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Re: elusive putative seizure disorder

Posted by Elizabeth on October 6, 2001, at 11:19:54

In reply to Re: elusive putative seizure disorder, posted by PattyG on October 2, 2001, at 12:50:30

> Elizabeth - Your experience sounds very scary (not that my son's wasnt' as well) but I think especially to have it happen when you're alone would be worrisome.

Yes, although my boyfriend seems to be more freaked out about it than I am. It was especially scary for him to come home and find me that way because one morning (5am or so) back in February he discovered me lying on the floor in the kitchen, comatose. He was afraid that something like that had happened again (we never found out what caused that episode, either).

> I would imagine he uses daily.

Would he tell you if you asked? (A lot of pot smokers don't do it every day; it's not an addictive drug.)

> In your bf's studies, did he find anything regarding Effexor? My son has been taking that for about 5 years or so - he's done fairly well with that, but like many, is hoping for Reboxetine to be approved.

My BF was in grad school back in the early '80s, and although fluoxetine was around (though not yet available for clinical use), I don't think that venlafaxine was. But Effexor has a good reputation as an antidepressant.

> > But Topamax is probably safer and more tolerable than Dilantin is. (It does tend to cause weight loss, so if your son is a skinny guy it may not be the best choice.)

I wasn't clear here. Topamax, not Dilantin, is the one that's known for causing weight loss. Most anticonvulsants are sedating rather than activating.

> Do you know of any other threads that might be helpful in our quest for knowledge?

No, but you might search the archives for the words "epilepsy," "seizure," "Dilantin," etc.





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