Psycho-Babble Medication Thread 5053

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Re: Has topomax helped -- heathermom » chemist

Posted by headachequeen on May 10, 2004, at 15:44:37

In reply to Re: Has topomax helped » heathermom, posted by chemist on May 10, 2004, at 13:49:41


>
> hi there, chemist here....i took topamax 100 mg bid (200 mg/day in divided doses) as monotherapy for (alleged) bipolar I/II and can report that it was ineffective in controlling my hypomania vs. trileptal (300 mg/day) as monotherapy, and that weight-loss was quite pronounced but not extreme.....all the best, chemist
>

I don't know about controlling bipolar I/II and so on... although I am apparently hypomanic and the symptoms that caused the diagnosis seem to be under control and I am presently not receiving psychotherapy... and I might add that while I need topomax to help deal with migraine and epilepsy, I also need the hypomania to succeed in my chosen field sigh...

but I do know that it has succeeded in controlling the migraines (a little over a year now) and has moderated the effect of the tegretol that was apparently reducing the occurrence of the seizures but not enough...

and I do know that it has helped me lose weight that I gained thanks to depression and lack of self esteem as well as thanks to medications that had a tendency to cause weight gain...

Nothing is going to change overnight in the weight area... all the fancy and expensive diet sources tell us that...
so we should not expect Topomax to help us lose weight rapidly either.
As it is I keep hearing that I should stop taking 'that medicine' because I am becoming so thin...
I have gone from a little over 200 pounds to 145 pounds... exercise (I walk a lot and I do a lot of physically active stuff, but I did that same walking and physically active stuff before Topomax) have contributed I am sure... but so has the lack of interest in sugars and carbohydrate-high foods...
Topomax has a definite effect on food obsession and interest...
but the weight won't all fall off the first month...
it took time to gain it... and it takes time to lose it...
when I started to gain I weighed about 110...
it would never be possible to lose 100 pounds overnight no matter what I tried...
kat

 

Re: Has topomax helped

Posted by heathermom on May 10, 2004, at 16:12:48

In reply to Re: Has topomax helped » heathermom, posted by headachequeen on May 10, 2004, at 15:34:58

> > Hi. I stumbled upon this board in my quest for topamax info. ...
> >>I am still just taking 25 mg.
> good, keep increasing at slow increments and it will not be a problem... fast increases lead to problems with side effects as many of us learned the hard way... slow but steady and all those silly cliches actually mean something
>
> >>I guess my main question is...what does it feel like to not obsess over food? Does it really happen?
>
> It REALLY HAPPENS and it is amazing...
> Chocolate and potato chips lsoe their appeal... I can remember leaving the doctor's office after his reminders that chocolate was a migraine trigger and salt was bad for my blood pressure and heading for the nearest store that sold chocolate bars and potato chips on my way back to work. It was as if there were a direct drive in my system that drove me to buy and eat them...
> food was something I had to have and often I would discover I was eating a sandwich or chips or candy or cake or whatever, or second helpings that I didn't really want, but finished anyway... even things I didn't particularly like or enjoy...
> one such memory involves a goldfish bowl party at work, when all the staff had to be on display for advertisers and there was a vast array of food including what I thought was cherry cheesecake... it turned out to be an absolutely awful crab concoction that looked like a cheesecake with a seafood sauce drizzled over it that looked like cherries over the cheesecake. It tasted unbelievably awful but I ate it because it was there on my plate.
> A buffet meal -- oh what a thought...
> and now I have a hard time trying to finish a normal meal. Last evening we went out for dinner with friends, a steak with baked potato and cauliflower and baby carrots. I finished the steak because I do crave protein and I am convinced that is some connection of the topomax thing, and I ate some of the vegetables but only a mouthful of the baked potato...
> unheard of in the pre-topomax days!
> Didn't want roll or butter and didn't want dessert. (there was a chocolate mousse cake that looked good enough to die for as well as a variety of other incredibly wonderful and tempting desserts but they did not interest me at all.)
> I should add that it was the only meal of the day for me. I did not even have any yoghurt...
> something I usually have in the morning or at bedtime to provide the food to take with my meds...
> I no longer want sweets at all and that is a huge change, no pun intended...
> and no longer need three meals a day and three or four snacks to get me through the times between meals... not to overlook the bedtime snack and the chips or popcorn during the evening.
> another thing I have abandoned is drinking pop and the juice-type beverages...
>
> >>When? At what dose?
>
> I am presently back at 400 mg a day while I wait to find out if they are going to dump the wretched tegretol from my regime...
> the neurologist instead of eliminating it and replacing it, prescribed something to eliminate the side effects (I was already on meds to eliminate the side effects and this med has similar side effects, so I am not sure what this is supposed to achieve...) and ordered another eeg,this time sleep-deprived...
> in the meantime I have had three more seizures that I know of since my visit with him...
> and have to wonder how many there would have been had the topomax not been modifying the effects of the tegretol... arrgghhh
>
> >>I know I am over thinking it. So much so, that I over analyze my need to eat. You know, I think, is it working yet? Is it not? Can anyone fill me in???
>
> Relax and let things happen as they will...
> I began to lose weight the first week I was on topomax... three pounds the first week but the change of attitude toward food came slowly -- perhaps around 200 mg a day??
> and of late I notice it is really kicking in until I am able to stand in a Laura Secord shop, surrounded by the tantalising smell of chocolate and not want even one buttermallow bar...
> that is incredible progress!!!
>
> Considering the fact that we were raised to eat everything that was put on our plates and remembering that chocolate and sweets were the reward factor in so many ways, it is an attitude that is hard to break, but seems to be disappearing...
> so give it time. I would suspect that by the time you are on 100 mg evening and morning you will begin to feel a change...
> kat

