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Dr. Bob is Robert Hsiung, MD,
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Posted by Brenda on May 12, 2000, at 13:30:21
In reply to Re: topamax, posted by mj on May 10, 2000, at 15:09:33
> Has anyone LOST any weight with this topomax. I have gained 75lbs on lithium and zyprexa with dieting and exercising with a personal trainer. If anyone's had any luck with losing the weight please let me know how. Thanks
Mj - I was on Topamax 100 mg. for about two months. I did experience loss of appetite. I was also on Wellbrutrin at the time and had absolutely no desire for food. It was actually a problem, as I have low blood sugar and would get hypoglycemic.
Good luck, Brenda
Posted by CH on May 31, 2000, at 13:34:46
In reply to Re: topamax, posted by Ellen Brodie on May 30, 1999, at 18:56:01
I'm currently taking Topamax and does curb your appetite. I've lost a few pounds.
Posted by kady on June 2, 2000, at 13:24:38
In reply to Re: topamax, posted by CH on May 31, 2000, at 13:34:46
From prior postings here I found the majority of people lose weight while on Topomax. What I have just read in this long thread though makes me ponder. I am seeing a neurologist after suffering from migraines for the past 7 years. The GYN nor the Pri Care seemed to be able to take care of the problem. I am now in the stages of trying out different migraine meds to see if any work or react badly. Last follow up the neuro mentioned this Topomax. He is prescribing it to some with migraines. Why would this be? Also, I am reading much to do with bi polar, depression, and this Dr advised me this was a new drug to treat seizures. I know it all happens in the brain and sometimes chemically, I am just trying to put together why this is prescribed for so many different things. Anyone have any knowledge on this? By the way, the weight loss thing, this Dr states his most hopeless migraine case is a woman who just recently underwent some gastro surgery to help her lose weight. Since on Topomax, she is losing weight for the first time in her life! And the migraines are treated. I too am curious as to what Nancy's reply will be on why her Dr will not prescibe it anymore. I am trying to find out as much as I can on this drug before taking it. My husband is on Dilantin after surgery for an AVM and I noticed much mental slowdown with him. He has been on it for 3 years now and is just starting to think quicker and more clearly. I wonder if all seizure realated meds have this "dulling" effect? Thanks
Posted by Amy O on June 7, 2000, at 13:37:14
In reply to Re: topamax, posted by CH on May 31, 2000, at 13:34:46
This is my first time writing in to anything like this, but I just started taking Topamax today and am curious about all the side effects I have been reading about. I was not aware of any cognitive "dulling" until reading about it just now. Is it very noticeable? I am only taking 25mg a day, then upping 25mg every two weeks until it reaches a suitable level. I am wondering though if this is the drug for me- It sounds like every one is very depressed- I have in the past suffered with bouts of depression,(these seem to come in waves) but my main concerns now are racing, eratic behavior, inability to focus on one thing (always thinking about what I should be doing) and a eating disorder- My doctor informed me topomax was very successful in treating an eating disorder (where 100mg of prozac failed) and has a calming effect. Anyone have symptoms like these??
Posted by brynn on July 12, 2000, at 16:20:07
In reply to Re: topamax, posted by Amy O on June 7, 2000, at 13:37:14
I recently began taking topomax yesterday and will
be taking 100mg a day 2 tablets in the morning and
at bedtime..i also take serezone(400), and wellbrutrin(100)
xr..Until now i have been diagnosed with major
depression, but i found out I am bipolar. Yet i am
still trying to deal with all that too. I hope I do
get better with the topomax and if i lose weight
great, but I noticed last night i could not sleep
soundly..maybe nerves about starting a new medication again..I
was taking depakote and Boom! i was sleeping like
a baby for the first time in years, my insomnia
has been pretty crazy b/c of my depression..well
now that i know i am bipolar it all makes sense the
moodswings, the ups and downs and all but one thing
is for sure I will say Depakote made my hair fall
out as quick as three days so plz, be careful
if you ever take this and thank god i am off of
it and i did not gain any more weight hopefully i
will lose the weight i have gained by being
depressed..I am a little scared of the cognitive
dulling effect..at what dosage does this happen,
and did any of you have any of the insomnia effect
i mentioned earlier-thx for your response to any of
this..
