to have been responding to an old post and sort of popped up in the middle of this one. I think I got that straighteded out, but I am not as seasoned at helping as some others might be. One possibility is sometimes a low dose or Prozac. Anyone else out there able to help? Also you don't say HOW gradually you are cutting from one dose to another? MariaBirdy
Do you or anyone else out there agree that we have to do A LOT of mental work as well to even begin to feel what one calls "normal" in this world, that is one of the hardest things for me to work at especiallly during my menstural cycle but if i manage to keep upbeat i usually get through with only 2-4 days of wanting to scream, yell,short tempered, etc.
i start my med's tomorrow and am looking forward to it after my 2 years with paxil and i truly hope it is an easy transition - i will defenitely post my experience!
i do have to say i stumbled upon this website and wow! this is very theraputic to read that other people in this world experience the same things as me (yes, at different levels - i'm like someone else who wrote i'm a mild bi-polar if you can call it that
before i sign off i want to tell a short story that happened to me a few months ago.
i recently had a baby (4 months ago) and about 1 month later i went out with my sister for the first time in a long time to a bar. while at the bar she kept telling people that i had just had a baby and they commented on how good i look - the weight just fell off (i am very skinny to begin with and subconcisouly i am anorixca - i don't purposely strave myself - food just doesn't appeal to me but i agree with my therapist that it is a way of me not liking myself so i do this even if i don't really "think" about). After about the 5th time i finally looked at her and said if i could trade my mental illness in for some extra weight and what society considers to be fat i would in a second because i think that would be a lot easier to deal with than what i have now
gotta go - i'm from Canada and the men's hockey team is playing right now - go canada go!! right now it is 2-1 for canada
peace!
Posted by LisaDiann on February 22, 2002, at 20:05:55
In reply to Re: weird symptom, posted by shelia on February 20, 2002, at 13:47:10
Oh my....I can't believe I found this site!! I was on Prozac for about 8 yrs and went off it a couple months ago..doctor put me on effexor because I felt Prozac wasn't helping me with my depression and anxiety. After a couple months of taking Effexor I started getting the brain zaps like what you people are talking about except I also have a strange feeling in my legs, arm and fingers at the same time of the zap in my brain. It happens anytime..standing, sitting, laying...turning head..moving eyes. I also became severly constipated and breasts very tender. I went off the effexor even tho doctor told me he really doubts it is related to the medication...some days are worse than others. I even went to the emergency room thinking I was having a stroke! I had a complete hysterectomy a few years ago so the same time he switched me from prozac to effexor he also switched my Premarin l.25 to vivelle patch and estrotest...maybe the breast tenderness is from the patch or estratest, I don't know. My doctor sent me to a cardiologist for the "zapping feelings" and had heart monitor on for 24 hrs and am scheduled for stress test next week...he also sent me for barrium enema. Yesterday I took my estrogen patch off and went back on Premarin to see if that was my problem for these feelings. I haven't got results back yet from any of the tests. I can't tell you how happy I am to find others that are experiencing some of the same symptoms. I've been doing research on the heart and stroke...thinking thats what is wrong with me. I'm amazed my doctor didn't mention others having same side affects as me. I'm definately finding another doctor after these tests are complete. I'm wondering if these "zaps" are from the prozac I was on for 8 yrs or the effexor I was on for only 2 months. Anybody else experiencing the tingling feelings in their arm, fingers or legs along with the brain zaps? They all happen at the same time. Thank you so much !
Posted by Allen F. on February 22, 2002, at 23:34:05
In reply to Re: weird symptom, posted by LisaDiann on February 22, 2002, at 20:05:55
I was on Prozac for twelve years prior to switching to Effexor last September. I also feel the tingling in my fingers, legs, and toes. There is a constant ringing in my ears.
I talked to the counselor I have been seeing and he said these are just symptoms of depression. He said I should get with my Pdoc and switch to something else. My Pdoc doesn't share the same opinion.
I am really struggling with what to do, what Effexor is really doing to me, what Prozac may have done to my system.
Any comments would be appreciated.
