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Re: 1 year later and feel very bad...

Posted by bleauberry on December 11, 2011, at 16:03:40

In reply to 1 year later and feel very bad..., posted by Vincent_QC on December 8, 2011, at 18:43:32

That is such a heartbreaking story and I am so sorry.

It looks exactly like Lyme disease to me. Almost picture perfect. I'm not saying you have Lyme disease. I am saying that the "bizarreness" of what is going on...and obviously doctors don't know what's going on....fits the profile, pretty much every detail you said.

Thousands of stories out there of people who spent 10 or 20 years suffering horribly and doing every med in the book and doctors seemed impotent and then the patients took a totally different approach and got better.

What makes it hard is lyme looks like so may other things. Sometimes according to my lyme doc it presents itself as just depression or anxiety without really any of the other symptoms. In your case, you got a bunch of the other symptoms, actually they are all on the list every one of them.

Ok so it looks to me like lyme but let's assume it isn't. Doesn't matter. The very same things that are helpful in lyme are likely to be helpful to you because the presentation is the same. That means a strategy that includes anti-inflammatory herbs, anti-toxin herbs, pro-adrenal herbs, heavy focus on food choice (if you haven't tested yet for gluten, if you are that sensitive to other stuff then you could likely be gluten intolerant, it goes with the territory).

For sure I think you were on the right track with some of the things you tried, most especially the siberian gingeng. My experience with it is that while it is usually touted as such a great herb with easy tolerance, and probably for most people it is, it can also be extremely problematic for some people....like you or me or the thousands of others out there with some bizarre thing going on. I couldn't even take a few drops of it without feeling anxiety and depression worsen.

In the adrenal category I would look at 3 choices....rhodiola rosea, ashwaganda, and shizandra. Rodiola is on the stimulating side while the other two are on the calming side, but they all work to balance out over time whatever is wrong. Forget the adrenal thing for a minute, all of these herbs also do multiple varieties of mechanisms all of which are meaningful in presentations that look similar to lyme. There are few miracle herbs in my opinion, but rhodiola is one. The other two I see more as helpful utilities, but rhodiola has the magic.

For sensitive people, here is the key. Super low starting doses are a must. For example my Lyme doc had patients start lexapro at 1 drop....that is 1/10th of 1 milligram. Doses are only increased as needed and as tolerated....no preset schedule.

In my case I found rhodiola by far the most beneficial in a wide range of ways, however this was after 4 previous failures on it.....in all of those cases I was shooting for a dose someone else said I had to get to and I was doing it on a set schedule. This time I started super low....to where I could just barely feel anything (and it happened to not be bad for a change!) and then if I had any trouble increasing a dose I would just go back down a little bit and just keep on keepin on. So doing that I went from 25mg which I could feel to now 250mg which is fairly invisible. Just the good stuff it is doing.

Anyway. So I mentioned anti inflammation and anti toxin. I do have specific herbs in mind which are also well researched in science and books. In addition to that, anti-microbial. That involves something wide spectrum that is also one of the many used in lyme. All of these things put together don't sound like they would be anti-anxiety or antidepression....but that's exactly what can happen because they combat whatever crap is going on that is flooding your neurotransmitter sites with the wrong stuff.

A test for lyme will likely be negative....trust me, long story. Unless you've got about $1000 to get the best specialized test, but even it has errors. And actually whether you do or not doesn't matter...you should be treated as if you do (in respect of super sensitivities etc) and focus needs to be on stuff that causes symptoms like your not just the symptoms themselves. Get rid of the cause and the symptoms go bye bye on their own.

My favorites I think almost all difficult psych patients would benefit from....
1. Resveratrol (only the Source Natural brand 40mg) which is made from japanese knotweed not grapes. Actually it's the knotweed we want here but the resveratrol is a miracle substance in its own right.
2. Rhodiola rosea.
3. Rotation of antimicrobials such as grapefruit seed extract, garlic, berberine.

These are all specific for "bizarreness" like yours or like lyme and do all the stuff I said needs to be done.

I would strongly suggest the book Healing Lyme by Stephen Buhner.

Though I didn't mention it here, the presentation also has the same bizarre fingerprint as mercury/lead/arsenic/aluminum accumulation. Most likely suspect in that case would be ongoing or previous amalgam fillings. Even if not exposed to excessive amounts of toxins, some people just don't have the genes to clean up very well and they tend to store the metals until it has a negative effect on their biology, which pretty much shows as a bunch of bizarre stuff that looks....as does lyme....like just about any other disease you can imagine. Treating it requires an OTC med call DMSA, as well as the anti-lyme stuff just because they do so much good stuff.

I am not a doctor.


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poster:bleauberry thread:1004509
URL: http://www.dr-bob.org/babble/20111208/msgs/1004698.html