Posted by iris2 on June 18, 2005, at 22:36:27
In reply to Re: Incentives for meds and Amineptine » iris2, posted by ed_uk on June 18, 2005, at 21:09:12
Not sure what I have tried since I was on this board last. Problem is that my interstitial cystitis has become "bad" in the past year and I have been trying to control the pain and frequency with oxycontin. Antidepressants almost always cause it to flare up again. I had a DSMO treatment, which made it a bit worse. I wanted to have several more but my doc refused. She then did a bladder distention, which several years back I had done for diagnostic purposes. I do not know what she did but since then I have had to urinate between 20 and 35 times a day, most with only two days exception when I was able to get a maximum of two hours sleep without interruption. So right now although I did find a clinic in Philly and another worthless doc in Pittsburgh, I am fairly hopeless and even more depressed if that is possible. I can not function. Even going to the grocery is quite the ordeal. At least with the pain I was able to take oxycontin and have some control over it for a while and it used to help with the frequency too. Not anymore. The stupid surgicl proceedure got rid of most of the pain ( which was somewhat controlable with oxycontin) but made the frequency/urgency much worse and I have almost no control over that. I have had depression for 16 years and this is different. If I could only get a few nights of uninterrupted sleep it would at least start to make a difference.
I guess the best thing about it all is that growing up the way I did I constantly have had extreme guilt about my inabilities (depression) Now that I have such a huge physical limitation I just don't have the energy to feel guilty about any of it any more. I know I try my best. If it is not good enough for others well let me also learn their limitations and not be judging them as they do me.
I know you did not expect my life's story. Not sleeping again and was grateful someone cared enough to ask. Sorry to rope you in!
By the way I remember you asking a lot of questions on this site and I am sure knowing me I asked something about you but I do not remember. How are you doing? What is your diagnosis, or what do you think it should be? IS anything helping you?
Amineptine helped me for a while but did interfere with my bladder after a while. IF my bladder was better and it was available I would try it again. As it stands even if I had no limitations I have tried so many antidepressants I do not know what or if I would even bother with another. I guess I am not in a situation to really evaluate what my decision would be.
Hope all is well and keep in touch. Human contact helps me immensely. I need to feel nurtured and know that people care.
I care about you even if I do not know you personally. We have crossed paths several times and so you are someone in my life and I hope the best for you,
keep in touch I always remember you asking a lot of questions about all different kinds of seemingly unrelated things. Just an observation. I always wondered if you were just interested in knowing what helped others and it did not always matter if it related to you. Nothing wrong with that.