Thanks
Posted by SusanG on February 23, 2002, at 1:26:37
In reply to Re: weird symptom, posted by Allen F. on February 22, 2002, at 23:34:05
I have one more random comment: my dad recently told me that he had been on Effexor for a little while but discontinued it. He told the nurse at the clinic where he is treated for migraines that he had been on it and she laughed and said, "We call that 'Side-Effexor' and don't prescribe it anymore".
Posted by Shanti on February 23, 2002, at 9:22:05
In reply to Re: weird symptom, posted by Allen F. on February 22, 2002, at 23:34:05
Allen:
do you really believe the ringing in your ears is depression?(remember this is my opinion) maybe the dr needs to be on something!
peace
Posted by marlene on February 23, 2002, at 10:10:01
In reply to effexor making poopy!!!, posted by NikkiT2 on February 22, 2002, at 12:35:12
Just a quick update, three weeks since cold turkey from 300 mg effexor, all symptoms are gone. Have decided to go back on Zoloft, low dose, to deal with depression. Also have appointment with PCP to see if I have Fibromyalgia, hope I am spelling that right. Thanks Launie for link to FM, just reading for now, till I have diagnoses either way. So, just wanted everyone to know that there is a end to this. Hope all is well with everyone and I do believe everyone is unique, this way worked for me.
Posted by LisaDiann on February 23, 2002, at 10:19:19
In reply to Re: weird symptom, posted by Allen F. on February 22, 2002, at 23:34:05
I'm wondering if maybe the Prozac or effexor has harmed my body also. I don't see others with posts about tingling in the arms, fingers, legs.
When I have the "brain zap" my heart and leg feels tingly at the same time...then it immediately goes away. I'm trying to stay off all medications now except my estrogen...hopefully these are all withdrawal symptoms !?
Posted by m3 on February 23, 2002, at 13:57:38
In reply to Re: cold turkey, day 21, posted by marlene on February 23, 2002, at 10:10:01
Just posting my story for the benefit of other people who are going through/contemplating going through withdrawing from Effexor.I was at 300mg/day, like marlene, for about a year and a half. It had taken me about six months to hit that dosage after starting at 75mg. When I first started I didn't really have any side effects and it seemed to help a lot. Moving up to 150mg also produced a noticeable improvement in mood, but the next couple of dose increases didn't do much, and I eventually felt the Effexor wasn't doing anything at all, so I decided to come off. My pdoc suggested Serzone as a replacement.
That was about ten days ago. My pdoc gave me a schedule for ramping down the Effexor (-37.5mg every other day, then stop) and for starting the Serzone (the standard starter pack). I was to start tapering the Effexor and start taking the Serzone at the same time (right away).
I found I got the zaps at each decrease of Effexor, but they weren't too bad, nothing compared to the times when I'd run out of pills and missed multiple doses (1-4 doses at a time).
It was only when I stopped taking any Effexor at all that I got the full-blown withdrawal syndrome: zaps, vertigo, can't get warm but sometimes sweaty, uncontrollable shivering, uncontrollable crying, tinnitus. I also feel a rampant dread and don't trust myself to find my way back home if I go out (though I did today without any problem; don't worry, I was walking, not driving). I notice lots of people have had insomnia; I've had some in the evening but the Serzone generally knocks me out before it's too much of a problem. In fact, the Serzone is causing pretty serious hypersomnolence (like 11-14 hours of sleep several days in a row), but that discussion belongs elsewhere.
This is really no fun, but I'm trying to stick it out, partly due to reading posts here. (Thank you, brave souls who went before and lived to post about it.) I do have some 37.5 mg capsules left and I might eventually give in and take one, but I feel like I'd just be extending the agony.
I guess I have a question for those who have gone before, if they're still reading: *would* it actually be better to take a 37.5mg capsule every couple of days for a while?
Anyway, that's my story. I'll post a follow up when I feel better or in a few days, whichever comes first.
m3
Posted by Reneeb on February 24, 2002, at 21:07:14
In reply to just another coming-off-fxr story, posted by m3 on February 23, 2002, at 13:57:38
>
> Just posting my story for the benefit of other people who are going through/contemplating going through withdrawing from Effexor.