Posted by Janice on July 12, 2000, at 21:50:37
In reply to Re: topamax, posted by brynn on July 12, 2000, at 16:20:07
hi brynn,
I began Topamax about a month ago and have just had 2 decent nights of sleep--Finally! I thought the Topamax was supposed to make me drowsy.My mood is stable and good, with no cognitive dulling. Good luck with it. The sleeplessness was a surprise to me too. Janice.
Posted by Moe on July 14, 2000, at 22:08:44
In reply to Re: topamax, posted by Janice on July 12, 2000, at 21:50:37
Hi all.
I have a semi-long story, to be followed up by a question....maybe just a statement, I don't know, yet.
Okay, I was hit by a car 12 years ago, had a seizure at that time, had a head injury and partial paralysis. Since then, my memory / intellect/ motor functions are back to where they were before the accident (Which I am greatly thankful for), and I was just a normal 28 yr old. I finally got up the courage to ask my doctor for anti-depressants and was put on Prozac, which I have probably needed for at least 6 years. Anyway....the doctors did not think I would have any more seizures, nor did I, since I had been off Phenobarb for 10 years without incident (they thought it was probably trauma-induced), but I have had 2 in the past 4 months. I guess my question / statement is two-fold -- Do you think the Prozac could be causing the seizures? And, if I go on Topomax (Which the doctor has warned about before the last EEG), will it counter-act with the prozac or could I ask about going off the prozac (Not that I would want to....I love prozac!) for fear of counter-actions of the different drugs?
Posted by Karla on August 9, 2000, at 21:36:30
In reply to Re: topamax, posted by Moe on July 14, 2000, at 22:08:44
> Hi all.
> I have a semi-long story, to be followed up by a question....maybe just a statement, I don't know, yet.
> Okay, I was hit by a car 12 years ago, had a seizure at that time, had a head injury and partial paralysis. Since then, my memory / intellect/ motor functions are back to where they were before the accident (Which I am greatly thankful for), and I was just a normal 28 yr old. I finally got up the courage to ask my doctor for anti-depressants and was put on Prozac, which I have probably needed for at least 6 years. Anyway....the doctors did not think I would have any more seizures, nor did I, since I had been off Phenobarb for 10 years without incident (they thought it was probably trauma-induced), but I have had 2 in the past 4 months. I guess my question / statement is two-fold -- Do you think the Prozac could be causing the seizures? And, if I go on Topomax (Which the doctor has warned about before the last EEG), will it counter-act with the prozac or could I ask about going off the prozac (Not that I would want to....I love prozac!) for fear of counter-actions of the different drugs?I had been seizure free for 7 years and no meds. I took amitriptalyne (antidepressent) to try to prevent cluster headaches and also for depression. I was on a very low dose and it triggered a seizure. My dr. took me off the medicine asap. and I have been seizure free since (2 years). I am now on celexa and have had no seizure problem. In the inserts they warn you if you have a history of seizures they may cause them. So be carefull and good luck!
Posted by archer on September 10, 2000, at 8:10:43
In reply to Re: topomax, posted by nancy on April 21, 1999, at 12:00:06
hi im a new topomax user. after years of suffering from frequent, severe, mood swings and numerous meds i was finally sent for a psychiatric evaluation and taken off prozac and put on topomax. just stated this week with 25mg daily for the 1st 2wks. then 25mgs bid along with serzone. i am very hopeful at this point. i have put on 30 lbs this last year and am totally disgusted by my binge eating. any info will be welcomed. thanx for the outlet. archer
Posted by Janice on September 11, 2000, at 10:56:52
In reply to Re: topomax, posted by archer on September 10, 2000, at 8:10:43
hi archer,
I'm not sure what kind of information you are looking for, but I highly doubt that topamax will cause you to gain weight. I've heard after doses of 200mg, some people actually lose weight.
I'm on Topamax as a supplement mood stabilizer to lithium, and it has stopped my rapid cycling. This has been nothing short of a miracle for me since I have been rapid cycling for 15 years.
