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Re: elusive putative seizure disorder

Posted by SLS on September 28, 2001, at 11:34:43

In reply to Re: elusive putative seizure disorder Elizabeth, posted by Zo on September 28, 2001, at 0:38:56

> Elizabeth. I wish I knew you better, to get a feel for your case. That's what I did for my own seizure disorder, and with something as varied as TLE, I can't help but think that's one of the best ways to arrive at a sense of one's diagnosis. The only book avail. in libraries or o.u.p./used is Seized, such a must- read and good-read, it ought to be reissued. What I learned cruising the web, and then putting it all together, is that there's nothing cut and dried about it. . and somehow neurologists are the *worst* at needing cut and dried. My TLE, as do many, didn't show up on a sleep-deprived EEG. . and yet I've had it since I was a child. What kind of seizure did you have? A good epilepsy sight will give you names and symptoms. And any time spent on braintalk.org on the Epilepsy board will acquaint you with the amazing variety of symptoms. If you want to discuss this offlist, I am at zozo1029@mac.com.
>
> At any rate, my pdoc takes care of that part of my dx too. . and all these things are *so* interwoven: TLE, BPII, ADD, even CFS. The point at which to become concerned and do things like an MRI - not that they are terribly defining - is if you are worried about a tumor or something, or the seizures are dangerous. Yours are very infrequent? Follow some pattern?

Zo,

Great advice. Thanks for providing the summary.


Elizabeth,

I figured out what's wrong with you. Your brain just can't handle being away from your boyfriend. It seems that the only time you have an episode is when he's gone.

:-)

I am curious though, how does the appearance of seizures compare in time relative to your beginning treatment with opioids?


- Scott

 

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