>
> I was at 300mg/day, like marlene, for about a year and a half. It had taken me about six months to hit that dosage after starting at 75mg. When I first started I didn't really have any side effects and it seemed to help a lot. Moving up to 150mg also produced a noticeable improvement in mood, but the next couple of dose increases didn't do much, and I eventually felt the Effexor wasn't doing anything at all, so I decided to come off. My pdoc suggested Serzone as a replacement.
>
> That was about ten days ago. My pdoc gave me a schedule for ramping down the Effexor (-37.5mg every other day, then stop) and for starting the Serzone (the standard starter pack). I was to start tapering the Effexor and start taking the Serzone at the same time (right away).
>
> I found I got the zaps at each decrease of Effexor, but they weren't too bad, nothing compared to the times when I'd run out of pills and missed multiple doses (1-4 doses at a time).
>
> It was only when I stopped taking any Effexor at all that I got the full-blown withdrawal syndrome: zaps, vertigo, can't get warm but sometimes sweaty, uncontrollable shivering, uncontrollable crying, tinnitus. I also feel a rampant dread and don't trust myself to find my way back home if I go out (though I did today without any problem; don't worry, I was walking, not driving). I notice lots of people have had insomnia; I've had some in the evening but the Serzone generally knocks me out before it's too much of a problem. In fact, the Serzone is causing pretty serious hypersomnolence (like 11-14 hours of sleep several days in a row), but that discussion belongs elsewhere.
>
> This is really no fun, but I'm trying to stick it out, partly due to reading posts here. (Thank you, brave souls who went before and lived to post about it.) I do have some 37.5 mg capsules left and I might eventually give in and take one, but I feel like I'd just be extending the agony.
>
> I guess I have a question for those who have gone before, if they're still reading: *would* it actually be better to take a 37.5mg capsule every couple of days for a while?
>
> Anyway, that's my story. I'll post a follow up when I feel better or in a few days, whichever comes first.
>
> m3m3, I have weaned myself from 150mg to 75mg to 37.5mg. Starting tonight I am going every other day. I have had no problems so far. I am praying that it works out okay. My opinion is you have already began the journey if you can stick it out.
Good Luck,
Renee
Posted by LisaDiann on February 24, 2002, at 21:53:38
In reply to Re: just another coming-off-fxr story » m3, posted by Reneeb on February 24, 2002, at 21:07:14
Hello again everybody...
Its been a couple weeks since I've gone off effexor "cold turkey" and I'm still having all the same symptoms...the brain zaps, and the shock feelings throughout my whole body. I feel sooooo angry that my doctors haven't told me these are withdrawl symptoms and are putting me through all the heart tests..tomorrow is the stress test. I just found out a couple days ago from reading these posts what is really wrong with me so I haven't had a chance to mention this to my docs.
I'm wondering if theres a class action suit against effexor!?? If anybody knows of one please let me know...These feelings are intolerable!!!
Good luck to you people...and if you're not off effexor yet you need to be !!!!! I think they're using us to be their damn lab rats.
Posted by Mandy L on February 24, 2002, at 22:20:28
In reply to just another coming-off-fxr story, posted by m3 on February 23, 2002, at 13:57:38
We were told by our doctor to put our 16 year old daughter back on effexor at 37.5 to minimize side effects, but couldn't stand the thought of doing that after 2 weeks of cold turkey. We are now on day 28 and still having withdrawal, although it doesn't last as long and symptoms are farther apart. I am hopefull eventually this will end and we will be back to normal. I am convinced that most of her depression related problems were side effects of this powerful drug. It has caused havoc with school and so many other things. What stress it causes families and lives. I have been keeping a journal to show our doctor this week. I hope it helps her not to put anyone else on this horrible drug. I wish their was a class suit. I'm sure many people would jump on that cause. Good luck to all.
Mandy L.
Posted by marlene on February 25, 2002, at 9:23:14
In reply to just another coming-off-fxr story, posted by m3 on February 23, 2002, at 13:57:38
>
> Just posting my story for the benefit of other people who are going through/contemplating going through withdrawing from Effexor.
