Psycho-Babble Medication Thread 1454

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Re: ECT and Alan's experiences

Posted by alan on December 10, 1998, at 22:23:43

In reply to Re: ECT and Alan's experiences, posted by MrZest on December 10, 1998, at 11:42:41

> Alan,
> Do you ride a motorcycle ? BMW bike to be exact.


I have never been on a motorcycle. In a moment of adventure, I did ride a scooter (no, not motorized.)

 

Re: ECT and Alan's experiences

Posted by alan on December 10, 1998, at 22:23:55

In reply to Re: ECT and Alan's experiences, posted by MrZest on December 10, 1998, at 11:42:41

> Alan,
> Do you ride a motorcycle ? BMW bike to be exact.


I have never been on a motorcycle. In a moment of adventure, I did ride a scooter (no, not motorized.)

 

Re: Thank You, Danielle

Posted by Nancy on December 13, 1998, at 17:49:29

In reply to Re: ECT and Alan's experiences, posted by Danielle on December 7, 1998, at 18:02:16

> Nancy: It may benefit you to go back and re-read everything you've written since Emma's first posting. At the same time you might want to re-read Janey's original attempt of encouragement. You should be the best judge. I hope you find something to help, it's clear you're feeling pretty miserable.
------------------------------------------------

Thank you, for responding to my cry for help, Danielle.

You're right I've been miserable. I have a lot of pain in this stage. The couple of other severe episodes over my lifetime have, also, been treatment refractive. So, why get upset over this one?

Because, I'm terrified that it won't pass like the other times. That it won't go away and let me have my life back.

Furthermore, I can't trust most or all of my perceptions and ideas. Sometimes I know that they're not real, not right. But, only sometimes. Like today, I think things are okay in my head.

But, last night, I was convinced that I should end this hell by overdosing on the 18,000+mgs of Seroquel that I have. It was absolutely the only thing I should do. Then, the antipsychotic that I'd taken an about hour before these thoughts had turned into impulse, kicked in. That's when I knew that I hadn't been thinking right.

I really appreciate you reaching out to me. It means many good things to me.

Now, Hoping For Mind Over Madness,
Nancy

 

Re: ECT - when Nancy?

Posted by LT on December 13, 1998, at 19:53:16

In reply to Re: ECT and Alan's experiences, posted by Nancy on December 6, 1998, at 11:55:07

> > >Your description has helped me. I've decided to let the doc do ECT on me. My doc, Dr. Robert Horne, is a mood disorder specialist, also. So, I'm not afraid of him lacking any ability in performing the procedures.
> > > Dr. Horne said we're going to do two ECT sessions a day a few times a week until we've completed 6-12 treatments. This has to clear up my illness, since nothing else works. I don't know what I'll do if it doesn't happen for me. What did you do, Alan?
> > > Has anything you've tried made you better??? I REALLY HOPE so! It's miserable to be so sick.
> > > Nancy
> > Thank youfor your ressponse. I got my shocks back in 73, and I think they are more reliable today; e.g., I've heard they wire you up to make sure you get a siezure noww. Spme years ago I saw an estimate that 40% of ECT treatments were not properly done. That must be much diferent now.
> **Wow. You may have been cheated at a fair chance for recovery. Dr. Horne said that today's ECT is 95% effective for full recovery!!! He must have access to some REALLY NEW info. What I've read is of effectiveness between 80% and 90%.
> >(Moreover, back then a very large % of patients did not recieve adequate doses of ADs; I know I was one of them from subsequent experience.) Certainly the rate of progress in neuroscience and psychiatry holds much promise for a future I infer you will be able to enjoy. As you know, even if you respond to no treatment--and the probability of that has become small; tho the wait is hell--you will almost certainly spend most of your life in remission. As for me, I got better in 75-76 and had a recurrence in '82 which I just rode out. Then again in '85 when I responded 'in textbook fashion', to a dosage of desipramine that was considered very dangerous in 73. I was fine for 8 years and then switched to Prozac in an effort to become easy going and charming. To some degree, that worked; the Prozac did seem to 'smooth me out' and come me down. But. it pooped out about a year ago, well only partially for I didn't miss any work. Right now, I feel almost certain that I am responding finally to Effexor after the rounds of this and that.
> **Holy Cats! Alan, you are an inspiration. You are one of the few people with this illness who KNOWS what it's like to fight to the bitter end. Unlike those people who SAY they've had depression. Those that insist that if you don't WANT to lose your ability to work you simply CHOOSE not to lose your ability to work. As if CHOICE has anything to do with it. These people probably would have been "cured" by eating ice chips. But, what you've written about yourself shows that you have been terribly ill with a serious chemical imbalance. Alan, I think there are not many out there who understand how bad it can be. I REALLY HOPE that the Effexor is going to do it for you and NEVER "poop out".
> > This is one of those times I would like to say "I'll pray for you." but I don't mess with the occult. My fervant wishes for your earliest recovery.
> > alan
> **I'd mess with anything if it were a proven way to put this illness into remission. I wish you all the best and that all the best that you've missed out on over the years will, finally, be within your grasp.
> Mind Over Madness,
> Nancy

