Posted by bleauberry on December 27, 2018, at 11:10:03
In reply to Re: Intolerant to many medications...opinons?, posted by plenair on December 22, 2018, at 0:58:39
Your story reminds all of us how complex things are. It's not as simple as low serotonin or whatever.
Quninolone ABX are indeed harsh - I was on it for about 3 months - it worked amazing - but also caused serious issues with hairline fractures of bones without any trauma. That improved after getting off it.
The bad reaction you had actually sounds more like a vicious full-blown Herxheimer reaction to me than it does a direct effect of the drug itself. And that the permanent damage was from the intense inflammation, not the drug. As you have noted, it is hard to tell.
Leaky gut is certainly a thing that causes many problems and I think docs don't have much training on that. It's usually caused by poor food choices and/or stealth yeast infections. Testing isn't very good. We just have to stick to the basics - low sugar, organic, non-gmo, low carb, glutamine supplements, digestive enzymes with meals, and DGL...a modified version of licorice.
You might want to experiment with some of the common Lyme herbs just to see what happens. The reactions you might have - good or bad - can offer a lot of new clues to figure things out.
I'm thinking specifically of Andrographis, Cat's Claw, Resveratrol (from polygonum cupsidatum, not from grapes).
Some things seem universally helpful. One of them for me has been Berberine - I get it in a supplement called Phyto-Biotic. Another is Curcumin. Another is Rhodiola Rosea. I'm sensitive still so my doses are on the low side - Rhodiola is only 100mg but most people take upwards of 400mg.
Overall, just based on what you have written, I would have no problem saying, "it looks like long-term lyme to me". That's why I think sampling some of those herbs might be a way to go, because they will either rule it in or rule it out. If you take those herbs and not much happens, then you can probably rule it out. If you take those herbs and you feel a little better right away but then lot worse in a few days, that rules it in. If you crash hard, that definitely rules it in...more accurate than the lab testing.
> Thanks for your message. I appear to have been sensitive to substances and environmental conditions since childhood.
>
> I had a devastating reaction to a fluoroquinolone antibiotic that has left me with bodywide neuropathy and a weakened musculoskeletal system that I've been dealing with for years. The effects are painful and appear permanent My doctor did think that I might have "leaky gut" which may have contributed to the toxic reaction. I've been on all sorts of extreme diets to help these issues. I had my stool tested for stuff. I'm still messed up. I can't say it's because of leaky gut, but who knows.
poster:bleauberry
thread:1102225
URL: http://www.dr-bob.org/babble/20181024/msgs/1102622.html