So many mood stabilizers cause weight gain and the best thing about Topamax is it doesn't. Increasing your dose slowly, which you are doing, will lessening the chances of any cognitive slowing (which is a possible side effect).
The best of luck to you, Janice
Posted by sg on September 17, 2000, at 22:21:22
In reply to Re: topamax, posted by kady on June 2, 2000, at 13:24:38
>
My situation is the exact same.. my neurologist put me on Topamax for migraines, sleep, and weight loss.. said nothing about seizures or bi-polar... I am concerned about the varied uses... In fact they think I have Fibromyalgia... Any and all info would be appreciated... I'm on 25mg 7days,50mg, 75mg etc... scaryFrom prior postings here I found the majority of people lose weight while on Topomax. What I have just read in this long thread though makes me ponder. I am seeing a neurologist after suffering from migraines for the past 7 years. The GYN nor the Pri Care seemed to be able to take care of the problem. I am now in the stages of trying out different migraine meds to see if any work or react badly. Last follow up the neuro mentioned this Topomax. He is prescribing it to some with migraines. Why would this be? Also, I am reading much to do with bi polar, depression, and this Dr advised me this was a new drug to treat seizures. I know it all happens in the brain and sometimes chemically, I am just trying to put together why this is prescribed for so many different things. Anyone have any knowledge on this? By the way, the weight loss thing, this Dr states his most hopeless migraine case is a woman who just recently underwent some gastro surgery to help her lose weight. Since on Topomax, she is losing weight for the first time in her life! And the migraines are treated. I too am curious as to what Nancy's reply will be on why her Dr will not prescibe it anymore. I am trying to find out as much as I can on this drug before taking it. My husband is on Dilantin after surgery for an AVM and I noticed much mental slowdown with him. He has been on it for 3 years now and is just starting to think quicker and more clearly. I wonder if all seizure realated meds have this "dulling" effect? Thanks
Posted by Karla on September 21, 2000, at 22:06:33
In reply to Re: topamax, posted by sg on September 17, 2000, at 22:21:22
I read on the internet when I was researching epilepsy the other day that the same neuron chemical that is responsible for epilepsy is also responsible for migraines. To much of it causes seizures, to little causes migraines. Many anti seizure medicines are used to treat migraines. I have mirgraines and cluster headaches. I have heard of Nurontin, Topamax, Dilantin, Depakote, and others being used. Also antidepressents are used to treat depression but are also used to treat headaches. Amitriptalyne, celexa, et . I am on Topamax (125 mg) and celexa (40 mg). Also heart medicines are used such as vepramil, propranol, inderol, etc. I am also on vepramil for my headaches.
The topamax and celexa both cause mental slowdown, tiredness, fatigue, lack of concentration, etc. but as your body gets used to it the effects are suppose to lesson. Another thing is key to the sucess of the drug Topamax is that it needs to be introduced to your body very slowley. 25 mg every 2 weeks. Keeping an am/pm balance. This will let your body adjust. If you get to tired or mentally slowed down they can slow down the increasing of the dosage. I have enjoyed being on it. I have tried all the medicines mentioned in my email and the topamax is the best tollorated by me so far. Good luck. go to www.rxlist.com and enter in topamax and it will bring up information
on the drug and give you all the possible side effects of the medicine even the rare ones. Good luck!
Posted by archer on September 22, 2000, at 21:51:00
In reply to Re: topamax, posted by Karla on September 21, 2000, at 22:06:33
>hey karla, thanks for the info on topomax. i was wondering why i was on such a small amount. i started on 25mg daily for 2wks, then 25mg bid this week, while starting 50mgs of serzone bid also this week. i've had trouble sleeping for the last 4 nites but figure thats because i weaned off the prozac for 2 weeks and that was completely out of my system. so i'll be patient for now. it was good to read your thread. thanks again. archer
Posted by Karla on September 23, 2000, at 14:43:08
In reply to Re: topamax » Karla, posted by archer on September 22, 2000, at 21:51:00
Archer, The trouble sleeping could be caused by the topamax also. The first week I was on Topamax I experience axiety and insomnia. It went away the second week. Then my dose was uped the third week and I again experience axiety and isomnia. The fourth week it went away. The sixth week on I have had no trouble with it. So it could be the topamax. Just a thought. Might want to mention it to your dr. and let him sort it out.
