Posted by yxibow on March 1, 2007, at 0:54:55
In reply to Re: Am I The Only Messed Up Person Here Hiding In » yxibow, posted by Phillipa on February 28, 2007, at 19:39:43
> Jay I do have chronic lymes was in the hospital for a month a few years back. I had an infection control specialist and yes I'm positive on the Western blot and always will be as you always test positive if you've had it. It's related the syphalis which I've never had. I had a pic line and received IV rocephin. This was after being given doxycylline first round which did nothing. I was in the psych unit for a med adjustment and they kept me and treated the lymes. Did MRI of brain, spinal tap. Those were negative. I am from CT. But I subscribe to a lymes newsletter and it's all over the world even the UK I'll forward you one later. After discharge I was on biaxin xl for over two year for three months at a time. The docs in Charlotte don't believe it exists here they are nuts. Last assessment last year health dept called again as Western Blot positive but the doc I saw said it's inactive and requires on more treatment. I'm not so sure I agree as the spirochettes hide in body tissue and come out at various times. They can cause arthritic symptom, chronic fatigue syndrome and other mental disorders. Love Phillipa
These are all true statements to some degree or another. However, the persistence of Lyme disease is controversial. Only you know how you feel, I have to admit that, but if it forms a chronic case, it is as you say like syphilis, actually more like herpes.The reason that you are receiving less interest from doctors is that more than 90% of Lyme comes from New England where doctors are more familiar with it. Certain concentrated parts of states can have case rates of 1 in 1000 there. Normally it is about 5-10 in 100,000 in the US.
Doxycyline or amoxicillin are usually the chosen agents to initially treat Lyme disease because some studies have shown that chronic syndromes can be higher without initial treatment.
Have you ever been treated with Cefuroxime (Ceftin), which is the only FDA approved antibiotic for Lyme disease? It is a cephalosporin.
I know you must scour the net for information, but do be sure you are getting proper information as chronic lymes is, as noted, a controversial subject and deserves true peer journal information to be disseminated. It has a characteristic but not relation at this point to chronic fatigue syndrome, which itself has not a single entry point identified, as people can have chronic fatigue like syndromes from many vectors or neurological disease.Yes, it exists in Europe too, with a similar epidemic rate as the US, which is one reason why the Lyme vaccine was discontinued because of little use besides possible incomplete coverage. In Europe though there are two subspecies, only one associated with neurological illnesses.
I wish you well
-- tidings
Jay
poster:yxibow
thread:736788
URL: http://www.dr-bob.org/babble/20070224/msgs/737258.html