So so helpful, all. Thankyou. I will stay tuned. You are all so incredibly interesting....just like me!!!! LOL:)
>

 

Re: Has topomax helped

Posted by rainy on June 15, 2004, at 21:18:49

In reply to Re: Has topomax helped, posted by heathermom on May 10, 2004, at 16:12:48

I'm barging in--interrupting really--apologies. I've been on serzone, 400 mgs which is going off market. Stopped taking lamictal and began feeling better but went into mild hypomania--too much energy, needed to paint the hall NOW--3 to 4 hours of sleep OK, that sort of stuff. Better now. On 300 mgs Topamax which keeps me from bulemia and and drinking, although it keeps me in a mild absent minded fuzz. pdoc wants to restart wellbutrin at 400 mgs augmented with 200 mgs trazodone (wellbutrin pooped out on me before serzone came on scene.) Anybody had any experience with this stuff? I don't want to gain weight on deseryl. I don't want to get seriously depressed again. I'm 62 and bpII. again, sorry for interrupting.


 

Re: Has topomax helped » rainy

Posted by headachequeen on June 16, 2004, at 9:45:17

In reply to Re: Has topomax helped, posted by rainy on June 15, 2004, at 21:18:49

> I'm barging in--interrupting really--apologies.

You are not barging in at all... we are all here for the same reason I think... I just wish I knew how to keep track of ALL the posts instead of just some ...sigh...

I was on wellbutrin for a while, although never with the topomax as wellbutrin makes seizures worse and can cause them all by its lonesome... not something I need :(...

wellbutrin did slow things down for me... no more drive to do things and do them now.. have to admit I missed that ... used to get so much done and done NOW...
and, while I still am unable to turn off my mind and actually go to sleep and sleep through the night the way other people do according to my doctor, I am able to slow down during the day and I do not know why other than the fact that I am always tired... want to sleep all day...
so I fight to stay awake and then can't sleep at night so I am tired all day... I see a pattern here... sigh again...

the wellbutrin certainly helped me turn off the let's go and do it all pattern...
it might help you too
kat

 

Re: Has topomax helped

Posted by rainy on June 16, 2004, at 13:05:24

In reply to Re: Has topomax helped (nm) » headachequeen, posted by rainy on June 16, 2004, at 12:05:35

oops--I posted a big long message but apparently just thought I did. Sounds like wellbutrin did a job on you, Kat--I'm not so worried about being toned down as being plumped up on Deseryl. Also, just a word for those of us on Topamax. I had a chat with a neurologist this morning who suggested strongly that that medidication is behind, under and around almost all motor "indiscretions," like lurching, dropping, bumping, falling, etc as well as the Stupids. Also, when I complained about my handwriting going to pot, thinking that it might be a brain tumor or something, hs said, nope, it's the Topamax and didn't I want to take lithium or one of the other mood stabilizers instead? Good question?

 

Re: Has topomax helped

Posted by bridgey1128 on June 16, 2004, at 13:48:29

In reply to Re: Has topomax helped, posted by rainy on June 15, 2004, at 21:18:49

Welbutrin made me nuts but that is why my Dr put me on meds for being bipolar. I know my Topomax needs to go up because I am starting to have energy during the day. I hate to say it but....the Topomax wears me out. I'm not sure what to do. If I take it I am bearable but now I am starting to snap again so I know it needs to go up. I have a Dr's appoinment tomorrow. I don't want to go into stupidville..I already have problems remembering stuff. Will it get worse? If it does I don't know if I can handle it and absolutely REFUSE to take something that makes me gain weight. I will be crazy before I will be even fatter than I am now. I am only up to 100mg at the moment and my Dr said usually weight loss starts at 125mg and up...so MAYBE I'll start to lose weight if I don't lose my mind first. I didn't know if there was a big difference in me on and off the meds..but I really can tell now that my dosage isn't high enough. I have more energy to do stuff but it's also paranoid energy and irritation. So I can clean my house better but I snap at everyone. So I can have a cleaner house but I am a bitch. HELP!!!! When my meds work I don't feel like doing anything but sleeping but my mood is better. I don't know how much longer I can take this drug. I guess I will have to see how well I do on a little higher dosage. Oh well..any feedback?

