Posted by jodie on January 31, 2003, at 23:03:15
In reply to Re:TLE-jodie or high anxiety-Ritch, posted by highanxiety on January 31, 2003, at 21:50:09
I don't necessarily get the musical thing, but voices & songs on the radio will sound muffled. I know it can be a symptom though.
I had this strange experience once, I must have been 13 or 14. I was laying in bed trying to go to sleep. I started feeling sick to my stomach, and had a headache. I started to get the whole size distortion thing going on, and suddenly I felt like a cartoon duck!!! I am laughing right now, because I know how silly that sounds!!! I felt like I was laying in an enormous bed that kept growing,and I was a tiny little cartoon duck, that just kept shrinking. I've had some strange ones. I remember when I went through a phase where sometimes I would look at myself in a mirror, and it would set off the real strong deja vu thing, like when I was getting ready for school in the morning it would happen.
After having my grand mal seizure, I saw several neurologist. One actually witnessed me having one of my "epsisodes", he kept repeating my name. Finally I remember saying "what, why do you keep saying my name"? He asked if I felt anything, or remembered the last few minutes. I told him I started to get the depersonalization, and deja vu feeling, and sick to my stomach. He said I sat there for 2 min. and smacked and licked my lips, and then started laughing. I didn't remember any of that. That was so strange!
Ritch, you mentioned the man and having seizures when he listened to elton john (poor man, I love listening to elton). Some people have seizures from certain video games and cartoons. Have you heard of the kids show teletubbies? I guess a few kids had seizures while watching that. I was reading something on the net once, about TLE. I guess even certain pictures just hanging on a wall, or even smelling something can set off a seizure. I don't mean the smells you can get from having TLE, but real smells. Like maybe for example, everytime some woman smelled ketchup (catsup...thats so funny how you can find that spelled differently, just like donut) she would have a seizure. Weird!!!!! I guess it just goes to say that anything can set off a seizure.
I have always had this sort of theory, that maybe I am not having seizures, but maybe I'm having flashbacks of a present, or future life (not that I necessarily believe in reincarnation, but I have a pretty open mind),or tapping into something beyond our ability to imagine, or prove. Maybe we are special, and its happening for a reason, who knows. Sorry, I'm just babbling again!!!
I was wondering, if we are going to keep this thread going, maybe we should take it over to psycho social babble, since we haven't been discussing meds very much anymore...just a thought!!