Psycho-Babble Medication | about biological treatments | Framed
This thread | Show all | Post follow-up | Start new thread | List of forums | Search | FAQ

Re: zonegran and bipolar II/nausea/fatigue

Posted by Jenbracha on January 4, 2005, at 16:24:17

In reply to Re: zonegran and bipolar II/nausea/fatigue, posted by tired10mom on July 24, 2003, at 12:14:35

Hi there,

I read this post and am very concerened. I wonder if you can tell me what your daughter's initial symptoms were in re: to the burning? When did it start? What parts of her body were affected first? How much was she on?

Any detailed info is much appreciated.

Best,
Jen

> My daughter was on Zonegran (the miracle drug) for
> just two weeks before she had an allergic reaction to it.
> It is a sulfonamide. Her body burned from the inside
> out with second degree burns over 51% of her body,
> and her mucous members burned from her mouth all the way
> through to her anus and vagina. We spent three weeks in
> June in the Burn Intensive Care Unit, and now that she is
> home, I am bathing my 16-year-old daugther, soaking off
> bandages, applying ointments, and putting dressings back on.
> She has massive scarring on her back, chest, arms, buttocks,
> and stomach. We are waiting on a compression suit that she
> will wear for 6-9 months, if not longer. Then we can consult
> with a plastic surgeon for reconstructive surgery.
>
> Sometimes miracle drugs aren't all they're cracked up to be.
> The thing that attracted my daughter to it was the weight loss
> side effect since most of the other drugs cause weight gain.
> The doctors and pharmacies tell you about the nausea, fatigue,
> headaches, weight loss, drowsiness... You can live with those.
> They don't tell you about Stevens-Johnson Syndrom or Toxic
> Epidermal Necrolysis which are also know side effects. These are
> the ones that will kill you. And your children.
>
> Please be careful. I don't want anyone to ever go through what
> we've experienced. Especially since the meds she was on were
> working well except for the weight. And imagine my surprise to
> find out that in Texas, for mental health issues, a 16-year-old
> can make decisions about their own welfare and sign for themselves.
>
>


Share
Tweet  

Thread

 

Post a new follow-up

Your message only Include above post


Notify the administrators

They will then review this post with the posting guidelines in mind.

To contact them about something other than this post, please use this form instead.

 

Start a new thread

 
Google
dr-bob.org www
Search options and examples
[amazon] for
in

This thread | Show all | Post follow-up | Start new thread | FAQ
Psycho-Babble Medication | Framed

poster:Jenbracha thread:241313
URL: http://www.dr-bob.org/babble/20050103/msgs/437735.html