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Re: Topamax increase - stupifying! » Nickengland

Posted by headachequeen on August 22, 2005, at 16:29:33

In reply to Re: Topamax increase - stupifying! » headachequeen, posted by Nickengland on August 22, 2005, at 15:16:06

> Hello Kat
>
> Ahh I see my applogies :-)
>
> I'm very glad to see the success you have with Topamax for Epilepsy. I am finding it a very good drug to use too.
>
> I was using Tegretol before topamax too and find topamax so much more helpful.
>
> What type of Epilepsy to have?
>
> Kind regards
>
> Nick


Salut Nick!

I guess if one were to pin it down, I would be classed as having tonic clonic...
I suffered a brain injury at birth with the left templar lobe and the frontal lobe affected...
my doctor informs me that the situation is relatively rare but that he would expect nothing less from a redhead ... sigh...
As a rule the seizures are nocturnal, sometimes with the rhythmic leg and arm movements and other times with a rigid sort of reaction when I seem to be unconscious for a period of time and no one is able to recall me to consciousness until the seizure leaves me, no movement or jerking of limbs involved...
those seizures leave me in a limbo afterwards; when I waken I relive the day previous until something calls the actual day to my attention, so that I sometimes stay on one day for several days at a time... it can be truly confusing...
and exhausting

for several months following tests ordered by a neurologist my seizures switched to daytime and were absolutely awful, as the tegretol increased the duration and the strength of the seizure...

I have often wondered how people endure that type of seizure.. I had a chance to learn first hand and frankly I would rather have gone on wondering...

it took a year to regain the balance and normalcy of my own pattern so to speak and then the neurologist wanted to do it all over again...
I have been postponing the test ... want to keep the neuro in case I need him but do not want to create that horrid imbalance in my life again, especially now that I have managed to achieve this calm with the tegretol gone...
amazing how quickly we come to enjoy a peaceful existence

kat


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URL: http://www.dr-bob.org/babble/20050821/msgs/545231.html