Posted by archer on September 24, 2000, at 19:50:08
In reply to Re: topamax, posted by Karla on September 23, 2000, at 14:43:08
>karla, thanks for feedback. i will bounce it off my dr. when i see him in oct. by then i will have been on topomax for 5 wks and serzone for 4 wks. im keeping track of strange things i notice so i can let him know. i realize these side effects disappear after weeks on the meds. but just in case they dont. ya know. ive heard great things about topomax and am very hopeful that it will help me along with some intense therapy. thanks again. archer
Posted by Bonnie Sue on October 13, 2000, at 17:22:54
In reply to Re: topomax, posted by archer on September 10, 2000, at 8:10:43
>new user of topamax myself and a little worried at the fast rate of increase my Physician
popped me on.....50 mg 1st day 75 mg 2nd and 3rd then 100 mg 4th 5th 125 etc ...... working to 200 fast and Im experiencing some problems! It has only been a week and Im wondering if any of you have had severe arm and leg pain? (as in shooting sharp pains) Doc says expect nerves to act up but this is a little crazy(hee..hee) ...though I am feeling much less suicidal day by day...(DX PTSD with no satisfaction in many years on many meds ...)Im surprised at the quick results already as far as my mood swings but pain is unbearable???? connected ...not connected...has anyone else experienced this? Thanks.....Bonnie
(I am documemting changes just in case related to increase at fast rate....hope all is well as you all sound so positive with effect and with wieght as well and I am also a 55 lb extra due to many little pills in past 15 years! )hi im a new topomax user. after years of suffering from frequent, severe, mood swings and numerous meds i was finally sent for a psychiatric evaluation and taken off prozac and put on topomax. just stated this week with 25mg daily for the 1st 2wks. then 25mgs bid along with serzone. i am very hopeful at this point. i have put on 30 lbs this last year and am totally disgusted by my binge eating. any info will be welcomed. thanx for the outlet. archer
Posted by amyw on October 14, 2000, at 16:27:18
In reply to Re: topamax, posted by Amy O on June 7, 2000, at 13:37:14
My son just started topamax for a binge eating disorder after many tries with prozac and wellbutrin. I am hoping to hear that it is helping you in this area. Please write back and let me know how you are doing. this problem is a total nightmare for him and topamx is upposed to curb the urge to binge.
Posted by Bonnie Sue on October 14, 2000, at 18:34:22
In reply to Re: topamax, posted by amyw on October 14, 2000, at 16:27:18
>unfortunatly can not help you with binge eating my wieght gain came over time and very slowley with many years of meds. but good luck though I have not read this as a reason for such a strong med other than if your child has had trauma .....but I am not a Doc just a researcher after many years of docs and meds..... my main concern again if anyone should read this please respond to previous writing "dated 10/13/00 Bonnie Sue" as I have severe pain....again good luck to you and your child....!
Bonnie sue
My son just started topamax for a binge eating disorder after many tries with prozac and wellbutrin. I am hoping to hear that it is helping you in this area. Please write back and let me know how you are doing. this problem is a total nightmare for him and topamx is upposed to curb the urge to binge.
Posted by amyw on October 15, 2000, at 22:01:49
In reply to Re: topamax » amyw, posted by Bonnie Sue on October 14, 2000, at 18:34:22
Hos problem is not just binge eating. The eating comes with a severe agitaion during which he feels a racing inside and literally becomes frantic. It is being viewed as a bipolr thing.
Posted by archer on October 16, 2000, at 21:44:36
In reply to Re: topomax » archer, posted by Bonnie Sue on October 13, 2000, at 17:22:54
> hi bonnie-sue, im still new to topomax, but what i've read about it the slower the better. im not a dr and im sure he took your initial symptoms and their severity into consideration before subscribing this med? i would wonder was this a psychiatrist or a primary care pysician? keep trck of your symptoms as you up the dose and dont be afraid to keep in touch with your dr. i was put on topomax along with serzone and experienced a slew of sie-effects. tracked them all not sure which med was responsible for them, and thought they would go away. they didnt and i suffered 5 wks until i followed up with my dr. he took me right off the serzone. within 3 days i felt 90% better and will soon start effexor xr or xl not sure which one. i had bad leg pains after i weaned off serzone. just be aware of you symptoms, write everything down. goo-luk. topomax is helping with my appetite. talk to ya soon. archer keep in touch.
