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Re: Hoping Nardil kicks in at 60 (wk3) - up to 90

Posted by PeterMartin on July 17, 2018, at 16:36:55

In reply to Re: Hoping Nardil kicks in at 60 (wk3) - up to 90, posted by Tfeld on July 8, 2018, at 8:21:10


Thanks for the in depth message and I'm sorry it took me so long to see it/reply. It means a lot to know that speaking out loud might help some others out there.

The Zonegran trial didn't work. It started making me depressed and completely uninterested in things I like. I think I'm a bit lucky I decided to stop it before getting on a long run with it. Today is only my 3rd day off and it has an extremely long 60hr half life. Definitely wasn't feeling anything but sad this morning but I think I'm finally coming around a bit. In the 3weeks (200mg) I made it through it didn't lower the scale at all anyway.

Nardil has an odd medicine for me. Maybe like you suggest I'm taking too much. My BP is really low like 89/59 most times. I have bad urinary retention too and I've been at 90 for months now. Perhaps I should try to step back to 75 at some point.....I just need to hold on that until the Zonegran is gone.

Once Marplan is back (Quartet 4 2018 is the current listing on the FDA site) I'm pretty sure I'll switch right back over. This year has been a complete rollercoaster. It's been difficult. I definitely couldn't afford the overseas solution you found but luckily I think I'll be eligible for the assistance program when it's available again by Validus. Thatll he my only hope of getting it again in the US now...

Hope you are doing great and sorry for any typos/rembles - typing on my phone but wanted to reply.




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