Nancy, I can very well understand your misery, I have been fighting this for YEARS, am sick of fighting this, I don't think I can remember life without this damn depression suffocating me. Anyway, I'm on 40mg Celexa and pushing it up to 60mg this coming week. If I fail this test to respond, my Dr. thinks ECT is next also. I'm apprehensive about it, but then I figure what have I got to loose. I'm working every day, but it seems to be getting more and more uphill! Enough about me, how soon are you going to start your ECT treatments? I hope it's successful for you!!!! I'm anxious to hear about your results!! Good Luck!!

 

Re: ECT - when Nancy?

Posted by alan on December 13, 1998, at 23:13:05

In reply to Re: ECT - when Nancy?, posted by LT on December 13, 1998, at 19:53:16

> > > >Your description has helped me. I've decided to let the doc do ECT on me. My doc, Dr. Robert Horne, is a mood disorder specialist, also. So, I'm not afraid of him lacking any ability in performing the procedures.
> > > > Dr. Horne said we're going to do two ECT sessions a day a few times a week until we've completed 6-12 treatments. This has to clear up my illness, since nothing else works. I don't know what I'll do if it doesn't happen for me. What did you do, Alan?
> > > > Has anything you've tried made you better??? I REALLY HOPE so! It's miserable to be so sick.
> > > > Nancy
> > > Thank youfor your ressponse. I got my shocks back in 73, and I think they are more reliable today; e.g., I've heard they wire you up to make sure you get a siezure noww. Spme years ago I saw an estimate that 40% of ECT treatments were not properly done. That must be much diferent now.
> > **Wow. You may have been cheated at a fair chance for recovery. Dr. Horne said that today's ECT is 95% effective for full recovery!!! He must have access to some REALLY NEW info. What I've read is of effectiveness between 80% and 90%.
> > >(Moreover, back then a very large % of patients did not recieve adequate doses of ADs; I know I was one of them from subsequent experience.) Certainly the rate of progress in neuroscience and psychiatry holds much promise for a future I infer you will be able to enjoy. As you know, even if you respond to no treatment--and the probability of that has become small; tho the wait is hell--you will almost certainly spend most of your life in remission. As for me, I got better in 75-76 and had a recurrence in '82 which I just rode out. Then again in '85 when I responded 'in textbook fashion', to a dosage of desipramine that was considered very dangerous in 73. I was fine for 8 years and then switched to Prozac in an effort to become easy going and charming. To some degree, that worked; the Prozac did seem to 'smooth me out' and come me down. But. it pooped out about a year ago, well only partially for I didn't miss any work. Right now, I feel almost certain that I am responding finally to Effexor after the rounds of this and that.
> > **Holy Cats! Alan, you are an inspiration. You are one of the few people with this illness who KNOWS what it's like to fight to the bitter end. Unlike those people who SAY they've had depression. Those that insist that if you don't WANT to lose your ability to work you simply CHOOSE not to lose your ability to work. As if CHOICE has anything to do with it. These people probably would have been "cured" by eating ice chips. But, what you've written about yourself shows that you have been terribly ill with a serious chemical imbalance. Alan, I think there are not many out there who understand how bad it can be. I REALLY HOPE that the Effexor is going to do it for you and NEVER "poop out".
> > > This is one of those times I would like to say "I'll pray for you." but I don't mess with the occult. My fervant wishes for your earliest recovery.
> > > alan
> > **I'd mess with anything if it were a proven way to put this illness into remission. I wish you all the best and that all the best that you've missed out on over the years will, finally, be within your grasp.
> > Mind Over Madness,
> > Nancy
> Nancy, I can very well understand your misery, I have been fighting this for YEARS, am sick of fighting this, I don't think I can remember life without this damn depression suffocating me. Anyway, I'm on 40mg Celexa and pushing it up to 60mg this coming week. If I fail this test to respond, my Dr. thinks ECT is next also. I'm apprehensive about it, but then I figure what have I got to loose. I'm working every day, but it seems to be getting more and more uphill! Enough about me, how soon are you going to start your ECT treatments? I hope it's successful for you!!!! I'm anxious to hear about your results!! Good Luck!!


