Psycho-Babble Medication Thread 112292

Shown: posts 1 to 9 of 9. This is the beginning of the thread.

 

Help!!! Burning Tongue?!

Posted by JonW on July 14, 2002, at 4:08:26

Hi,

I am on nardil + depakote + risperdal + neurontin + ambien (at night). Anyway, within the past couple of days I have developed an *extremely* sensitive tongue. I've recently experienced dry mouth so I wonder if they are related, but I've had this side-effect before without a problem. My tongue is red around the edges and I also feel discomfort in the back of my throat. Obviously, my mouth is dry as well. Cough drops and allieve make it tolerable, but I want to know if anyone has experienced this before... will it go away? What do you think? Please help!

Thanks,
Jon

 

Re: Help!!! Burning Tongue?!

Posted by Shawn. T. on July 14, 2002, at 4:11:26

In reply to Help!!! Burning Tongue?!, posted by JonW on July 14, 2002, at 4:08:26

You're on way too many drugs my friend. I'll look into this for you.

Shawn

 

Re: Help!!! Burning Tongue?! JonW

Posted by Ritch on July 14, 2002, at 12:15:45

In reply to Help!!! Burning Tongue?!, posted by JonW on July 14, 2002, at 4:08:26

> Hi,
>
> I am on nardil + depakote + risperdal + neurontin + ambien (at night). Anyway, within the past couple of days I have developed an *extremely* sensitive tongue. I've recently experienced dry mouth so I wonder if they are related, but I've had this side-effect before without a problem. My tongue is red around the edges and I also feel discomfort in the back of my throat. Obviously, my mouth is dry as well. Cough drops and allieve make it tolerable, but I want to know if anyone has experienced this before... will it go away? What do you think? Please help!
>
> Thanks,
> Jon


Jon,

In what order did all of your meds get added? The only thing I can think of is that the Neurontin could be contributing to dryness. I had that problem with it. It wasn't so much dry mouth-it was more like dry throat-especially when I first woke up in the morning. The sensitive tongue thing *might* be some EPS from the Risperdal (just a wild guess). What are your dosages?

Mitch

 

Re: Help!!! Burning Tongue?! Ritch

Posted by JonW on July 14, 2002, at 17:52:41

In reply to Re: Help!!! Burning Tongue?! JonW, posted by Ritch on July 14, 2002, at 12:15:45

Hi Mitch,

I definitely relate to what you said about the dry throat. That is exactly what it is like. Sorry for the image here, but if I forget to swallow my spit my throat just dries out. If I make a concious effort to keeps things well lubed all is well. Things are a lot better today. My tongue is still sore from yesterday which was hell but being concious of my dryness and doing something about it seems to help.

I'm currently on:
Nardil 60mg
Depakote 1000mg
Risperdal 1.0mg
Neurontin 3600mg
Ambien 20mg

I'm on a lot of meds so it seems like problems are inevitable. However things have been going smooth even with the above cocktail for some time. But then all of a sudden a few side-effects just kicked in on me. Significant sexual dysfunction (before it was manageable), dry mouth, and floaters when I look at the sky. Actually the floaters where there from when I first increased the Nardil to 60mg. The last med added was Risperdal, but the only side-effect I noticed were twitches. The twitches increased when the Nardil was increased to 60mg so I'm unsure if they were actually from the Risperdal or not. Something else I noticed at 60mg was a sense of not being present and then being present (only for a very brief moment) and I'd hear weird sounds while this was happening. The present/not present thing has pretty much gone away, but I still hear the sounds. Sometimes they are like "phasers" or some sort of underwater sound or just the sound of my ears popping when they didn't pop. Weird stuff. I only hear them every so often during the day, though. Anyway, if you have any ideas I appreciate it. Thanks.

Jon

 

Re: Help!!! Burning Tongue?! JonW

Posted by Ritch on July 14, 2002, at 22:20:50

In reply to Re: Help!!! Burning Tongue?! Ritch, posted by JonW on July 14, 2002, at 17:52:41

> Hi Mitch,
>
> I definitely relate to what you said about the dry throat. That is exactly what it is like. Sorry for the image here, but if I forget to swallow my spit my throat just dries out. If I make a concious effort to keeps things well lubed all is well. Things are a lot better today. My tongue is still sore from yesterday which was hell but being concious of my dryness and doing something about it seems to help.
>
> I'm currently on:
> Nardil 60mg
> Depakote 1000mg
> Risperdal 1.0mg
> Neurontin 3600mg
> Ambien 20mg
>
> I'm on a lot of meds so it seems like problems are inevitable. However things have been going smooth even with the above cocktail for some time. But then all of a sudden a few side-effects just kicked in on me. Significant sexual dysfunction (before it was manageable), dry mouth, and floaters when I look at the sky. Actually the floaters where there from when I first increased the Nardil to 60mg. The last med added was Risperdal, but the only side-effect I noticed were twitches. The twitches increased when the Nardil was increased to 60mg so I'm unsure if they were actually from the Risperdal or not. Something else I noticed at 60mg was a sense of not being present and then being present (only for a very brief moment) and I'd hear weird sounds while this was happening. The present/not present thing has pretty much gone away, but I still hear the sounds. Sometimes they are like "phasers" or some sort of underwater sound or just the sound of my ears popping when they didn't pop. Weird stuff. I only hear them every so often during the day, though. Anyway, if you have any ideas I appreciate it. Thanks.
>
> Jon