>
> I was at 300mg/day, like marlene, for about a year and a half. It had taken me about six months to hit that dosage after starting at 75mg. When I first started I didn't really have any side effects and it seemed to help a lot. Moving up to 150mg also produced a noticeable improvement in mood, but the next couple of dose increases didn't do much, and I eventually felt the Effexor wasn't doing anything at all, so I decided to come off. My pdoc suggested Serzone as a replacement.
>
> That was about ten days ago. My pdoc gave me a schedule for ramping down the Effexor (-37.5mg every other day, then stop) and for starting the Serzone (the standard starter pack). I was to start tapering the Effexor and start taking the Serzone at the same time (right away).
>
> I found I got the zaps at each decrease of Effexor, but they weren't too bad, nothing compared to the times when I'd run out of pills and missed multiple doses (1-4 doses at a time).
>
> It was only when I stopped taking any Effexor at all that I got the full-blown withdrawal syndrome: zaps, vertigo, can't get warm but sometimes sweaty, uncontrollable shivering, uncontrollable crying, tinnitus. I also feel a rampant dread and don't trust myself to find my way back home if I go out (though I did today without any problem; don't worry, I was walking, not driving). I notice lots of people have had insomnia; I've had some in the evening but the Serzone generally knocks me out before it's too much of a problem. In fact, the Serzone is causing pretty serious hypersomnolence (like 11-14 hours of sleep several days in a row), but that discussion belongs elsewhere.
>
> This is really no fun, but I'm trying to stick it out, partly due to reading posts here. (Thank you, brave souls who went before and lived to post about it.) I do have some 37.5 mg capsules left and I might eventually give in and take one, but I feel like I'd just be extending the agony.
>
> I guess I have a question for those who have gone before, if they're still reading: *would* it actually be better to take a 37.5mg capsule every couple of days for a while?
>
> Anyway, that's my story. I'll post a follow up when I feel better or in a few days, whichever comes first.
>
> m3
m3,
On the 8 day of cold turkey, I was ready to give in and take effexor, but my spouse and I talked it through and I decided to stick it out. I also talked to a relative who went through withdrawal from valium, and he said that the symptoms I was having, he had. He said the first two weeks were the worse, and I decided that if I already did 8 days without any, then I didn't want to go back on it.
Also, when I tried to talk to my Doctor about going off effexor and on something else, he told me I had to be off effexor for two weeks before I could start something else. I can't take prozac, allergic to it.
I hope all goes well, and serzone works for you.
Good Luck
Posted by Jetson on February 25, 2002, at 11:14:36
In reply to sexual side effect- effexor-xr, posted by smokingun35 on September 24, 2000, at 14:09:31
I have been off of Effexor since 1997.
I still do not get erections as easily as I used to. I can have orgasms, but they are mostly not as intense. In general I am frustrated with the side-effects of Effexor that do seem to last for a long time after termination.
> I started taking effexor xr 2 almost 2 weeks ago,my first anti-depressant(possibly last), and felt tired and terrible and dazed every waking hour of the day while taking it, headaches, cannot reach an orgasm at all. I took 37.5 mg aday for 7 days and 75 mg for 2 days and have now stopped cold turkey. I have yet to experience any side effects, been about 55 hours since last dose, still cannot reach an orgasm, wife is very upset and I'm not far behind her. Will this go away or could this be a pemanent development?
Posted by John2 on February 25, 2002, at 12:11:26
In reply to Re: sexual side effect- effexor-xr, posted by Jetson on February 25, 2002, at 11:14:36
i've been taking Effexor for about two months., now at 225 mg. it is generally helping, though i definitely have the sexual side-effects, which are probably so prevalent they really shouldn't be called "side" effects.... with help of viagra things work just fine, just takes a long time, but the orgasms are extremely intense ... however, i had no idea some of these effects could become long term after you stop taking Effexor. have been assuming once i was off effexor all would return to normal... would like to hear if anyone else has had problems like Jetson has.. thanks!
Posted by Reneeb on February 25, 2002, at 12:34:09
In reply to Re: just another coming-off-fxr story, posted by LisaDiann on February 24, 2002, at 21:53:38
> Hello again everybody...