 

Re: Has topomax helped » bridgey1128

Posted by headachequeen on June 16, 2004, at 14:41:12

In reply to Re: Has topomax helped, posted by bridgey1128 on June 16, 2004, at 13:48:29

> Welbutrin made me nuts but that is why my Dr put me on meds for being bipolar. I know my Topomax needs to go up because I am starting to have energy during the day. I hate to say it but....the Topomax wears me out. I'm not sure what to do. If I take it I am bearable but now I am starting to snap again so I know it needs to go up. I have a Dr's appoinment tomorrow. I don't want to go into stupidville..I already have problems remembering stuff. Will it get worse?

Bridgey, I know that each person is affected differently and at different dosages by these medications... after all we are supposed to be individuals, right <GG>
At the moment I am taking 600 mg a day of Topomax...
now, first off, let us look at the side effects...
I am NOT losing hair dramatically and if we are being totally honest, I am doing nothing to prevent it... I have neither the time nor the interest to do anything to prevent it... work is too demanding... I am writing again and have too much on my mind to think about vitamins and supplements for myself... hard enough to take time to take the meds I need to survive without the other stuff...
I am NOT having trouble remembering things... vocabulary is still strong, memory is still strong... the only problem I have is the sleep thing... and that has been a life-long part of my being... I simply don't remember many nights when I actually had a good night's sleep but cannot lay that at the door of Topomax...
I do NOT have cognitive problems other than remembering my new phone numberat times... but I had the same number for twenty years so that is to be expected... and this number is the third in as many months, so....
I do NOT have any eye problems associated with Topomax... now the dry eye and blocked tear duct problem is still driving me out of my mind or what is left of it, but that is a problem of long standing and one that the surgeon says he will correct with the next try... of course he said that about the third try sigh...
I am NOT experiencing any of the side effects that are normally attributed as being the nasty side effects of Topomax...

I DID start to lose weight the first week I started to take the stuff, as I have mentioned before (a whole three pounds... don't laugh, folks... it was a big deal to me at the time <s>)
I have NOT had a migraine since starting to take the stuff...
I have had fewer breakthrough seizures since starting to take the stuff...
and I HAVE lost weight...

It seems to me that if the increases are taken at a slow and easy rate, the side effects are not as great a problem...
the cognitive problems that may arise tend to fade and a return to normal in a very short time

I have been using Topomax now for eighteen months and have found it to be really helpful... I DO have severe side effects from my main anti-epilepsy medication... and keep hoping that they will change it to another one and do it soon...
perhaps the tests they did last week will lead to that...
but I will not let them change the Topomax...
it has increased the efficacy of the primary med
-- originally I was having several breakthrough seizures a week, occasionally two a night...
now it is at most two a week, sometimes none a week...
it has eliminated the migraines...
it has helped me lose weight in a substantial and positive manner...
and I am not suffering as a result of taking it...
I would not give it up.
kat

 

Re: Has topomax helped

Posted by bridgey1128 on June 16, 2004, at 15:23:00

In reply to Re: Has topomax helped » bridgey1128, posted by headachequeen on June 16, 2004, at 14:41:12

I'll stick with it girl because I know you have been through it all! ;) thanks

 

Re: Has topomax helped » bridgey1128

Posted by headachequeen on June 16, 2004, at 16:18:44

In reply to Re: Has topomax helped, posted by bridgey1128 on June 16, 2004, at 15:23:00

> I'll stick with it girl because I know you have been through it all! ;) thanks

And you will get there... just take your time... do not rush it... and be confident about yourself... that is our problem, isn't it <s>
and when you need someone to talk with... well, you know where to find me...

And remember too, in those days when the cognitive skills are kicking in (and for those of you whose hair on back of neck is beginning to rise, Bridgey and I have been through a lot together, we know that the best way to get through it is with laughter and a sense of humour and the odd joke... if we lose that sense of humour then EVERYTHING is lost...and we can and do joke with each other... I am a Gael; that which is most important we treat with humour..)
that the secret is to progress slowly...
no sudden increases...
25 mg increases in the evening until half the maximum increase is achieved, then start the same climb in the mornings until the entire maximum increase is achieved and it seems to work all right...

Now if I could find a way to turn off the mind that actually works for ME and sleep at night...
I am not depressed at the moment although I think I shall soon slide into a deep dark hole if I do not sleep and sleep properly...

I am doing all the things they tell me to do...
I get up in the morning by nine o'clock... some days I am up even earlier...

I am walking a lot as usual... and still shooting pool and doing the agility and tracking, am doing scales and arpeggios and the breathing exercises and all the rest of it and ask any singer who works at it if that is not exercise....

I am working at writing and am turning out some reasonable stuff again... instead of sitting back and saying that until I get myself together I cannot work the way I was doing before...

I am planning on going back to take the next level of that wild and woolly through the brambles and briars and barbed wire and culverts and mud and whatever else presents course...

