Psycho-Babble Psychology | about psychological treatments | Framed
This thread | Show all | Post follow-up | Start new thread | List of forums | Search | FAQ

Re: And the dust settles » peacefeline

Posted by Lonely on December 31, 2004, at 17:31:23

In reply to Re: And the dust settles, posted by peacefeline on December 30, 2004, at 20:44:13

Thanks, Susan - you're absolutely right. And, crying and raging as I left T's office yesterday, she did hug me. First time but I always shyed away from her.

My hubby has lesions in the corpus callosum that have destroyed parts of his brain from multiple sclerosis. In a sense, it literally eats up the brain over a period of time - faster for some people and very slow for others.

I developed a workshop on customer service for a major hospital here a year ago. One of the points I made (via role play) was that any time a brain injured person is hospitalized (or in a clinic) there should be another person who is contacted at all times re tests, meds, procedures, discussions, permission, whatever. When my hubby was in hospital 2-1/2 years ago with Stroke/MS attack they hauled him off for a heart catherization and never told me. I thought they had taken him away because he had died. I read quite a few people off the riot act - I was not nice. But, not sure I got through to them.

Ironically, just yesterday the company that makes one of the MS injectable drugs talked to my hubby on the phone but never talked to me. They still don't understand that he has dementia (mild) as well as manic depression and MS brain damage. At least the neurologist's office has caught on part way. Now, I've got to work on the Copaxone people.

As some one in a similiar situation I would like to extend my warmest regards and understanding to you and your hubby also.

> Lonely,
>
> You could use some major hugs, I think! I'm so sorry this all happened around Christmas.
> My h is brain damaged too, mostly from car accidents but he's had 20 separate injuries to his head. It's a wonder he can function at all. And, like you, I've noticed how nearly all MD's and other medical people are terribly ignorant about head injury! I think it hasn't been well-taught in med schools. They can save the person's life in a case of bad trauma to the head, but whatever comes after that, in the following weeks, months & years, is a total mystery to most doc's.
> We finally found a neuropsychologist who is awesome and has made all the difference. But my h still strugges, 19 months after the last car wreck.
> I hope that your h can be helped. Is it from injuries that he has these lesions? How long have you been dealing with these problems?
> Can you believe the stupidity of that MRI tech? Maybe the person was new. But then they should have been supervised more closely.
> Best and warmest wishes to you and your h.
> Susan


Share
Tweet  

Thread

 

Post a new follow-up

Your message only Include above post


Notify the administrators

They will then review this post with the posting guidelines in mind.

To contact them about something other than this post, please use this form instead.

 

Start a new thread

 
Google
dr-bob.org www
Search options and examples
[amazon] for
in

This thread | Show all | Post follow-up | Start new thread | FAQ
Psycho-Babble Psychology | Framed

poster:Lonely thread:434343
URL: http://www.dr-bob.org/babble/psycho/20041228/msgs/436115.html