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Re: topomax NeNe

Posted by headachequeen on October 13, 2004, at 13:57:27

In reply to Re: topomax, posted by NeNe on October 12, 2004, at 17:20:35


> Sounds as if you also have lost a loved one, I to am very sorry, I myself am still in denial.

I am still at the anger stage... at times I cannot believe that my grandfather who died in 1974 would be so cruel as to die and leave me... I still come home with things I want to tell him or share with him or ask him , and suddenly realise that he is not here any more, then feel totally abandoned... time to grow up, I know... is it any wonder I had a breakdown over my dog????
> Thank you for offering your help with my new lab love I guess you could say to keep my life going.
> I would apppreciate your e-mail addie and I will also give you mine.
I have already been in touch with you and we shall start working together with him... now Dr. Bob does not have to worry... as I said it is not something that fits the social thing either... so we shall not discuss it any more here ....
as I said in a previous post, we shall take it private so as not to bother him...
anyone else who wants my help can let me know and I am always available but it must be on private email...

>I noticed you are taking tegretol is this for >manic-depression or for seizures, and are you >taking topomax along with tegretol...

I am taking them for seizures as I am an epileptic...
The topomax was prescribed to boost the tegretol and deal with migraine... but according to the neurologist I saw yesterday the dosage of both is enough for a child, a small child...
so my dosages are increasing...
and maybe now there will be some peace and tranquility in my life...
today I woke up feeling less stress .... I felt as if I could enjoy the day... look forward to things because I did not have to wonder when I would suddenly lose control of the world around me, have no idea what was happening to me, where I was, and what I was doing...
this doctor is actually working with me...
he is intent on finding what causes the epilepsy;
says the meds do a good job of masking or controlling the symptoms which does improve the quality of life, but that it is better to find the cause and deal with that...
now to me, that makes sense, although I wonder if it is possible...

so he asked a number of questions as he believes I have had it since childhood based on his tests and on my files...
and based on the answers to his questions yesterday, it would seem that he is right...
then I come to talk to my mother...
was I a premature baby? well, only three weeks or so...
did I have any high fevers with hallucinations or the like... that I did remember actually...
and both these things could have an effect on the situation...

in the tests that were done and that he has interpreted, there is indication of significant scarring or focii on my brain, the left side, apparently... around the temple if I remember rightly...

then my mother went on to tell me that as a child I would waken in the night crying and confused and would settle down only after she had washed my face and hands and talked to me, told me who I was ... then I would tell her that was what I had needed and go back to sleep...
hello, mother, why not tell me this before I went to the first neurologist??? or at least to this one????
Perhaps some of it was significant???? (she is semi-invalid following two strokes and living with us so she knows that we are trying to solve this riddle and knew I have been seeing a neurologist and was about to see another -- it has been no secret that I have been having times of total confusion and times when I was unconscious for lack of a better description for up to 45 minutes and then groggy and unable to focus or read or function for a day or two afterward and on it goes...)

So now I have the info that he needed yesterday...
duh... but it may be another piece or two in the puzzle...


>Kat I have been on and off so many meds that its >no wonder one can get depressed, and to know >that for the rest of there life they will >continue to be on them...thank you so much for >being there , and I thank God for stumbling onto ?this thread !

Some of the meds are frustrating and frightening...
and when I see the ads on television that seem to indicate that one should tell the doctor that this is the medication one needs so prescribe it right now or else...
and then the side effects that are possible...
I start to wonder why a doctor needs to go to med school for all those years... all one seems to need to do is watch television and decide for one's self...
it's a smorgasbord...
scary stuff...
when we know from experience and others' experiences what can happen when stuff is prescribed with care and understanding and knowledge and then these companies are allowed to advertised to the untrained unskilled public...
I really wonder...

take two aspiring and call me in the morning is no longer a joke... they say that if aspirin were discovered today it would not be sold off the shelf but be a prescription drug because of the power of it...

food for thought there I think...

but I still think that together, we as a group will get through anything...

I know that this bunch of people gets me through a lot that they don't even know about...
told the neuro about you yesterday and he was impressed and pleased...
told me how fortunate I was as he increased the dose LOL
kat


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poster:headachequeen thread:5053
URL: http://www.dr-bob.org/babble/20041012/msgs/402702.html