I am in short being extremely positive...

so why am I not sleeping at night?

Around eleven I am so tired I can barely make it up the stairs to bed. I fall into bed and into sleep, then by one o'clock I am awake and That,as Jonathon John said, is THAT... I am awake and cannot sleep until somewhere around six or seven when I am supposed to be awake and doing things so that I do not fall into depression....

wish I had a switch that I could turn or press that would turn off the brain and make it stop spinning and rehashing things...

it would be so much easier....

kat

 

Re: Has topomax helped

Posted by bridgey1128 on June 16, 2004, at 17:28:45

In reply to Re: Has topomax helped » bridgey1128, posted by headachequeen on June 16, 2004, at 16:18:44

I know what you mean. I have a constant race going on in my head and it's so hard to get it to just stop. I sit there and try to imagine a blank wall or something but then I just end up imagining something on it or painting on it or something else to start the race again. I fight trying to take a nap during the day because I know that I DEFINITELY won't sleep much that night. I constantly toss and turn anyway and I almost ALWAYS remember every single time I turn over. If I don't remember turning over, it's most likely that I haven't moved and I will be very very sore the next morning. It's like, if I sleep well I don't move and I am so stiff I can barely move the next morning because of my fibro mialgia and if I don't sleep well, well...I toss and turn all night but at least I am not as sore in the morning because I haven't been in one position all night. I need to get back to the chiropractor but it costs $$$. On a good note my band is making a demo and after more than a MONTH of mixing the instrumental parts..JEEZ MON! I get to go back in and do my vocals next Tuesday night. I'm excited! I've made a demo before but it was only with a track, not with my own band and with live instruments. If you ask me it's taken them way too long to mix it correctly. It's been more than a month. Kat I know you would know about that. Welp enough from me now..I guess I'll see how the 125mg goes!

 

Re: Has topomax helped » bridgey1128

Posted by headachequeen on June 16, 2004, at 19:38:39

In reply to Re: Has topomax helped, posted by bridgey1128 on June 16, 2004, at 17:28:45

> I know what you mean. I have a constant race going on in my head and it's so hard to get it to just stop. I sit there and try to imagine a blank wall or something but then I just end up imagining something on it or painting on it or something else to start the race again. I fight trying to take a nap during the day because I know that I DEFINITELY won't sleep much that night. I constantly toss and turn anyway and I almost ALWAYS remember every single time I turn over. If I don't remember turning over, it's most likely that I haven't moved and I will be very very sore the next morning. It's like, if I sleep well I don't move and I am so stiff I can barely move the next morning because of my fibro mialgia and if I don't sleep well, well...I toss and turn all night but at least I am not as sore in the morning because I haven't been in one position all night. I need to get back to the chiropractor but it costs $$$. On a good note my band is making a demo and after more than a MONTH of mixing the instrumental parts..JEEZ MON! I get to go back in and do my vocals next Tuesday night. I'm excited! I've made a demo before but it was only with a track, not with my own band and with live instruments. If you ask me it's taken them way too long to mix it correctly. It's been more than a month. Kat I know you would know about that. Welp enough from me now..I guess I'll see how the 125mg goes!

Oh Bridgey!!!!!!!!!! No wonder your mind is racing right now... or better put, at least there is a reason for it at the moment...
this is great news... I can hardly wait to hear that the demo is finished and how it is received...
and then I hope I get to hear the real thing...
this is great news...

my favourite accompanist and I are putting together a cd... well we are organising two lineups... one is a Christmas one of medieval Christmas stuff... then we get lost on other French Christmas and Gaelic Christmas music we find it hard to resist...
there is this problem about saying no... is that a Topomax thing or an F-7 thing I wonder?????

and the other is early music... again older and lesser known Celtic music, laments for the most part not the popular and commonly known stuff but the music I grew up with and love so dearly.. mostly in the minor keys and really powerful for all that... a couple of funeral boat songs that are incredible...

then we get hung up on torch songs that we have lately discovered we really like playing ... a new venture for a dramatic soprano LOL...
so we will be cutting the CD once we decide for sure what we want to do...
I think THAT is definitely an F-7 problem.LOL...
but it is another of those things that spins in my mind late at night as I try not to toss or turn because that keeps the husband-person from sleeping... and he worries... he has lost so much sleep and weight as it is worrying about me that it is really unfair to add to it...
some nights I simply get up and come in here and write for a while... seems to make sense to stop beating myself to death over not being able to sleep...
other nights I go downstairs and go through music trying to cut the list down to something manageable...
we are using two instruments and voice...
accoustic guitar and piano... concert grand on some and good old upright on others...
all we have to do is decide what the definitive choices are...

but the music is such a saving grace, isn't it...

we are fortunate, you and I...

keep me posted... I am waiting anxiously to hear how it goes... and to know what happens after the cd is cut...

