Posted by bleauberry on November 30, 2009, at 19:19:11
In reply to Re: Update. Multiple deficiencies. Wow! » bleauberry, posted by delna on November 29, 2009, at 14:55:57
You might want to google the Marshall Protocol and read up on it. It very controversial and sparks heated debates. But within it is a very detailed explanation of the whole Vit D infectious disease connection.
If you supplement Vit D to get it higher, you should feel better. Unfortunately it also strengthens the pathogens, as it is their food, and eventually they will overwhelm you with their new strength. Your low D is actually your own body's wisdom in defending itself against them the best it knows how. It's low for not just a reason, but a good reason.
I am assuming there is an infectious agent involved with you, despite lack of clinical picture or history. The little I have...the timeframe, the symptoms, the mysterious lab readings...they paint a fairly obvious picture to anyone who knows what that looks like. It doesn't mean for sure that this thing that looks like a zebra is definitely a zebra, I mean, it could be a horse? To me, it has infection written all over it.
Most likely...Lyme disease primarily Borellia without the co-infections (they have different symptom patterns than yours), or mycoplasm (cell- wall-less bacteria that invade, take over, and live within our own cells).
Forget the testing. Unless you have an experienced LLMD (Lyme Literate MD) handy, this stuff is out of league of anyone else. Infectious Disease Specialists are actually the worst to see, so I suggest not doing that. A cooperative doctor who is willing to learn and explore along with you is what you want. You can actually do it by yourself without any help. It's not rocket science and does not require a degree in anything.
Tests are wrong 30% of the time, and not even available for some of the culprits. Some labs are very good, others not. So a lot works against you. Stories abound of people who have been undiagnosed for 20 years when they were very sick the whole time (fatigue, depression), and all they got was a referal to a psychiatrist for Prozac. Prozac doesn't kill the things causing the depression and fatigue. Tests were negative. They were told they didn't have anything wrong with them, it is just depression. Somewhere along the line they run into a doctor who actually knows what the heck he is doing. That's when the diagnosis finally comes...20 years and 10 doctors later. Thousands of stories like this. Including mine.
Specialists are the ones who usually pronounce life imprisonment on sick people, because they are bound by strict criteria of their trade organizations and politics of insurance. If a test is negative...despite that 30% of them erroneously are...you are not sick. You are screwed under the care of that doctor. He just guaranteed you will never get better, only worse. He has not the creativity or the freedom to do what is obvious or right.
Simple tests to rule this whole hypothesis in or rule it out:
1. Get Doxycyline. Take it at 200mg for 4 days. See what happens. Expected...maybe some slight nausea, decrease of appetite, maybe some mild diarhea, no big deal. That's a healthy non-infected person. An infected person...nearly bedridden with migraines, flu-like, aches and pains, crushing fatigue 10 times worse than ever, worse depression, feeling like the edge of death. That's called a Herxheimer reaction. It is the toxic biuldup of millions of dead corpses and their pieces overwhelming the body.
Doxy is wide spectrum so covers a lot of possibilities.
If no Herx on Doxy by day 4, stay with it for another 7 days. That is a common timeframe for any Doxy prescription. More often it is taken for months or years for acne treatment. No big risks in such a short time for you. Just to see if there is a Herx, that's the only purpose.
If no Herx on Doxy, switch to Clindaymcin. This one hits the bacteria that hide in protective cysts that Doxy doesn't impact. A form of Lyme is like that.
For a real powerhouse, Cipro. This one feels bad because it friggin works. It kills bad stuff no matter what it is or where it's hiding.
No Herx on any of these. Cool. It's only been a couple weeks and you definitively positively ruled out Lyme disease and a whole bunch of others.
What's left. Yeast. A big underdiagnosed player in your kinds of symptoms. This one is easy. Diflucan 200mg per day for a couple weeks. Again, looking for the Herx.
If you get the Herx on any of the above, you not only made a solid diagnosis, but you also have already pinpointed the med to target it. The strategy now is to reduce the dose to a tolerable level and slowly build it up as the die-off levels get lower.
There are veterinary sites on the web that sell all of the above with no need for a prescription...they are labeled for pets and thus exempt from needing a prescription for people. They are the same drugs and the same doses. And cheap.
This is hightech high accuracy inexpensive diagnostic work we can do.
I'm not saying you have an infection or not. I am saying it looks like it. I am saying it makes no sense whatsoever to NOT rule it out, or in, whichever the case. It makes TOTAL sense to rule it in or out. It would be disasterous not to. That is easy.
> thanks for that- it makes a lot of sense. I agree these levels shouldn't go so low and that the common link seems to be an infection. Especially since my ESR and WBC are both raised. As you said, finding out what is causing this is hard and my current doctors just want to raise the levels- not really investigate the cause. But I am going to seriously insist that this is looked into further. In fact I just had these tests randomly- no one doctor suggested them. They did mention them in passing...but that is all. I think the results are alarming all the doctors I am seeing.
> Of course no one believed that it could be something physical because I have no other physical symptoms apart from the fatigue. With such low levels of Vit D, I should be in a lot of pain- but I am not. Because my psychiatric symptoms started more than 2 decades ago, no one though that this *extreme* exhaustion I am having could be anything but depression getting worse.
> Right now I wish I had a doctor with the intellectual curiosity of Dr House!
> You're right, the Vitamin D makes no sense at all. Agreed, I am pretty housebound and I do avoid the sun like the plague...but I have loads of dairy and I basically live in a topical country so even if I *leave* the house I am exposed to the sun. Same with iron, I have a good diet and for the iron to go *that* low I would need to be starving.
> So you suggest blind tests with anti-parasitics, antibiotics..?
> Thanks for your input
> Really appreciated