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Dr. Bob is Robert Hsiung, MD,
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Posted by gadchik on October 26, 2013, at 7:26:35
In reply to Re: spinning... » gadchik, posted by Phillipa on October 25, 2013, at 20:18:01
Didnt u feel totally out of control when it happened. Unlike anything Ive ever experienced, sooo scary. I believe that's why I havent been successful tapering klonopin. Everytime I try, dizziness, almost spinning, is the first withdrawal symptom I get.
Posted by Poet on October 26, 2013, at 10:57:54
In reply to Broke my arm, posted by Dinah on October 25, 2013, at 9:55:05
You'd think they'd take a calm person just as seriously, oh well, I guess Emergency Rooms are used to panic. Hope you mend soon. Maybe you'll end up being able to use both hands equally.
Poet
Posted by Phillipa on October 26, 2013, at 22:22:03
In reply to Re: spinning... » Phillipa, posted by gadchik on October 26, 2013, at 7:26:35
I just lay there didn't move till went to Er. Then after the Ativan I think it improved but it took antivert and reading only a few days to get back to normal. Well really not there more than 15 years later.
Posted by Dinah on October 29, 2013, at 9:10:17
In reply to Re: Broke my arm » Dinah, posted by alexandra_k on October 25, 2013, at 15:45:16
I am! Such as they are. I may find there are more when I go in for my followup.
I don't think I'll ever be able to choose multiple objects with my left hand. Never. :(
Posted by Dinah on October 29, 2013, at 9:13:11
In reply to Re: Broke my arm, posted by baseball55 on October 25, 2013, at 19:33:52
That's what I did last time. I got pretty good at it. If I put my hand on something vertical, it helped me stabilize myself.
Last time I had an inner ear infection. I'm not sure what it is this time. They're looking into it. But I don't think there was much I could do about the disequilibrium when it was that intense and sudden, except fall or grab onto something if something were handy. :(
Posted by Dinah on October 29, 2013, at 9:20:17
In reply to Broke my arm, posted by Dinah on October 25, 2013, at 9:55:05
I'm starting to feel depressed. I had another vertigo attack, this time more vertigo and less disequilibrium so I didn't fall. But I followed up with my ENT and he basically said that my husband was right. I shouldn't be doing anything where I might fall. (Which means I shouldn't do anything). I shouldn't look at the computer much, moving my eyes. I shouldn't reach up for anything, or walk on a treadmill. I can't drive until he clears me for driving. He might put me in a collar so I can't move my head, which along with my arm sling will be quite a sight. It could be as long as two weeks before I can even hope to get cleared.
I feel helpless and frustrated. My husband is being wonderful, but he is also feeling a bit frustrated I can tell. I like doing things for myself. I don't know how I'll be able to regularly see my therapist. My husband is willing to work at finding a time, and so is my therapist, but so far it's not proving easy. And I hurt my arm by accidentally trying to grab for something I dropped - pure instinct.
I think I've definitely hit the whiny phase of recovery.
Posted by Dinah on October 29, 2013, at 9:28:20
In reply to spinning... » Dinah, posted by gadchik on October 25, 2013, at 19:38:29
Well, there's accepting and then there's accepting. I'm not really doing such a good job. And it seems that we're different in that you fear what you can't control and I fear what I can control. Believe me, I am not at all accepting when it comes to being afraid I've done something wrong.
Have you talked to an ENT about how to feel more in control of your vertigo, should it happen again? Or to your pdoc about the realistic probability of withdrawal causing problems of that sort? Because I've done both, and there is nothing in the world like vertigo.
I know how terrifying and unreal vertigo feels. I felt it again with my relapse. This time I had warning, thank heavens, in the form of that totally out of body weird unreal feeling right as everything started to spin around me. I was able to feel partly in control because I was fairly sure of what would happen, but that was a small part of partly. It does feel out of control to the point that I, at least, didn't even really feel like myself at all. There's a definite flavor of unreality that must come with the inability to orient myself with the world around me.
But it might help if you try to grab some vestiges of control. You can't control the onset of vertigo, but maybe you can wrest some control back over what to expect when it happens, how long it will last, what you might be able to do to shorten it, etc.
Posted by Dinah on October 29, 2013, at 9:48:03
In reply to Re: Broke my arm » Dinah, posted by 10derheart on October 25, 2013, at 20:32:14
Yes it is. I'm especially disappointed because I was hoping to use some of my non-deadline time late this year to do some painting outside. That now seems like a long shot.