>
> Its been a couple weeks since I've gone off effexor "cold turkey" and I'm still having all the same symptoms...the brain zaps, and the shock feelings throughout my whole body. I feel sooooo angry that my doctors haven't told me these are withdrawl symptoms and are putting me through all the heart tests..tomorrow is the stress test. I just found out a couple days ago from reading these posts what is really wrong with me so I haven't had a chance to mention this to my docs.
>
> I'm wondering if theres a class action suit against effexor!?? If anybody knows of one please let me know...These feelings are intolerable!!!
>
> Good luck to you people...and if you're not off effexor yet you need to be !!!!! I think they're using us to be their damn lab rats.
Hi, What I think the problem is the Doctors need to be educated !!!!!
Renee
Posted by Reneeb on February 25, 2002, at 12:37:59
In reply to Re: sexual side effect- effexor-xr, posted by Jetson on February 25, 2002, at 11:14:36
> I have been off of Effexor since 1997.
> I still do not get erections as easily as I used to. I can have orgasms, but they are mostly not as intense. In general I am frustrated with the side-effects of Effexor that do seem to last for a long time after termination.
>
>
> > I started taking effexor xr 2 almost 2 weeks ago,my first anti-depressant(possibly last), and felt tired and terrible and dazed every waking hour of the day while taking it, headaches, cannot reach an orgasm at all. I took 37.5 mg aday for 7 days and 75 mg for 2 days and have now stopped cold turkey. I have yet to experience any side effects, been about 55 hours since last dose, still cannot reach an orgasm, wife is very upset and I'm not far behind her. Will this go away or could this be a pemanent development?
Hi, I can only tell you from a womens view. It does go away - it does get better
Renee
Posted by Allen F. on February 25, 2002, at 12:41:53
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
I have read that some have benefited from Wellbrutin (sp?) when coming off of Effexor, true?
How do you all sleep? Do you need to take something to sleep while on Effexor?
Anyone had experience with Remeron? He said there is a possibility of weight gain. My Pdoc suggested it as I wein off of Effexor.
Are the withdrawals really that bad? Am I just beeing a weeny about all this?
Thanks
Posted by LisaDiann on February 25, 2002, at 12:51:50
In reply to Re: just another coming-off-fxr story » LisaDiann, posted by Reneeb on February 25, 2002, at 12:34:09
Renee...I agree with you on that one also!! I'm looking for another doctor this week. I called my pharmacist yesterday and asked if he has ever heard of withdrawals from Effexor and he said NO...can you believe that????? man o man...what a bunch of crap.
Posted by Reneeb on February 25, 2002, at 12:53:10
In reply to Re: Anyone had success on Effexor XR? , posted by Allen F. on February 25, 2002, at 12:41:53
> I have read that some have benefited from Wellbrutin (sp?) when coming off of Effexor, true?
>
> How do you all sleep? Do you need to take something to sleep while on Effexor?
>
> Anyone had experience with Remeron? He said there is a possibility of weight gain. My Pdoc suggested it as I wein off of Effexor.
>
> Are the withdrawals really that bad? Am I just beeing a weeny about all this?
>
> Thanks
Hi, I have been weaning off of effexor really slow and last night I started doing taking it every other day. Today, I have a headache that won't go away. I feel sick to my stomach. I started on 150mg for a year. Weaned down to 75mg and now 37.5mg. I have also been on wellbutrin for the same time. I have had no problems with it. Only in the beginning which is probably standard with all meds.I had a problem with sleep in the beginning of taking effexor,but it seemed to go away. (I have a sleeping disorder) and it was okay.
Hope this helps,Renee
Posted by JANNBEAU on February 25, 2002, at 13:49:41
In reply to Re: sexual side effect- effexor-xr, posted by Jetson on February 25, 2002, at 11:14:36
Hi,
I think you should have a thorough checkup to rule out some other cause of your erectile dysfunction (ED). Although I could not (and would not)tell you that your ED is NOT due to having taken Effexor five years ago, that seems an excessive length of time to attribute an adverse event to a medication. There are many for ED, including: age-related hormonal changes; physical illness to include diabetes mellitus (recognized or unrecognized); vascular disorders; psychological illnesses unrecognized anxiety or depression; medications you currently take that might include over-the-counter meds--just a few examples. I don't pretend to be an expert. The point is go to see a GOOD urologist, endocrinologist, or other internal medicine specialist for a work up. Don't take "no" for an answer from your GP or psychiatrist.
