Posted by KaraS on April 13, 2005, at 21:24:07
In reply to Re: Read this before answering my previous post » KaraS, posted by franco neuro on April 11, 2005, at 10:29:12
> Hi Franco,
> Yes I stopped the Wellbutrin. I think it might be worth trying again, but I need to get the "fight or flight" DA-NE-E reaction under control first. I do you the CES occasionally and find it somewhat relaxing. They say the more you use it the better
And not just for relaxation, right? It's also supposed to help with depression I thought.
> I'm not sure what the percentages are. He had it written on the prescription. I think it was 2:1 t4 to t3. I'll find out. I'm only taking 1/4 grain.
So to begin with he had you on Wellbutrin, "Pathroid" and the CES device. Does he have any other plans for you? Have you told him or called his office to say that you've gone off of the Wellbutrin or are you not planning on seeing him anymore?
> I think both scenarios can occur. But as far as the autoreceptors go I think it has more to do with hypersensitivity of individual receptors. However, if the amount of neurotransmitter in the synapse is chronically low than the postsynaptic receptors often increase in number in an attempt to make up for the weak "signal". The opposite is also true. If you chronically excrete too much of a specific neurotransmitter the number of postsynaptic receptors may decrease. It's all part of the brain's attempt to maintain homeostasis. Of course for some of us with neurosomatic problems brain it seems the brain has forgotten where homeostasis is.
...or perhaps for some of us homeostasis is not a healthy place to be. (Since my problems encompass my entire adulthood, I think I'm in this group.)
> I've only just started taking it. Goldstein recommends 1200mg of time released twice per day. I don't have time released so I'm trying to spread it out 600mg 4 times per day.
Any reaction yet on the guaifenisen or is it too early to tell?
> He uses the CES and likes it. It's funny but he used to be obsessed with health foods and supplements and since the Lamictal started working he doesn't worry about that stuff too much anymore.
Not so funny. If you feel good then where's the need?
> Do you see a pdoc? They should be able to give you the Millon test.
I had been seeing one but couldn't afford it anymore. Recently I did some intake at a free clinic but I've yet to see a doctor. I don't have high hopes though. I imagine he or she will just try to throw the latest SSRI at me or perhaps Cymbalta if I'm lucky.
What is the Millon test? Is it a written questionnaire? Does it take into account the newer definitions of bipolarity that many pdocs are using these days?
> I think he just happened to be lucky enough to have been seeing a doc that was willing to try out Goldstein's protocol with him. He pretty much just started trying meds. Keeping the ones that helped and dropping the ones that didn't. It's best to start with Goldstein's heavy hitters. Neurontin, Lamictal, Baclofen, etc.
Definitely need to get a hold of that book!
> > It really is related to brain chemistry and possibly other things going on in the body physiologically. It will be worth all of the searching when we find something(s) that work for us. Just imagine feeling joy in living again, jumping out of bed in the morning because we can't wait to face the new day! It can happen.
> From your keyboard to God's ears.
> You know Dr. Goldstein's most effective treatments are IV ketamine and IV lidocaine. I'd really like to give them a try. I may have found a doc who may use them. A friend of my sister's (who is having all kinds of strange physical problems) just went to see him. He's a fairly well know CFS doc in this area. I went to his website and he mentions IV ketamine and also baclofen as possible treatmens, so he's obviously aware of Goldstein's work. I may have to give him a call. I've also started taking a lot of fish oil/borage oil/flax oil to combat the inflamation in my body. Also, TMG and plenty of B vitamins to help lower my homocysteine level. Homocysteine, as I've recently found out, is glutamate/NMDA agonist. There's a lot of fixing to do.
I hear you. I'm going to increase my fish oil intake soon. TMG is on my list also. Homocysteine is bad in so many ways. I've been a bit lax with the B vitamins. I'd better start taking them more regularly again. The latest doctor sounds encouraging. Definitely keep me posted as I also have CFS and I think I'm not that far away from you. (I only get CFS attacks periodically these days - unlike when I first was diagnosed. These days I usually get an attack when I'm run down. Now I'm having one but this is the first in a while. But I imagine the treatments you're referring to will do more than just combat the outward physical symptoms of CFS.)
Talk to you later.