It didn't hurt as bad as I thought it would. It was just an ache more than a stab of pain, until they moved my arm or had me try to move from one bed to another without help. I couldn't much use the arm, but it didn't hurt anywhere near as bad as kidney stones.
Kidney stones are my 9 of 10. I don't count it a ten because I want to leave room for even worse pain. Kidney stones, those stomach attacks I get (probably gall stones) and a very few of my worst migraines all tie for the most pain.
That's why I hate those scales of pain. I probably scored my arm way too low because I was comparing it to kidney stones.
Posted by Dinah on October 29, 2013, at 9:52:52
In reply to Re: Broke my arm, posted by Poet on October 26, 2013, at 10:57:54
Thanks, Poet.
There were certainly a good number of very vocal people there.
When I jarred my arm the other night I did let out a yelp. Then said "My, that was excessively uncomfortable." My husband pointed out that was an example of why I probably wasn't taken that seriously. :)
It likely comes from having a *very* dramatic mother. Already I've heard from relatives that my simple clean bone break has morphed into a bone fractured in three places through her retelling.
Posted by Dinah on October 29, 2013, at 12:33:35
In reply to Update :(, posted by Dinah on October 29, 2013, at 9:20:17
Ok, this is ridiculous. I was just reminded that yes kidney stones are more painful.
I guess I was given something to whine about.
Posted by Partlycloudy on October 29, 2013, at 15:43:55
In reply to Waiting for locusts, posted by Dinah on October 29, 2013, at 12:33:35
No. Way.
You have kidney stones too? Am I reading this correctly?
Posted by gadchik on October 29, 2013, at 15:49:38
In reply to Re: spinning... » gadchik, posted by Dinah on October 29, 2013, at 9:28:20
I really should talk about what would happen if I got veritgo again. How I would handle it, realizing how easy it is to lose ur sanity. I wound up psychotic over it, and that really was unnecessary, looking back. I almost had another attack during allergy season, in the spring, when I again got fluid in one ear. But it never went full on spinning. I was nuts with worry for days, but am on klonopin daily, so the anxiety never got to that level I had before. And I knew the devil I was dealing with this time. U seem brave to me, and I hope u make a full recovery. Someone mentioned walking,when ur up to it,-wonderful for helping ur brain gets it mojo back ; )
Posted by Dinah on October 29, 2013, at 17:13:03
In reply to Re: Waiting for locusts » Dinah, posted by Partlycloudy on October 29, 2013, at 15:43:55
Yes. :(
An attack late this morning. Kidney stones are definitely at least a 9.
And yet I oddly enough still think of myself as healthy as a horse.I need to increase my fluids. My ENT already told me to cut down on salt and caffeine.
Posted by Dinah on October 29, 2013, at 17:17:11
In reply to Re: spinning... » Dinah, posted by gadchik on October 29, 2013, at 15:49:38
I would definitely follow up with it. Even if it never happens again (and I hope it won't), it might help you when you feel dizzy for other reasons.
Perhaps we never feel ourselves to be brave, since we know what's going on inside us.
Posted by Partlycloudy on October 29, 2013, at 18:03:02
In reply to Re: Waiting for locusts » Partlycloudy, posted by Dinah on October 29, 2013, at 17:13:03
Oh my goodness. I am sending thoughts of gentle waterfalls that are swift. Start chugging water, I guess, right?
I just saw a micro photo of a kidney stone. It looks like it is made of razor blades.
You poor woman. I hope you decide to slow down and maybe take some sick time off work? Though I know it's not your style, this is a lot of stress on your body.
Safe hugs for you. (((. Dinah. ))))
Posted by jane d on October 29, 2013, at 22:53:53
In reply to Waiting for locusts, posted by Dinah on October 29, 2013, at 12:33:35
Is skype for therapy a possibility?
Feel better soon.
Posted by Dr. Bob on October 30, 2013, at 2:03:57
In reply to Broke my arm, posted by Dinah on October 25, 2013, at 9:55:05
Posted by Dinah on November 1, 2013, at 10:14:10
In reply to Re: Waiting for locusts » Dinah, posted by jane d on October 29, 2013, at 22:53:53
As you know, my therapist has many fine and useful qualities, but...
:) My husband is actually taking me there today. If we can arrange an appropriate time, once a week might be possible.
Two weeks until balance testing. At the very least, that should tell the ENT what to do to get me up and about safely for all.