Jon, thanks for the info. It looks like you are on a pretty high dose of Neurontin for sure. FWIW, I was having some problems with floaters as well, before I stopped my Neurontin. Not only floaters, but I had to blink a lot because it felt like there was this thick film over my eyes, and my vision seemed blurred. Interestingly, after I had quit Neurontin a week or so, my vision seemed to clear up some. I have got some partial pigmentation of one retina from low-dose Mellaril over 20 years ago. However, you mentioned the last change was a Risperdal dose increase. AP's tend to cause dry mouth-so that could be the culprit. That "sense of being present-not present", sounds like depersonalization. I got that from Neurontin at 1800mg/day. It felt like my hands and arms were detached from the rest of my body or they belonged to someone else. The "ringing" in the ears thing-I get that from most antidepressants. Do you think you could try reducing the Neurontin, to see if you feel any better? Oh, and another thing-when I tried pushing Neurontin higher the last time (two years ago)-I got this "thumping" in my ear-like a eustachian tube spasm or something. It would come on about an hour after a Neurontin dose and last for a couple of hours and then fade. When I reduced the daily dose below 900mg/day-it went away. It was like a "clicking" you get when you drop down a steep hill and experience a change in pressure, but it was more rhythmic and uncontrollable. I knew it was the Neurontin. The "phaser" sounds...that is interesting. The have got tinnitus from many different antidepressants. The high Nardil dose might be the one doing that. Just hunches.

hope you find this of some help,

Mitch

 

Re: Help!!! Burning Tongue?!

Posted by cybercafe on July 15, 2002, at 1:30:14

In reply to Re: Help!!! Burning Tongue?! Ritch, posted by JonW on July 14, 2002, at 17:52:41

> I'm currently on:
> Nardil 60mg
> Depakote 1000mg
> Risperdal 1.0mg
> Neurontin 3600mg
> Ambien 20mg
>

... hi Jon, I was wondering how high the neurontin can go, under what circumstances doctors let you go that high, and if any blood test thing is needed?

... btw... why two mood stabilizers? or is the gabapentin for anxiety?

 

Neurontin cybercafe

Posted by JonW on July 15, 2002, at 2:56:15

In reply to Re: Help!!! Burning Tongue?!, posted by cybercafe on July 15, 2002, at 1:30:14

> ... hi Jon, I was wondering how high the neurontin can go, under what circumstances doctors let you go that high, and if any blood test thing is needed?

It was initially taken for social phobia which usually requires high doses. My pdoc thought I might get the additional benenfit of mood stabilization as well. I don't believe any blood test is neeeded. I've heard of people taking 4800mg but I'm not sure what the max is. With neurontin it may have more to do with tolerance. It's not toxic and it has virtually no drug interactions.

> ... btw... why two mood stabilizers? or is the gabapentin for anxiety?

Well, for one I have a very difficult to treat mood disorder, and neurontin isn't a very effective mood stabilizer. I believe the most recent clinical studies have shown it no better than placebo. Dr. Phelps who maintains psycheducation.org even says it can promote cycling. It does wonders for some, of course, so it may be worth trying. I am on it mostly for social anxiety, and if anything, it has slightly reduced my physical anxiety. That's it. Anyway, if you are thinking of trying this drug I wish you the best, but don't make it out to be something that it is not. YMMV, of course :)

Jon

 

Re: Help!!! Burning Tongue?! Ritch

Posted by JonW on July 15, 2002, at 3:16:39

In reply to Re: Help!!! Burning Tongue?! JonW, posted by Ritch on July 14, 2002, at 22:20:50

Thanks for the info, Mitch. It sounds like the Neurontin connection might be worth looking into. I know awhile back when I was taking zyprexa different muscle groups would twitch every 20 or 30 seconds and when Neurontin was added to the mix it made this worse so there might be some sort of interaction, who knows. I can relate a lot to what you said about the sounds you heard while on Neurontin, and like the clicking from dropping down a steep hill and experience a change in pressure. Mine aren't always rhythmic, but then, I don't always have good rhythm :-) I'm not sure exactly what depersonalization is, but it was like I skipped a moment in time -- I was aware that time had passed becaused the frames of my life seemed to jerk and I heard weird sounds like metal scraping on metal while I wasn't present. I was aware that I wasn't present, though, which is weird to me. It was like missing a nanosecond here and there. Thankfully, I only hear the sounds now. I think I'll talk to my doctor about the Neurontin. Clearly some of my side-effects are coming from the Nardil and my other meds, but life may be more tolerable without the Neurontin. Anyway, thanks a lot for the info!

Jon

 

Re: Help!!! Burning: Maybe Vitamin B deficiency

Posted by angel1 on July 15, 2002, at 6:47:15

In reply to Help!!! Burning Tongue?!, posted by JonW on July 14, 2002, at 4:08:26

I had a friend once who had a red, sensitive tongue and it was simply a Vitamin B deficiency.
I'm not sure which B vitamin it was, but you might want to consider trying a good B complex and do some research on this. It was amazing the
difference it made in her overall appearance and energy level and no more red tongue. I think your problem is a little more than a "dry mouth"
problem. Good luck. I hope this helps.


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