I know that you are going to blow them away... it is a redhead thing, after all....

kat

 

Re: Has topomax helped » bridgey1128

Posted by rainy on June 16, 2004, at 20:38:33

In reply to Re: Has topomax helped, posted by bridgey1128 on June 16, 2004, at 13:48:29

Bridgey, I remember that when I was going up on Topamax I was what my husband called "hostile,"--I just felt mad at the world. I went up in small increments so I seemed to be mad all the time--it was lovely. The doctor took me off of 350 mgs when I complained of ruminating and carrying on conversations in my head and getting lost and stuff like that, but then she put me back on a few months later. The second time my brains weren't nearly as scrambled and most of the neuro stuff has been motor snafus. That and a loss of "executive functioning" which makes me a hazard in working with an emotionally disturbed teenager which I don't want to do anyway. Also I can't do cash registers, remember lines, or speak fluently in public any more--the latter gives me grief because I loved to do that. But to answer your question (again): I was crabby tritrating up. Topamax hasn't interfered with sleep. Sometimes, though, I wonder if I'll ever be me again, whoever that was/is. Topamax philosophy? Lately I've been feeling like I've sold my soul to it's apparent ability to help me maintain my weight and stay off the sauce. After years of struggle with AD weight and a few years with hard drinking, I just can't go back to that. But I don't know if I would if I didn't take Top. Time to get a life. And good luck to you.

 

Re: Has topomax helped

Posted by bridgey1128 on June 16, 2004, at 20:52:54

In reply to Re: Has topomax helped » bridgey1128, posted by headachequeen on June 16, 2004, at 19:38:39

I understand the voice stretching capability thing. I am a classically trained lyric 1st soprano and here I am having to sing songs like..White Room by Cream. We aren't really a cover band because our "director" for lack of a better word arranges them so different from the original and adds the instrument solos and such that they don't sound a whole lot like the originals. I think it's really helped my vocal abilities in the long run because I have had to stretch my chest voice range upward. Whereas before I could usually only get up to a G and sound pretty good I can now get up to a D. I wouldn't do this for church music now. It's just a total different sound to my voice for this style. It really helped me when I was playing Bloody Mary in South Pacific in Feb. That was so much fun! I found out that we, and when I say we I mean our High Point Community Theatre, are doing Into The Woods. I'm excited! Each show I get a better and better part. One day I will get a true lead. Bloody Mary was a lead technically but I wanted her. She was SOOO much more fun to play than Nellie would have been. I love to be able to play a character with depth. Bloody Mary was so funny but so intelligent. I got to do funny and serious in one role while maintaining a rather humorous Tonkinese accent. Now if you can make them gasp at the seriousness of the scene without laughing at your accent you know you have accomplished something. I belong to a site called rifftrader.com so when I get the final demo up I will let you know so you can hear it. :) I love celtic music. Gee, it must be something in the blood. hehe Or the hair. hmm Charlotte Church does a Welsh lullaby that is SO beautiful and I would love to sing..but I think if I tried to sing in Gaelic I would sound like I was hacking up a hairball. I have a Scottish friend and he said inevitably when someone tries to immitate a Welsh accent they end up sounding Pakistani. haha Oh yeah..this site has soemthing to do with Topomax doesn't it? hehe

 

Good Grief

Posted by bruce_w6 on June 17, 2004, at 10:47:32

In reply to topomax, posted by Ellen Brodie on April 19, 1999, at 15:58:40

I am up to 200 mg at 25 mg a week and still no signs of relief of weight loss yet from the Topomax. I went from 220 to 255 in 2 months with the med change just like everyone else. The 175 to 220 was from the previous med change. My god when will the Topomax kick in? Please respond. I am trying to keep my hopes up, the meds are keeping the depression at bay but I don't know for how long if there is no hope from the Topomax. You all know how I am feeling.

 

Re: Good Grief

Posted by bridgey1128 on June 17, 2004, at 11:25:14

In reply to Good Grief, posted by bruce_w6 on June 17, 2004, at 10:47:32

I have really found that the Topomax does more for my "mania" than for my depression. I have still hit some pretty dark depressions, but they don't last nearly as long. I have still been suidical a couple of times. I don't ever want to tell my Dr this for fear of being put in the looney bin. It's nothing I would act on thankfully. My Dr upped my meds to 100mg at night and 25mg in the morning and then he said in 3 weeks 100mg at night and 50 in the morning so we shall see how that goes. I know I need to go up on the meds because I have been really really cranky and the talkative impulses are back. You know the ones..where you just can't shut your mouth and you end up saying stupid, hurtful things without meaning to. I've tried REALLY hard to bite my tongue. Thank God for Ativan. It kind of mellows me out. Because I am bipolar I can't take it very often or it stops working..that and it's addictive so I just take it every now and then when I feel really edgy and irritable. My "depression" isn't so much sadness as irritation and edginess. I get really snappy. When I do get sad it's an angry sadness, so I guess all my depression has to do with anger. My emotions flip on and off like a lightswitch. I don't normally stew unless something hasn't been resolved. If it has, then I am over it pretty much immediately. Hopefully it will help your depression. I know it's kind of a catch-22 when you get depressed because of your weight or it causes you to STAY depressed because you gain weight. How ironic that a treatment of depression actually can cause you to stay depressed. I guess I am happy I am bipolar and not just depressed. Topomax has helped me not gain anymore weight. So far it hasn't helped me LOSE any. My Dr was happy when I had gone in and had lost 15lbs and he thought it was due to the Topomax and I said..uh no..I have been on the Atkins..hehe oops! sorry to burst his bubble!I think maybe it has kept me from GAINING more so that's good. Since my weight has always been a major cause of my depression part of my bipolar I absolutely refuse to take any drugs that would make me gain. I just don't see it being helpful for me to gain weight to keep from being crazy. I'm bipolar 2. I ain't THAT crazy!