Nancy, please try to remember that hopelessness is a common symptom of depression, a way we try to make sense of how badly we feel perhaps. You will get well and be well for the vast majority of the rest of your life. And please kep us informed.

 

Re: Thank You, Danielle

Posted by Danielle on December 14, 1998, at 16:46:32

In reply to Re: Thank You, Danielle, posted by Nancy on December 13, 1998, at 17:49:29

Well,crumbs,Nancy. I'm riding the same merry-go-round and the music in my head isn't the only - or the biggest - problem. I often do misread people, usually those closest to me, and it usually is an indicator of how much a grip my illness has on me at the time. And, like you, I have a mouth that can substitute for a full-fledged body slam when I least expect it.
Don't give up girl-o, I can't possibly know how sick you are of it all, but I do know you're still functioning in some capacity and you're filling your place in the world doing something you were put here to do. I think knowing what that is is a big secret kept from us all, even those who are lucky enough to think they know - but that's another story. One thing we do know - Nancy is a catalyst!

 

Re: Thank You, Danielle

Posted by Danielle on December 14, 1998, at 17:18:24

In reply to Re: Thank You, Danielle, posted by Nancy on December 13, 1998, at 17:49:29

Well, double crumbs, Nancy.I just answered this and made one tiny little mistake and somebody ate my answer. Was it Dr. Bob? I will try to repeat what I said. I said:
We ARE all riding the same merry-go-round (as someone said here before me)- and the music isn't the only - or biggest - problem I have. I have a tendency to misread people at times, usually those times that my illness is manifesting itself more drastically. I also said that, like you, I have a mouth like a full body slam that shows out when I least expect it. I like what Alan or ? just said before me - to remember that hopelessness is a symptom of the disease. Yes, I know, hard to hold on to in the midst of hopelessness, but that's what friends are for - to remind you when you can't remind yourself. I also want to remind you that you are functioning in some way and that also in some way you're still filling the space intended for you and fulfilling your purpose (which I have decided may be infintesimally small for some of us - but critical none the less) and we need you to keep doing that. And the one thing we do know - Nancy is a catalyst. Very best wishes - keep fighting - Danielle

 

Re: Thank You, Danielle

Posted by OK Nancy on December 14, 1998, at 17:28:19

In reply to Re: Thank You, Danielle, posted by Danielle on December 14, 1998, at 17:18:24

Triple crumbs Nancy, I hope this is improving your mood some what. OK, so it returned - now you can take your pick of which one is the best - or the worst! Now everyone knows just how confusing the world is to me.
Danielle

 

ECT !!! Eureka!!!

Posted by Nancy on December 24, 1998, at 17:37:10

In reply to ECT: a question for the docs...others' experiences, posted by Nancy on December 3, 1998, at 1:21:41

Hey!!! ECT (unilateral)wasn't a big scary deal after all!!! Today, I finished a sixth treatment. I'm already feeling pretty good. Three days ago, I took a depression rating exam before I had my first ECT session. On this Beck's depression scale, I had scored a 56 (40 is extremely depressed). Today, my score was 29. After the holidays, I'm recieving the final six treatments.

Happy Holidays to All,
Nancy

 

Re: ECT !!! Eureka!!!

Posted by danielle on December 24, 1998, at 19:49:18

In reply to ECT !!! Eureka!!!, posted by Nancy on December 24, 1998, at 17:37:10

> Happy news for a happy new year!