Posted by Dinah on November 1, 2013, at 10:14:33
In reply to Re: hope you feel better soon (nm) » Dinah, posted by Dr. Bob on October 30, 2013, at 2:03:57
Posted by rockerchick46 on November 2, 2013, at 21:08:08
In reply to Re: Waiting for locusts » jane d, posted by Dinah on November 1, 2013, at 10:14:10
Hope you feel better- Soon!
What are you doing to not fall out of bed? Having Hubby hold you tight? Wink
Tam
Posted by jane d on November 3, 2013, at 7:36:27
In reply to Re: Waiting for locusts » jane d, posted by Dinah on November 1, 2013, at 10:14:10
> As you know, my therapist has many fine and useful qualities, but...
>Surely someone is offering weekend continuing ed workshops in skyping for therapists. :) And if not perhaps you could convince your therapist that running those workshops is a potential market niche just waiting for him to fill it.
> :) My husband is actually taking me there today. If we can arrange an appropriate time, once a week might be possible.
>
> Two weeks until balance testing. At the very least, that should tell the ENT what to do to get me up and about safely for all.While you're waiting perhaps you can fill the time experimenting with new recipes. http://www.bbc.co.uk/news/magazine-21847517 (just trying to help :) )
Posted by Dinah on November 3, 2013, at 13:22:27
In reply to Re: Waiting for locusts » Dinah, posted by jane d on November 3, 2013, at 7:36:27
Sort of like a less tasty version of making lemonade if life hands you lemons?
:)
Two weeks down on the arm. Xray tomorrow to make sure all goes well.
The vertigo is a more difficult problem. Hopefully the test will provide the answers needed. But that's almost two weeks away.
Posted by Dinah on November 3, 2013, at 13:23:59
In reply to Re: Waiting for locusts, posted by rockerchick46 on November 2, 2013, at 21:08:08
:-D
Thanks. I am feeling better than I was.
Posted by baseball55 on November 5, 2013, at 19:05:13
In reply to Update :(, posted by Dinah on October 29, 2013, at 9:20:17
I would get a second opinion. I also fell a couple of times from the vertigo. For a second opinion, I went to Mass Eye and Ear, which is like the premier facility in the US for ENT stuff, and the doctor there said -- walk, move, train your brain to rely on your eyes and proprioception to tell you where your body is in space.
> I'm starting to feel depressed. I had another vertigo attack, this time more vertigo and less disequilibrium so I didn't fall. But I followed up with my ENT and he basically said that my husband was right. I shouldn't be doing anything where I might fall. (Which means I shouldn't do anything). I shouldn't look at the computer much, moving my eyes. I shouldn't reach up for anything, or walk on a treadmill. I can't drive until he clears me for driving. He might put me in a collar so I can't move my head, which along with my arm sling will be quite a sight. It could be as long as two weeks before I can even hope to get cleared.
>
> I feel helpless and frustrated. My husband is being wonderful, but he is also feeling a bit frustrated I can tell. I like doing things for myself. I don't know how I'll be able to regularly see my therapist. My husband is willing to work at finding a time, and so is my therapist, but so far it's not proving easy. And I hurt my arm by accidentally trying to grab for something I dropped - pure instinct.
>
> I think I've definitely hit the whiny phase of recovery.
Posted by Dinah on November 6, 2013, at 8:35:11
In reply to Re: Update :(, posted by baseball55 on November 5, 2013, at 19:05:13
I think it depends on what's wrong. Last time I had labrynthitis from an ear infection that had weakened one inner ear. He prescribed exactly that.
Yet this time because it came so literally out of the blue and I fell with no warning whatsoever, he thinks it might be the positional vertigo with that little crystal in the ear. In which case I'd do a set of specific exercises under controlled circumstances meant to dislodge the little blighter. The rest of the time I'd be protecting myself from falls by decreasing the chance of the inner ear fluid sloshing around.
The problem is that there was a two week waiting period for the audiologists to run the tests. Last time I think he had me in in a couple of days. Maybe he's working with fewer audiologists?
My experience so far is that the eye jumping seems to have stopped, but I still feel off balance and a bit dizzy after turning in bed or holding my head certain ways. Nothing serious since that second attack. He's had me cut down on salt and caffeine in case it's Meniere's and I'm still on the anti-vertigo med. I don't think anything I'm experiencing now is dangerous to myself or others. But they just want to make sure that I'm not likely to have another major attack.
This is the end of the thread.
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