 

Re: Good Grief

Posted by PoohBear on June 17, 2004, at 12:11:41

In reply to Good Grief, posted by bruce_w6 on June 17, 2004, at 10:47:32

> I am up to 200 mg at 25 mg a week and still no signs of relief of weight loss yet from the Topomax. I went from 220 to 255 in 2 months with the med change just like everyone else. The 175 to 220 was from the previous med change. My god when will the Topomax kick in? Please respond. I am trying to keep my hopes up, the meds are keeping the depression at bay but I don't know for how long if there is no hope from the Topomax. You all know how I am feeling.<


I have gained a total of 20 lbs from meds and med induced eating over the last 6 months. 15 of that was from Remeron. My pDoc and I tried Topomax to try to help with my moods and to get the weight down, but like many others, it just made me feel "doppy" and slow upstairs. I finally gave it up and went with Seroquel for mood and sleep. Much better, except for slight grogginess in the morning. (This morning was worse than most because I have a head cold...)

Keep in mind that weight loss from Topomax is a SIDE EFFECT of a drug which is *meant* for seizure control. Since everyone's different, you *may not* see this SIDE EFFECT of the drug.

I know this is NOT what you wanted to hear, but you might want to look at other options with your pDoc. You didn't mention why you're taking Topomax, except for weight loss. There may be better options.

I really do feel your pain and can empathize completely. Personally, I'm going to have to exercise more and cut back on the carbs.

Best Wishes!

Tony

 

Re: Good Grief » bruce_w6

Posted by headachequeen on June 17, 2004, at 13:07:12

In reply to Good Grief, posted by bruce_w6 on June 17, 2004, at 10:47:32

> I am up to 200 mg at 25 mg a week and still no signs of relief of weight loss yet from the Topomax. I went from 220 to 255 in 2 months with the med change just like everyone else. The 175 to 220 was from the previous med change. My god when will the Topomax kick in? Please respond. I am trying to keep my hopes up, the meds are keeping the depression at bay but I don't know for how long if there is no hope from the Topomax. You all know how I am feeling.

Are there other meds that are causing weight gain?
I know that the antidepresants that I was on all were accompanied with the warnings that they would cause weight gain... and they did...
oh how they did...
hence the slow weight loss at the beginning...
also I would be concerned about the fast increase timetable...
my neurologist is adamant about the slower rate of increase...
no faster than two week increments and he tells people not to increase at that rate if they feel they are not ready...
that could be causing the problem...
I also have to mention that I hit a plateau when there was no weight loss... then one day discovered that it had started again...
at the moment I am at such a plateau again...
and hope it will start again... would like to lose another ten pounds... no more I think...
hang in there...
check the other meds and see if they are still weight gainers...
it may be that the topomax and they are fighting each other...
could they be changed with others that do not cause gain???
just a thought...
kat

 

Re: Has topomax helped » rainy

Posted by headachequeen on June 17, 2004, at 13:09:47

In reply to Re: Has topomax helped » bridgey1128, posted by rainy on June 16, 2004, at 20:38:33

> Bridgey, I remember that when I was going up on Topamax I was what my husband called "hostile,"--I just felt mad at the world. I went up in small increments so I seemed to be mad all the time--it was lovely. The doctor took me off of 350 mgs when I complained of ruminating and carrying on conversations in my head and getting lost and stuff like that, but then she put me back on a few months later. The second time my brains weren't nearly as scrambled and most of the neuro stuff has been motor snafus. That and a loss of "executive functioning" which makes me a hazard in working with an emotionally disturbed teenager which I don't want to do anyway. Also I can't do cash registers, remember lines, or speak fluently in public any more--the latter gives me grief because I loved to do that. But to answer your question (again): I was crabby tritrating up. Topamax hasn't interfered with sleep. Sometimes, though, I wonder if I'll ever be me again, whoever that was/is. Topamax philosophy? Lately I've been feeling like I've sold my soul to it's apparent ability to help me maintain my weight and stay off the sauce. After years of struggle with AD weight and a few years with hard drinking, I just can't go back to that. But I don't know if I would if I didn't take Top. Time to get a life. And good luck to you.