Posted by Bonnie Sue on October 18, 2000, at 10:49:19
In reply to Re: topomax » Bonnie Sue, posted by archer on October 16, 2000, at 21:44:36
>Thanks Ellen.....seems symptoms are starting to subside all but leg pains and cramps! I do like however the way Drs seem to say that you may be a "little" uncomfortable at 1st ! Hah! Thats a understatement. My Doc is a PHD In Pchchiatree(hee hee). Oh and he is also planning on adding effexor to my regiment to stabilize my highs and lows from PTSD.... he states this has been highly effective with patients that have not responded to the ssri and the other thousand of drugs out there they have tried on them (like me). Yes I am documenting problems and good effects of med...I really believe however at this point if the weakness and pain does not come back, so far so good....also very pleased with appetite change...(very normal) I used to eat very little but wrong times of day and the wrong foods! Now I am actually hungry in AM and around 3ish than fine rest of day but not overly hungry and not hungry for ^ sugars or fats....except have this strange craving for cheeses and only thing I want to drink is fruit punches ....water and teas! >
Only pain problem left is numbnes and tingling in feet...hands at times...though the feet turn into leg cramps late at night...starts with the heel falling asleep and then feels like one of those old toy planes you wind up with a rubber band
working its way to my knee in a cramp that no one would believe the pain! So Im feeling fairly confident that I will get through this....mind is clear....not all stoned feeling....lost 4 lbs already (while eating) "2 wks" and my eyes dont look all wild or in foo foo land which on most meds its one way or the other.......I hope all goes well for you too....thanks for responding...keep in touch if you ever want to respond by email Im not sure how they do that here without the whole world but let me know since we both started at the same time on the same meds! HMMMMM...thought for the day!!!!.PHD drugs of choice???????!!!!!! just a joke.... Bonnie Sue
hi bonnie-sue, im still new to topomax, but what i've read about it the slower the better. im not a dr and im sure he took your initial symptoms and their severity into consideration before subscribing this med? i would wonder was this a psychiatrist or a primary care pysician? keep trck of your symptoms as you up the dose and dont be afraid to keep in touch with your dr. i was put on topomax along with serzone and experienced a slew of sie-effects. tracked them all not sure which med was responsible for them, and thought they would go away. they didnt and i suffered 5 wks until i followed up with my dr. he took me right off the serzone. within 3 days i felt 90% better and will soon start effexor xr or xl not sure which one. i had bad leg pains after i weaned off serzone. just be aware of you symptoms, write everything down. goo-luk. topomax is helping with my appetite. talk to ya soon. archer keep in touch.
Posted by RBowling on October 20, 2000, at 1:20:58
In reply to Re: topomax » Bonnie Sue, posted by archer on October 16, 2000, at 21:44:36
I take 600mg Topamax/hs. I take 595mg Potassium/day, plus 1100mg Calcium/day for leg cramps. This seems to keep them at bay for me. I continue to drink at least 2-3 liters of water per day as recommended by the drug company to prevent kidney stone formation.
(I can go into detail as to why we get the leg cramps if everyone wants to know why)....-- Rob
Posted by archer on October 20, 2000, at 6:12:48
In reply to Re: topomax » archer, posted by Bonnie Sue on October 18, 2000, at 10:49:19
hey bonnie, sounds like your doing quite well since last we talked.i to will be starting effexor actually tomorrow. im a little concernced because i heard it causes drowsiness (since weaning off serzone and being unmedicated for probably the first time in many years im enjoying my new found energy.) and kills sex drive (also something im enjoying again). i do have to admit though it has been quite a rollercoaster ride all week . all i can think of is the millions of people at amusement parks all over the world buying tix for these things and all i have to do is wake up every day, take a shower, get dressed strap myself into the seat and im off. in fact i tell the girls i work with to make sure they pull the seat bar down tight over their heads and be sure to keep arms and legs in while ride is in progress, and to be sure not to exit until ride comes to a complete stop! we laugh all day at my ups and downs. thank god for humor! sounds like you have a pretty good sense of humor yourself. i think most of us that suffer from personalitiy disorders do. not to say we dont suffer. dont get me wrong. we tend to do our suffering alone or diminish our pain around others. at least i do. i must remember i can only speak for myself.something im learning. well gotta get in shower. running late for work. something else im working on ha- ha! hang in there. leg cramps anytime are a bitch, let alone at nite. what about quinine? they used it years ago to quiet leg cramps. ask ur doc. talk to ya later. archer ps- gotta change this font man its killing me. needs some color too. see ya. have a good one!
