Psycho-Babble Medication Thread 884645

Shown: posts 1 to 7 of 7. This is the beginning of the thread.

 

Darn Lyme's Disease on radio now exists all over !

Posted by Phillipa on March 9, 2009, at 17:18:53

Sorry to bring this up again but radio again talking about lyme's disease and how prevelent it is all over the world just different strains of the bugs or spirochettes and different bacterias. Since I did and was positively diagnosed with lymes and that's when all my problems started the failing of thyroid. And now hearing no diagnostic test is accurate. No doc will prescribe antibiotics without a reason as so much antibiotic resistance. What to do? Any suggestions? Phillipa

 

Re: Darn Lyme's Disease on radio now exists all over ! » Phillipa

Posted by Maria3667 on March 9, 2009, at 17:25:52

In reply to Darn Lyme's Disease on radio now exists all over !, posted by Phillipa on March 9, 2009, at 17:18:53

Uhmmmm - ordering AB over the net yourself? Be your own guineapig? I know, naughty, but what else to do when at whit's end??

Or put up an ad in the classifieds for a progessive doctor...

Love,
Maria


> Sorry to bring this up again but radio again talking about lyme's disease and how prevelent it is all over the world just different strains of the bugs or spirochettes and different bacterias. Since I did and was positively diagnosed with lymes and that's when all my problems started the failing of thyroid. And now hearing no diagnostic test is accurate. No doc will prescribe antibiotics without a reason as so much antibiotic resistance. What to do? Any suggestions? Phillipa

 

Re: Darn Lyme's Disease on radio now exists all over !

Posted by bleauberry on March 9, 2009, at 19:00:23

In reply to Darn Lyme's Disease on radio now exists all over !, posted by Phillipa on March 9, 2009, at 17:18:53

> Sorry to bring this up again but radio again talking about lyme's disease and how prevelent it is all over the world just different strains of the bugs or spirochettes and different bacterias. Since I did and was positively diagnosed with lymes and that's when all my problems started the failing of thyroid. And now hearing no diagnostic test is accurate. No doc will prescribe antibiotics without a reason as so much antibiotic resistance. What to do? Any suggestions? Phillipa

Well, most of what you said is accurate Phillipa, but not all of it. Please let me clarify.

There is a diagnostic test that is accurate. That is, a trial of Tetracycline by a Lyme Literate MD.

Is there any accurate test to tell if there are any fish around your boat or what kind of fish? No. But you can throw your fishing line in and find out. You can drag a fishing net and find out. The same thing applies with specific antibiotics.

The closest thing to an accurate test is the clinical experience of an experienced LLMD who asks you a hundred questions about symptoms, history, exposure, and gives you a lengthy detailed neurological exam. Then the antibiotic trial. The lab tests can help, but really are kind of useless. Someone can be very ill, test negative, be given antibiotics specific to Lyme, and get well. Fill in the blanks.

Please don't give me the line about that LLMD who went bankrupt and had his license taken away. Or the LLMD who's patients are still sick. There are jokers in every profession. The other 98% are miracles of medicine that actually give people their lives back.

So diagnosis is accurate. Just not from a lab.

Some people go on to be healed and yet never know for sure exactly what pathogen they had. Was it Lyme? Was it mycoplasm? Was it Clamydia? Babesia? Or a host of others? All very similar and very destructive. Good thing is they all respond to the same treatment as Lyme.

Now, no doctor will prescribe antibiotics without a reason? Sadly true for the general population of GPs and many Infectious Disease specialists. They are bound by the strict criteria of the Centers For Disease Control, or their own egos (remember the "I have spoke" type), or just plain simple lack of updated knowledge. Most doctors are too busy with a waiting room crammed with patients to know what advances are happening in any particular field. They'll know a few years after the fact.

But that is not true of MDs who specialize in Lyme. More and more regular MDs are gaining knowledge and expertise from the successes the LLMDs are having, so hopefully in years to come there will be more widely available good treatment. But for now, the LLMDs do prescribe antibiotics even when there is no proof on a lab test that it is justified.

Whoever made a lab test a God anyway?

You asked for suggestions. Ok. Find an LLMD. Get online and find one in your area who takes your insurance. There are several Lyme websites that will help you accomplish that.