 

Re: ECT !!! Eureka!!!

Posted by alan on December 25, 1998, at 1:20:44

In reply to ECT !!! Eureka!!!, posted by Nancy on December 24, 1998, at 17:37:10

> Hey!!! ECT (unilateral)wasn't a big scary deal after all!!! Today, I finished a sixth treatment. I'm already feeling pretty good. Three days ago, I took a depression rating exam before I had my first ECT session. On this Beck's depression scale, I had scored a 56 (40 is extremely depressed). Today, my score was 29. After the holidays, I'm recieving the final six treatments.
> Happy Holidays to All,
> Nancy
>
It was geat to read your last posting. Continued good luck and happy holidays.

 

Re: ECT !!! Eureka!!!

Posted by Elizabeth on December 25, 1998, at 5:17:49

In reply to ECT !!! Eureka!!!, posted by Nancy on December 24, 1998, at 17:37:10

> Hey!!! ECT (unilateral)wasn't a big scary deal after all!!! Today, I finished a sixth treatment. I'm already feeling pretty good. Three days ago, I took a depression rating exam before I had my first ECT session. On this Beck's depression scale, I had scored a 56 (40 is extremely depressed). Today, my score was 29. After the holidays, I'm recieving the final six treatments.

Hey, congratulations. That's great to hear. I hope that the next few treatments continue to help.

Merry Christmas & Happy New Year.

 

ECT maintenance

Posted by Nancy on December 25, 1998, at 12:14:49

In reply to ECT !!! Eureka!!!, posted by Nancy on December 24, 1998, at 17:37:10

How is ECT used in maintenance? Do I have to continue medication? How often does ECT have to be repeated?

Nancy

 

Re: ECT !!! Eureka!!!

Posted by LT on December 27, 1998, at 15:10:05

In reply to ECT !!! Eureka!!!, posted by Nancy on December 24, 1998, at 17:37:10

> Hey!!! ECT (unilateral)wasn't a big scary deal after all!!! Today, I finished a sixth treatment. I'm already feeling pretty good. Three days ago, I took a depression rating exam before I had my first ECT session. On this Beck's depression scale, I had scored a 56 (40 is extremely depressed). Today, my score was 29. After the holidays, I'm recieving the final six treatments.
> Happy Holidays to All,
> Nancy
>
Hey Nancy! That's great news, wow I can't believe you had six treatments in 3 days, I was under the impression the treatments took a few weeks and maintenance was as needed, also I was told that continued meds would be necessary. Good luck, keep us posted!!!

 

Re: ECT maintenance

Posted by alan on December 28, 1998, at 0:59:04

In reply to ECT maintenance, posted by Nancy on December 25, 1998, at 12:14:49

> How is ECT used in maintenance? Do I have to continue medication? How often does ECT have to be repeated?
> Nancy
>
"Maintenence...generally pharmocological. but...ECT...weekly, biweekly, or monthly...reported...effective relapse prevention. Indicatiion...rapid relapse..severity...psychotic...inability to tolerate medications." (Kaplan and Sadock) Now you know all I do. Continued good luck. alan

 

Re: ECT maintenance

Posted by Nancy on December 31, 1998, at 11:34:27

In reply to Re: ECT maintenance, posted by alan on December 28, 1998, at 0:59:04

> > How is ECT used in maintenance? Do I have to continue medication? How often does ECT have to be repeated?
> > Nancy

Okay, I got the answer from my pdoc. Yes, you will continue on your meds to hold off relapse. ECT will probably need to be repeated only once or twice a year. My pdoc has at least one other female patient who is as impossible to treat as I. He says she gets two treatments a year and takes her meds. She is also able to funtion in the mainstream of society. Now THAT'S something I'm really looking forward to!!!!!!!!!!!!

 

Re: ECT: an answer for refractory bipolar illness

Posted by Nancy on December 31, 1998, at 17:18:08

In reply to ECT: a question for the docs...others' experiences, posted by Nancy on December 3, 1998, at 1:21:41

Here's a resource you will find informative:
//bipolar.cmhc.com/guide/ect.htm

I'm real happy with the results of ECT and I'm only half way through the treatment. I wish by all the stars in the sky that my doctor would have tried this therapy a long time ago.