Just to play the devil's advocate here...
could it be that we are now freed from the problems that led us to Topomax and have become who we might have been had the problems not developed????
just throwing that out for debate.....
kat

 

Re: Has topomax helped » bridgey1128

Posted by headachequeen on June 17, 2004, at 13:21:18

In reply to Re: Has topomax helped, posted by bridgey1128 on June 16, 2004, at 20:52:54

> I understand the voice stretching capability thing. I am a classically trained lyric 1st soprano and here I am having to sing songs like..White Room by Cream. We aren't really a cover band because our "director" for lack of a better word arranges them so different from the original and adds the instrument solos and such that they don't sound a whole lot like the originals. I think it's really helped my vocal abilities in the long run because I have had to stretch my chest voice range upward. Whereas before I could usually only get up to a G and sound pretty good I can now get up to a D. I wouldn't do this for church music now. It's just a total different sound to my voice for this style. It really helped me when I was playing Bloody Mary in South Pacific in Feb. That was so much fun! I found out that we, and when I say we I mean our High Point Community Theatre, are doing Into The Woods. I'm excited! Each show I get a better and better part. One day I will get a true lead. Bloody Mary was a lead technically but I wanted her. She was SOOO much more fun to play than Nellie would have been. I love to be able to play a character with depth. Bloody Mary was so funny but so intelligent. I got to do funny and serious in one role while maintaining a rather humorous Tonkinese accent. Now if you can make them gasp at the seriousness of the scene without laughing at your accent you know you have accomplished something. I belong to a site called rifftrader.com so when I get the final demo up I will let you know so you can hear it. :) I love celtic music. Gee, it must be something in the blood. hehe Or the hair. hmm Charlotte Church does a Welsh lullaby that is SO beautiful and I would love to sing..but I think if I tried to sing in Gaelic I would sound like I was hacking up a hairball. I have a Scottish friend and he said inevitably when someone tries to immitate a Welsh accent they end up sounding Pakistani. haha Oh yeah..this site has soemthing to do with Topomax doesn't it? hehe

Yep.. it does indeed... and let's admit it... without the stuff you and I would be somewhere out there wishing we were able to do the things we used to do... and sighing for the good old days...
I have done Lola and Nellie F. and Maria in Sound of Music... and in Westside Story... and then had the great fun of doing Buttercup in Pinafore and she was a riot...
so much more fun that Nellie ... although in those days I was about 100 pounds and young... and having been a baby farmer to the Captain of the ship and mixing him up with the sailor who wanted to marry the captain's daughter had to be a lot older and weighed a lot more... but poetic licence took over I guess LOL.. and it was such a fun person to sing...
Bloody Mary would be such a character... I envy you...
Lola is someone I could almost play again as far as size goes...age??? well, I am not sure...LOL
but the Topomax has returned a lot of the self esteem so who knows???

It really has helped...
in so many ways...
and the Gaelic music is fun to do... it is a thing I have done from childhood so easy... but we are doing translations so people can understand it because the music is so rich that the words need to be understood... well I know what I mean.. maybe the cognitive skills have been zapped after all???????

I am anxious to hear this cd and I know how hard it is to come back after the weight thing.. that does attack one's sense of self in so many ways... at least it did mine...
one can be fat and sing in church but not in the rest of the world at least not in my world... and now it is great...

for my daughter's wedding I chose the music...
Mhairi's Wedding instead of the old and overdone Wedding March,Borning Cry, L'hymne a L'Amour, May You Always and for leaving the church, instead of the other wedding march, Go Now in Peace ....
then she asked if I would be her soloist...
before Topomax I would have refused...
no way would I have stood in front of a crowded church all 209 pounds of me...
but 155 pounds of me did...and in a black dress and purple jacket at that in that goddess fabric and felt like a human being at the feast...

The weight issue is as much a part of the treatment for the epilepsy as are the seizures I think...
of course having had another breakthrough seizure last night I am not sure the epilepsy is being beaten...
and why are they called breakthrough seizures...
to me a breakthrough is a discovery, a success???

on the flip side, I am applying to go back to work in radio full time...
another topomax breakthrough
LOL
kat

 

Re: Good Grief » PoohBear

Posted by headachequeen on June 17, 2004, at 15:41:19

In reply to Re: Good Grief, posted by PoohBear on June 17, 2004, at 12:11:41


> Keep in mind that weight loss from Topomax is a SIDE EFFECT of a drug which is *meant* for seizure control. Since everyone's different, you *may not* see this SIDE EFFECT of the drug.
>
>> Tony


This is a point that I used to keep stressing in my early months on this message board and have stopped preaching...
at times it worries me that people are given the med simply for its side effect, but then, my neurologist prescribed it as a secondary anti-seizure med because of the side effect (it is one of the best things he has found to combat headache problems, migraine and cluster headaches for instance, and he is head of the headache institute in his region so I guess he knows whereof he speaks...)
so I thought perhaps I was not the one to preach the side effect message...
and now many doctors are prescribing it for weight loss and not just psy-docs...
so?????

many people are jumping on the atkins diet and trying that one, cutting down on carbs and hoping that will help, yet Atkins himself died morbidly obese and with extreme hypertension... that surely says something...

a balanced diet is much more helpful in weight management no matter the cause... and as a diabetic I have had counselling on that from some of the best...

besides we have to remember that many people who are battling weight and trying this means are battling weight gain caused by medications they were given to deal with psychological or emotional problems so it is not something that is simply an exercise or diet thing to be swept aside with a brush of the hand or the advice to exercise or eat less candy or whatever...