Posted by Bonnie Sue on October 20, 2000, at 12:43:04
In reply to Re: topomax » Bonnie Sue, posted by archer on October 20, 2000, at 6:12:48
>WEll hi....yes I am doing better but hope to be going back to work such as your self someday again soon....BIG GOAL you know ! Owned my own busness for many years and went kuputz same time I went kuputz very close there after (final scene) very dramatic!.....so as you say buckle your seat belt no roller coaster needed here....yes doing better...but leg cramps are a bit..! However now I know why I am craving cheese...Rob...ahead of us is on ^ calcium and potassium that explains it! So i will just increase my viactin and Pottasium intake and see if that helps ..oh and by the way...our goverment has taken ouinine off the shelf without a prescription (can you believe that?) my dad used to drink it out of little soda bottles!
Well counseling ahead of me today ....to see if I am doing ok!!! So talk to you soon ....good luck 1st wek is hard ...let me know if i can talk you through any thing....P >S > Sex drive has not diminished as of yet but its only been a couple weeks....Bonnie Sue
hey bonnie, sounds like your doing quite well since last we talked.i to will be starting effexor actually tomorrow. im a little concernced because i heard it causes drowsiness (since weaning off serzone and being unmedicated for probably the first time in many years im enjoying my new found energy.) and kills sex drive (also something im enjoying again). i do have to admit though it has been quite a rollercoaster ride all week . all i can think of is the millions of people at amusement parks all over the world buying tix for these things and all i have to do is wake up every day, take a shower, get dressed strap myself into the seat and im off. in fact i tell the girls i work with to make sure they pull the seat bar down tight over their heads and be sure to keep arms and legs in while ride is in progress, and to be sure not to exit until ride comes to a complete stop! we laugh all day at my ups and downs. thank god for humor! sounds like you have a pretty good sense of humor yourself. i think most of us that suffer from personalitiy disorders do. not to say we dont suffer. dont get me wrong. we tend to do our suffering alone or diminish our pain around others. at least i do. i must remember i can only speak for myself.something im learning. well gotta get in shower. running late for work. something else im working on ha- ha! hang in there. leg cramps anytime are a bitch, let alone at nite. what about quinine? they used it years ago to quiet leg cramps. ask ur doc. talk to ya later. archer ps- gotta change this font man its killing me. needs some color too. see ya. have a good one!
Posted by Bonnie Sue on October 20, 2000, at 12:53:01
In reply to Re: topamax, posted by amyw on October 15, 2000, at 22:01:49
> Well I hope this helps you ....how old is your son? My daughter had a trauma that caused her to protection eat at the age of 17 to 24 she went from 120 lbs at 5ft 9 to 277 lbs at 5ft 9 now that she is 27 y/o and has been on "KLONIPIN" for 1 year she has reestablished her original wt. basically and is healthy again at about 150 lbs ....I was very relieved ....Im sure you know the feeling when all this starts ...I did not intend to offend you...sometimes I wonder about DOCS as many of us have been on the wrong meds or have been put on as test studies if you know what I mean so I really do hope this works for your son.....my daughter had a terrible time and I wish that on no minor or young adult child or thier parent ...it is nothing to make light of... its a terrible problem to deal and/or live with! Blessed BE! Bonnie Sue
Hos problem is not just binge eating. The eating comes with a severe agitaion during which he feels a racing inside and literally becomes frantic. It is being viewed as a bipolr thing.
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