 

Re: ECT !!! in a flash

Posted by Nancy on December 31, 1998, at 18:04:33

In reply to Re: ECT !!! Eureka!!!, posted by LT on December 27, 1998, at 15:10:05

> Hey Nancy! That's great news, wow I can't believe you had six treatments in 3 days, I was under the impression the treatments took a few weeks and maintenance was as needed, also I was told that continued meds would be necessary. Good luck, keep us posted!!!

Yeah, I was surprised, too, that the treatments could take place so close together. But, my doc has a success rate of 95%. So, I'm not gonna argue.

 

Re: ECT: a question for the docs...others' experiences

Posted by Steve on March 3, 1999, at 11:27:06

In reply to Re: ECT: a question for the docs...others' experiences, posted by alan on December 3, 1998, at 16:03:36

I am happy that you seem to have gotten better,
Nancy, however the results you describe seem
to conform with the brain damage theory which many
anti-shock people claim-head trauma is associated with
many things, one being elevated mood.

I am curious now that some months have passed how
you feel?

How is your memory, how are your cognative skills?
If you noticed changes in these areas did the passage
of some time make any difference?

Best of luck in no relapses!!

--Steve

 

head trauma and mood elevation

Posted by Elizabeth on March 3, 1999, at 21:28:08

In reply to Re: ECT: a question for the docs...others' experiences, posted by Steve on March 3, 1999, at 11:27:06

> I am happy that you seem to have gotten better,
> Nancy, however the results you describe seem
> to conform with the brain damage theory which many
> anti-shock people claim-head trauma is associated with
> many things, one being elevated mood.

Steve,

I don't want to argue the pros and cons of ECT, but I found this interesting because I often have a period of elation before a panic attack. Some doctors have speculated that my panic disorder may actually be a form of epilepsy due to some peculiar features such as this one.

What do other people think? Does anyone else have this kind of "aura" around panic attacks?

-elizabeth

 

Re: ECT !!! in a flash

Posted by Christine on March 11, 1999, at 12:04:58

In reply to Re: ECT !!! in a flash, posted by Nancy on December 31, 1998, at 18:04:33

To all of you thinking about (ECT)as treatment.
Don't do it!
I had 9 to 12 treatments dont about 4 years ago.It did not work, it wiped out most of my short term memory
And now I am haveing a lot of problems with my nervous system.and have been told that it could be from the (ECT)
was it worth it (NO)not for me.When I came home from the hospital,I could not even remember what my children liked to eat, or play,or how to get to there school, and so on.
All I can say is check it out talk to many people that have had it done.
(It will in fact change your life,)
But it just may be in a way you don't wan't! or understand!

 

Re: head trauma and mood elevation

Posted by Victoria on March 16, 1999, at 18:52:21

In reply to head trauma and mood elevation, posted by Elizabeth on March 3, 1999, at 21:28:08

Not panic attacks, but I had an experience that might possibly be related. Last August, I had an injury, fell and hit my chin, causing a whiplash-type neck injury. That triggered post-traumatic fibromyalgia. I did experience a very unusual period of euphoria (a few hours long) the evening before I first began to develop the flu-like fibromyalgia symptoms. (Of course, I thought it was flu, and it took several months be be properly diagnosed, but that's another story.) The euphoria was something I had never experienced quite that way before, and does seem to me to be related to whatever chemical or other changes in my brain turned on the fibromyalgia.

> > I am happy that you seem to have gotten better,
> > Nancy, however the results you describe seem
> > to conform with the brain damage theory which many
> > anti-shock people claim-head trauma is associated with
> > many things, one being elevated mood.
>
> Steve,
>
> I don't want to argue the pros and cons of ECT, but I found this interesting because I often have a period of elation before a panic attack. Some doctors have speculated that my panic disorder may actually be a form of epilepsy due to some peculiar features such as this one.
>
> What do other people think? Does anyone else have this kind of "aura" around panic attacks?
>
> -elizabeth

 

Re: head trauma and mood elevation

Posted by Elizabeth on March 17, 1999, at 17:28:26

In reply to Re: head trauma and mood elevation, posted by Victoria on March 16, 1999, at 18:52:21

> Not panic attacks, but I had an experience that might possibly be related. Last August, I had an injury, fell and hit my chin, causing a whiplash-type neck injury. That triggered post-traumatic fibromyalgia. I did experience a very unusual period of euphoria (a few hours long) the evening before I first began to develop the flu-like fibromyalgia symptoms. (Of course, I thought it was flu, and it took several months be be properly diagnosed, but that's another story.) The euphoria was something I had never experienced quite that way before, and does seem to me to be related to whatever chemical or other changes in my brain turned on the fibromyalgia.