I know... I get more exercise than most believe me... aside from the music and the writing, I do a lot of extremely active things as I follow my dogs up hill and down dale and through culverts and barbed wire and over and under and through all sorts of impossible terrain, and around agility courses and doing obedience with them and with clients'dogs... and let us not overlook simply playing with them or show training... grooming is not exactly passive behaviour either... try lifting 90 to 100 pounds of dog onto a grooming table then working through all that double coat three times a week, or two or three times a day at a dog show...
so it is not always that easy....

if there is a side effect to this stuff that helps, then so be it, we use it to our advantage...

kat
>

 

Re: Good Grief

Posted by bruce_w6 on June 17, 2004, at 17:04:58

In reply to Re: Good Grief » bruce_w6, posted by headachequeen on June 17, 2004, at 13:07:12

Yes, the meds I am taking are definatly weight gainers. I was hoping that by 200 mg a day the weight loss would have kicked in.

> > I am up to 200 mg at 25 mg a week and still no signs of relief of weight loss yet from the Topomax. I went from 220 to 255 in 2 months with the med change just like everyone else. The 175 to 220 was from the previous med change. My god when will the Topomax kick in? Please respond. I am trying to keep my hopes up, the meds are keeping the depression at bay but I don't know for how long if there is no hope from the Topomax. You all know how I am feeling.
>
> Are there other meds that are causing weight gain?
> I know that the antidepresants that I was on all were accompanied with the warnings that they would cause weight gain... and they did...
> oh how they did...
> hence the slow weight loss at the beginning...
> also I would be concerned about the fast increase timetable...
> my neurologist is adamant about the slower rate of increase...
> no faster than two week increments and he tells people not to increase at that rate if they feel they are not ready...
> that could be causing the problem...
> I also have to mention that I hit a plateau when there was no weight loss... then one day discovered that it had started again...
> at the moment I am at such a plateau again...
> and hope it will start again... would like to lose another ten pounds... no more I think...
> hang in there...
> check the other meds and see if they are still weight gainers...
> it may be that the topomax and they are fighting each other...
> could they be changed with others that do not cause gain???
> just a thought...
> kat

 

Re: Good Grief » bruce_w6

Posted by headachequeen on June 18, 2004, at 13:39:25

In reply to Re: Good Grief, posted by bruce_w6 on June 17, 2004, at 17:04:58

> Yes, the meds I am taking are definatly weight gainers. I was hoping that by 200 mg a day the weight loss would have kicked in.


Okay, then, next question:

Is there a chance that they and Topomax are battling each other?
and could they be changed for meds that have the same effect but do not cause weight gain?

and I still would suggest that you go for the two week increment and not the weekly increment... it is really much more successful...
sign me been there and done that <G>
kat

 

Past the 200 mg

Posted by bruce_w6 on June 18, 2004, at 13:44:22

In reply to Re: Good Grief » bruce_w6, posted by headachequeen on June 18, 2004, at 13:39:25

Has anyone had to go past the 200 mg dose of Topomax to get the weight loss effect?

 

Re: Past the 200 mg » bruce_w6

Posted by headachequeen on June 18, 2004, at 13:59:55

In reply to Past the 200 mg, posted by bruce_w6 on June 18, 2004, at 13:44:22

> Has anyone had to go past the 200 mg dose of Topomax to get the weight loss effect?

I found the weight loss much more significant after the 200 mg dose if that is any help... I was pleased at the weight loss even at three pounds because it made me feel good about myself... but when I hit the 200 mg and the higher increments it really kicked in and I began to lose weight seriously...
and then I REALLY felt good <GGG>
when I reached 200 mg evenings and started the morning dosages then I began to notice the weight loss begin to kick in seriously and began to think I would be real people again....
kat

 

weight gain on topamax

Posted by hoax on June 18, 2004, at 14:50:35

In reply to Re: Past the 200 mg » bruce_w6, posted by headachequeen on June 18, 2004, at 13:59:55

I've been on Topamax 400 mg for 1 year now and have had no weight loss, despite it being promised to me by my p-doc over and over.
Recently I switched p-docs, unrelated, and was told that he sees an average of a 20-25lb weight GAIN in the first year on Topamax when used for bipolar. And, that's what I have. 25 lbs more.
Plus, numbness in my fingers (both hands) and cognitive impairement (mostly word finding difficulties). I would say it helps me sleep, maybe it levels me out, I can't tell.


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