Another option would be to google "Dr Sam Donta Boston Lyme", and google "International Lyme and Associated Disease Society". Print out everything you find. With a yellow marker highlite the important stuff. Take it to the MD of your choice and say, "I want this kind of treatment. I have all the symptoms of Lyme, I was diagnosed with it, I believe based on symptoms that I still have it, I want re-evaluation based on this information I have brought you, and I want antibiotics."

Really it is just that simple.

But you gotta do some homework. Go in unprepared and, well, I know the history of your chosen doctors.

Give them something to work with.

As for the resistance to antibiotics. Yes, there are probably many conditions for which antibiotics should not be used. For example, acne. Or anything that is not life threatening or very crippling. But that does not apply to Lyme. An infected person has no choice.

Lyme and Lyme-like pathogens do not develop resistance to antibiotics. Read Sam Donta's stuff and you'll see why. Other pathogens can and do.

Longterm antibiotics carry potentially serious risk. Very rare, but potential. On the other hand, choosing to NOT take antibiotics GUARANTEES serious outcomes. It isn't even risk...the horrid outcome is guaranteed.

So while I can understand how you might feel trapped, you really aren't. Everything you need to know how to get out of the trap is in this post.

 

Re: Darn Lyme's Disease on radio now exists all over ! » bleauberry

Posted by Phillipa on March 9, 2009, at 20:42:55

In reply to Re: Darn Lyme's Disease on radio now exists all over !, posted by bleauberry on March 9, 2009, at 19:00:23

BB I know and did search the doc and if you are pulsing tetracyclline I also want to. Write. Phillipa ps pdoc said she would get me in to see the infection control doc that has my history and records but eight hours trip? Any other way????

 

Re: Darn Lyme's Disease on radio now exists all over ! » Phillipa

Posted by bleauberry on March 10, 2009, at 16:29:58

In reply to Re: Darn Lyme's Disease on radio now exists all over ! » bleauberry, posted by Phillipa on March 9, 2009, at 20:42:55

There has to be an LLMD a lot closer than 8 hours. I mean, I live out in the sticks and there is one 20 minutes away, another 60 minutes away, and the one I see is 3 hours away.

And, you do NOT want an infection control doc unless he claims to be a Lyme Literate MD. Infectious specialists are bound by rigid rules in treating patients which will likely prevent them from using any of the most successful treatments for you. A private practice regular MD who happens to be an expert on Lyme and is known in Lyme circles as an LLMD, that is the kind of doctor you want.

You can find the right one without getting a referral from your own doc.

But check the guy out. Call him. Ask him straight out if he considers himself a Lyme Literate MD. If he has never heard the term or is puzzled, well, enough said. Ask him if he treats patients longer than 12 months for late stage Lyme. Ask him what percentage of his patients get better. Don't be shy. It's your life we're talking about and you have all the right in the world to ask whatever questions you want to guarantee your own success.

As you already know, the wrong doctor will prolong your suffering indefinitely probably until the day you go to the grave. You don't want another one of those.

What city and state do you live in? What type of payment/insurance do you have? Maybe in my spare time and I can help you find some names.

> BB I know and did search the doc and if you are pulsing tetracyclline I also want to. Write. Phillipa ps pdoc said she would get me in to see the infection control doc that has my history and records but eight hours trip? Any other way????

 

Re: Darn Lyme's Disease on radio now exists all over !

Posted by JadeKelly on March 15, 2009, at 0:12:44

In reply to Re: Darn Lyme's Disease on radio now exists all over ! » Phillipa, posted by bleauberry on March 10, 2009, at 16:29:58

Bleauberry,

Thank you for the comprehensive post to Phillipa. She deserves to be rid of whatever Lyme's disease symptoms she still has. You have provided a plan that can't fail as far as I can tell. Good luck Phillipa, I think you have you're solution finally.

~Jade

 

Re: Darn Lyme's Disease on radio now exists all over ! » JadeKelly

Posted by Phillipa on March 15, 2009, at 0:20:15

In reply to Re: Darn Lyme's Disease on radio now exists all over !, posted by JadeKelly on March 15, 2009, at 0:12:44

Jade thank-you. Phillipa


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