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How VNS Therapy is Going Ľ deniseuk

Posted by juanantoniod on February 18, 2006, at 1:01:10

In reply to To juanantoniod, posted by deniseuk on February 17, 2006, at 4:05:46

Hi Denise,

In a nutshell, itís going fine. Iím still at the initial setting of .25 milliamps, but I go in on Monday for an increase, probably up to .50 milliamps. At first, I didnít feel anything, but then I noticed when I was talking that my voice got hoarse. Initially, it was kind of cool, because I knew it was actually working Ė stimulating -- but then it started to interfere with making phone calls. I emailed my Case Manager and asked if I should try and speak through the hoarseness, or stop the stimulation with my magnet. She said to try and talk through it as much as possible because it would help my body become adjusted to it. After this, I only used the magnet when absolutely necessary and just worked through the stimulation most of the time. After several days, however, I barely noticed the stimulation any more and now I donít even know when itís happening, and my voice doesnít change at allÖwell maybe a tiny bit. The ONLY thing that I think I may be experiencing is shortness of breath. At times, I feel like Iíve lost my breath and need to take some deep breaths to catch up. I donít know if itís the stimulation doing this, or something else, but because one of the side effects of VNS is shortness of breath, I think this is the cause. Either way, itís tolerable and as long as my body adjusts to it, like it did to the voice change, I will be fine with it.

Iím just anxious to get my stimulation settings up to the therapeutic level, which is 1.25-1.50 milliamps, and be at that level for 6 months, so I will have some opportunity for effect from this treatment. Once Iíve had 6-12 months at the therapeutic level, I will be satisfied that I got the chance to see what effect it had on me. If you have any other questions, please do let me know.

Best regards,


> Hi Antonio,
> I was just wondering how the VNS therapy is going?
> Denise




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