Posted by bleauberry on April 10, 2010, at 14:39:39 [reposted on April 11, 2010, at 7:38:37 | original URL]
In reply to Re: Start AD's at lower than FDA starting Dose, posted by Katgirl on April 10, 2010, at 9:43:09
> Very interesting Bleauberry. (Although it doesn't surprise me that this wasn't a pdoc!) I have been tested for Lyme's disease, and it came up negative. I was almost relieved, because I don't know how I would have made it through treatment with doxycycline (or whatever big gun antibiotic they use). And YES I have sensitivities to vitamins. I actually haven't been able to take them even before paxil withdrawal, mainly due to stomach upset. Now that I am gluten free, I am hoping my GI improves enough to try different things again.
I hate to spoil the party. It pains me. But it has to be said. Your negative test for Lyme means NOTHING. Absolutely nothing. It doesn't mean you don't have lyme and it doesn't mean you do. It is a worthless indicator. Long story. Trust me. Lyme disease is a clinical diagnosis...history, symptoms, and presentation. It is not a lab diagnosis because there are no lab tests that are accurate. The lab tests we use were designed by the CDC for regional surveillance (where error will not hurt the overall picture very much), not for individual diagnosis (where error will impact your life like a nuclear bomb.)
No way to know at this point. The symptom profile and history seems to fit. In my humble opinion, the chapter on Lyme disease in your life is still open.
I can't tell you how many thousands of people went on to suffer grueling lives of MS, arthritis, depression, ill health of all kinds, because one single lab test said "Lyme-negative".
It reminds me of a judge sentencing an innocent prisoner to a life of solitairy confinement based on one piece of disputable evidence that is falsely assumed to be authentic fact.
Those same people went on to recover amazingly when for one reason or another (usually a different doctor) they were put on antibiotics or herbs.
Just throwin it out there. People should know, regardless of what they do with the knowledge. Awareness is key.