Thanks for listening.
Jannbeau> I have been off of Effexor since 1997.
> I still do not get erections as easily as I used to. I can have orgasms, but they are mostly not as intense. In general I am frustrated with the side-effects of Effexor that do seem to last for a long time after termination.
>
>
> > I started taking effexor xr 2 almost 2 weeks ago,my first anti-depressant(possibly last), and felt tired and terrible and dazed every waking hour of the day while taking it, headaches, cannot reach an orgasm at all. I took 37.5 mg aday for 7 days and 75 mg for 2 days and have now stopped cold turkey. I have yet to experience any side effects, been about 55 hours since last dose, still cannot reach an orgasm, wife is very upset and I'm not far behind her. Will this go away or could this be a pemanent development?
Posted by Reneeb on February 25, 2002, at 14:06:46
In reply to Re: just another coming-off-fxr story, posted by LisaDiann on February 25, 2002, at 12:51:50
> Renee...I agree with you on that one also!! I'm looking for another doctor this week. I called my pharmacist yesterday and asked if he has ever heard of withdrawals from Effexor and he said NO...can you believe that????? man o man...what a bunch of crap.
You know you probably wouldn't mind if they would have asked you to be a guinea pig!! It's just so scarey that the Doctors and pharmacists don't have all the information on the meds they are passing out.
Posted by marlene on February 25, 2002, at 16:57:37
In reply to Re: sexual side effect- effexor-xr, posted by John2 on February 25, 2002, at 12:11:26
> i've been taking Effexor for about two months., now at 225 mg. it is generally helping, though i definitely have the sexual side-effects, which are probably so prevalent they really shouldn't be called "side" effects.... with help of viagra things work just fine, just takes a long time, but the orgasms are extremely intense ... however, i had no idea some of these effects could become long term after you stop taking Effexor. have been assuming once i was off effexor all would return to normal... would like to hear if anyone else has had problems like Jetson has.. thanks!
another woman's view on sexual side effects, within 7 days of going cold turkey of 300 mg effexor per day for over two years, my sex drive came back as strong as before. It was really non-exsistant for the last 9 months till I stopped effexor. Also had a hysterectomy in 9/00, doctor thought it(lack of interest in sex) was due to that. I did have complete work up, and it was nothing they could find. As soon as I stopped effexor, and got over the nausea, shaking and skin crawling, my sex drive came back. I want to stress, I did have a complete check up to rule anything else out. Go to the doctor and get checked, and then decide what to do from there.
Posted by noa on February 25, 2002, at 16:59:54
In reply to Re: weird symptom, posted by Allen F. on February 22, 2002, at 23:34:05
getting a second opinion from another pdoc is always an option.
Posted by dot on February 26, 2002, at 20:27:07
In reply to Re: just another coming-off-fxr story » LisaDiann, posted by Reneeb on February 25, 2002, at 14:06:46
hi:
i experienced a severe allergic reaction while taking effexor xr. had been on for 3.5 months with some side effects but nothing major, and i think it was helping with mood. anyway, started getting severe hives, trouble breathing etc. doc thinks it is attributed to effexor but took blood and will do tests, results by end of week. he told me to stop cold turkey and come back and see him in a week. i was at 150 mg per day and am suffering withdrawal symptoms quite strong after day two of being off. hives are still here but less intense and can breathe now. can anyone tell me if they have heard of similar allergy reactions? any tips to help me ride out the dizziness etc? any help would be greatly appreciated! thanks!
Posted by RIgirl on February 27, 2002, at 11:02:02
In reply to Re: withdrawal, posted by Janey on April 18, 2000, at 17:59:12
I'm trying to get off Effexor completely and find out what life is like without it. I went on 75mg in September and have gotten myself down to 37.5 now. Any thoughts on what to expect or how to deal with the withdrawal symptoms? Today will be my second day skipping...
Thanks
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