Hmm. What was the euphoria like? Did you have any other sensations along with it? I usually get pretty spacey and sometimes things look a little off (or I even have visual or auditory illusions).

Do feel free to vent about your problems getting a proper diagnosis - I'm sure that's something that a lot of us can relate to!

How does one treat fibro, anyway? I don't know exactly what it is, although it sounds (superficially anyway) like it might sort of be similar to what I have (depression, anxiety, sleep problems, chronic pain).

-elizabeth

 

Re: head trauma and mood elevation

Posted by Victoria on March 18, 1999, at 21:14:59

In reply to Re: head trauma and mood elevation, posted by Elizabeth on March 17, 1999, at 17:28:26

The euphoria was a bit like being high--a kind of giddy feeling and a heightened sense of viual intensity. Fibromyalia is something of a mystery. The symptoms can include fatigue, muscle pain, tingling and other odd sensations in the muscles or skin, sleep disturbances, cognitive problems (esp. with short term memory); a lot of people with fibromyalgia also have irritable bowel syndrome and/or teeth-grinding and TMJ problems. Some people say that depression is part of the problem; others that depression is a a reaction to the physical pain and limitations. There's no agreed-upon cause and no widely-effective treatment. Some people apparently get better through taking medication for sleep and anti-depressants, and by managing diet, exercise, and stress very carefully. I recently read a book, Betrayal by the Brain, by Jay Goldstein, MD, who hypothesizes that it is a neurochemical dysfunction that affects processing of pain and other stimuli. He reports success using a variety of drugs. One thing I will say for fibromyalgia is that it's very handy to have a "physical" diagnosis. I think I've probably had this in a milder way for years (I'm on my 4th diagnosis and 14th doctor), but since I thought of it as depression, I didn't talk about it much. All of a sudden, I have a diagnosis I can talk about and people are rallying round, giving me all kinds of support that I didn't have before (and doubt I would have gotten if I had talked about depression, at work for example). I've also found that I experience my moods differently and more constructively, now that they are in a clearer context of what's "physical" and what's "emotional." One warning: if you decide to read up on fibromyalgia, tread carefully. I got very discouraged by many of the books, which define it as a permanent disabling condition, with lots of emphasis on grief over loss of mobility, etc. I didn't find that very helpful, although if you can get past that, there are some useful coping tips in some of the books I looked at. Good luck!


> > Not panic attacks, but I had an experience that might possibly be related. Last August, I had an injury, fell and hit my chin, causing a whiplash-type neck injury. That triggered post-traumatic fibromyalgia. I did experience a very unusual period of euphoria (a few hours long) the evening before I first began to develop the flu-like fibromyalgia symptoms. (Of course, I thought it was flu, and it took several months be be properly diagnosed, but that's another story.) The euphoria was something I had never experienced quite that way before, and does seem to me to be related to whatever chemical or other changes in my brain turned on the fibromyalgia.
>
> Hmm. What was the euphoria like? Did you have any other sensations along with it? I usually get pretty spacey and sometimes things look a little off (or I even have visual or auditory illusions).
>
> Do feel free to vent about your problems getting a proper diagnosis - I'm sure that's something that a lot of us can relate to!
>
> How does one treat fibro, anyway? I don't know exactly what it is, although it sounds (superficially anyway) like it might sort of be similar to what I have (depression, anxiety, sleep problems, chronic pain).
>
> -elizabeth

 

Re: ECT: a question for the docs...

Posted by John Payne on March 24, 1999, at 10:10:12

In reply to Re: ECT: a question for the docs...others' experiences, posted by Toby on December 3, 1998, at 16:27:22

My son is taking 900MG of Tegretol and 75MG of Topamax a day. Hoping to switch over from tegretol to just topamax. Can this much medication cause him to have headaches. He as just resently started complaining about them.


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