Psycho-Babble Medication Thread 6180

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interstitial cystitis and bacteria

Posted by marlene on May 16, 1999, at 14:26:11

For years I have suffered from what is now thought to be interstitial cystitis. For years I took Bactrim which kept it under control quite nicely. When my liver test showed an elevation of enzymes, my doctor took me off Bactrim and all my symtoms came back. My doctor insists that bacteria is not my problem because none is grown in a culture. Recently I have read articles about extremely small bacteria called nano-bacterium that may be the cause of many diseases, even heart disease. Because of their extremely small size, only recently have scientists been able to see them with new tests. Why else would Bacytrim control my symtoms for so many years? Any comments?

 

Re: cystitis

Posted by Mary on July 16, 1999, at 14:34:12

In reply to interstitial cystitis and bacteria, posted by marlene on May 16, 1999, at 14:26:11

Have you been taking any medications during this period? I finally found a urologist who recognized that I had all these symptoms without a sign of bacteria. He says I have "neurogenic bladder" as a side effect of antidepressants. As I understand it, the drug suppresses the normal involuntary urge to urinate, so I have to "push" in order to go. This leads to chronic pain, retention, frequency, and incontinence. He claims that the only solution is to stop the antidepressant. However, I have read in Psycho-Babble that bethanecol may be able to counteract this effect.

If you have been taking any medication, I urge you to see a urologist who is more up on his or her pharmacology to see if "bladder problems" are a possible side effect.

 

Re: interstitial cystitis and bacteria

Posted by C.D. on July 17, 1999, at 9:13:54

In reply to interstitial cystitis and bacteria, posted by marlene on May 16, 1999, at 14:26:11

Dear marlene,
I have also been diagnosed with interstitial cystitis. My uroligist firmly argues that bacteria is not the cause. It is merely some unexplained chronic irritaion and inflamation of the bladder. Still, I have also wondered if it might be some strain of bacteria that the docs simply don't know how to culture. Antibiotics don't seem to make much of a difference for me. Antideppressents are sometime prescribed for chronic pain conditions including I.C.. I began taking AD's for depression but was pleased to find that both Serzone and Paxil totally relieved the I.C. symptoms which can be quite uncomfortable. It certainly beats the bladder installation route!
C.D.
> For years I have suffered from what is now thought to be interstitial cystitis. For years I took Bactrim which kept it under control quite nicely. When my liver test showed an elevation of enzymes, my doctor took me off Bactrim and all my symtoms came back. My doctor insists that bacteria is not my problem because none is grown in a culture. Recently I have read articles about extremely small bacteria called nano-bacterium that may be the cause of many diseases, even heart disease. Because of their extremely small size, only recently have scientists been able to see them with new tests. Why else would Bacytrim control my symtoms for so many years? Any comments?

 

Re: cystitis/interstitial cystitis

Posted by dolores ciaccio on June 6, 2000, at 14:49:29

In reply to Re: cystitis, posted by Mary on July 16, 1999, at 14:34:12

hi.
it was interesting to see your notes. i too suffer from something that the drs. think may be interstitial cystitis. i had it for several months last year then it went away and now its been back for two months...
pain, pressure, frequent urination. all that stuff but no bacteria showing in the urine cultures.
i've been on many courses of cipro and other antibiotics but nothing seemed to help...now my dr. has me on bactrim.
for the past week but i honestly dont see any improvement. in addition i have abdominal cramps almost all the time.
did any of you have that side effect with bactrim? also have you had flareups that lasted for a couple of months and then went away and came back.
how long did the bactrim take to work for you? i am taking one per day and dr. thinks i should be on it for quite a while...but i dont think so if thats what';s causing the abdominal pains.
looking forward to your reply.
dolores

Babble that bethanecol may be able to counteract this effect.
>
> If you have been taking any medication, I urge you to see a urologist who is more up on his or her pharmacology to see if "bladder problems" are a possible side effect.


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